Blood clotting disorder in pregnancy

[JennyC80]

Hello everyone!
I'm new here. I'm 10 weeks pregnant and currently on clexane injections as have blood clotting disorder.
I'm yet to see a midwife and to have a scan. Haematology said I have to have emergency scan to make sure this pregnancy is viable but I'm struggling to get a referral: my GP said ask midwife and I haven't even had my booking appointment yet. I also read lots online about how these sort of disorders can affect future baby etc. I'm panicking and really stressed at this point and worried about my unborn child.
Is anyone else in this situation? What are the odds of me having normal pregnancy?
Thank you in advance!

Hi! I'm a symptomatic carrier of haemophilia B which probably isn't as serious as your condition but maybe I can help as I have a 2 year old DS. Once I found out I was pregnant I contacted my gp who referred my to the high risk clinic. They fit in touch with my local haemophilia centre and my care was managed between the two hospitals. I gave birth at the hospital attached to the haemophilia centre so that clotting factor etc was available of needed.

My factor levels were monitored throughout pregnancy and I was very well looked after by everyone. I was discouraged from having a cs and forceps and ventouse we also ruled out. Luckily I was never in a position to need any of these but they might put some plan in place for you. I was given a drip after the birth to encourage the bleeding to stop more quickly and was kept in hospital for 48 hours for obs. This was the worst part - I just wanted home!

Because I carry haemophilia I found out that I was having a boy do I could prepare myself for the possibility that he may have it. The blood from the cord was tested when he was born and the levels seemed normal. He had to have another blood test at 6 weeks to confirm that he didn't have it.

There are lots of procedures in place for ladies with clotting disorders who are pregnant. I did a google search and going the nice guidelines for dealing with pregnant women who carry haemophilia - perhaps there is a similar document that relates to your disorder that could put your mind at rest?

I hope some if this helps and I apologise for any autocorrect mistakes!

Hi there. I have a kidney disorder which, along with various other issues, means that my blood clots easily due to protein leakage. My pregnancy has been very closely monitored because of this and I have been on clexane throughout - which has been fine but not easy injecting around the bump!

I had exactly the same situation as you with referrals. In the end the whole system got so complicated that I self referred. You can call your hospital and go through the self referalls system and then explain the situation. You should be having your booking in appointment very soon though no?

Sorry you're so worried, it's just extra stress isn't it. I have a blood clotting disorder too and have to inject heparin every day. I was really worried and thought there was no way I'd ever be able to have a healthy pregnancy (thanks in part to insensitive doctors frightening me when I had a DVT a few years ago). So far everything for me has been absolutely fine (19 weeks now) but they have advised me it is possible I will be advised to be induced early BUT you don't have to if you really don't want to. I won't be able to have a water birth and I can't give birth at home or in a midwife led unit (but I didn't want to anyway). It does limit your choices more at the end but by then you just want it out anyway and you probably won't care. Just remember it's all to give you the best chance of having a healthy baby. I think your Haematologist has been a bit insensitive because the worrying will only cause you further upset, and I never had to have any early emergency scans or any such thing (even with a history of very serious thrombosis). It sounds like we have a similar condition, I am absolutely fine and I am sure you will be too. My mum has the same condition as I do and has had two healthy babies, plus a boatload of major surgery and never had any issues with thrombosis, in fact they only diagnosed her by chance when trying to find out where on earth I'd got this disorder from as I was so young to have an issue.

Hope I have gone some way to put your mind at rest but do keep on at them and maybe go to your GP and tell them how worried you are - perhaps they can help you further. Lastly - as my wonderful Haematologist told me - "STOP GOOGLING!". :) x

Thank you everyone. X