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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

980 replies

LucindaE · 30/03/2012 12:21

We need a new thread.

This thread is for anyone suffering from the Horrors of Hyperemesis and if anyone's got bad m/s too they're welcome to join in. Hopefully sufferers will continue to get support through talking with present and past sufferers on here.

There's no such thing as TMI here - by definition with this awful illness there can't be - and feel free to moan all you like. You have reason to!

I want to thank Everyone MOH Mother of Pearl Ovaltine (once theOnly Melange (once NitNat) FluffyWhiteKittens* and so many more
for all their stirling work, and so many more that I can't name them all.

My apologies to anyone I've rudely overlooked, I daren't keep gabbling too long, or I might put off current sufferers.

Remember, when you are at your worst, the words from the Eastern story: - 'This Too Shall Pass.' It will...

Below is some brilliant information from sites.google.com/site/pregnancysicknesssos/

However, if you don't feel up to reading it now, feel free to skip it for now and have a good moan.

Hyperemesis gravidarum (HG) is a severe form of pregnancy sickness which affects between 1 and 3% of pregnant women. Historically, it was mistakenly thought to be a psychosomatic illness and women were treated as though they had a psychotic disorder. This view has been comprehensively disproven by numerous research papers in recent decades, and it is now known to be an illness of organic origin, although its causes have yet to be fully understood. There is a persistent common belief that no drugs should be given to women in the first trimester of pregnancy. This is not true. There are a number of effective anti-emetic (anti sickness) drugs which can safely be taken in early pregnancy. Unfortunately, the erroneous views that HG is a psychosomatic conditions and that no drugs are safe in the first trimester still persists in many places, shockingly, even amongst GPs and midwives. Sadly, many women still come across unsympathetic health professionals who are ignorant of current treatment methods.

How do I know if I have HG?
If you are suffering from persistent nausea and/or vomiting which is preventing you from eating and/or drinking then you may be suffering from HG. With ordinary nausea and vomiting of pregnancy (NVP), the sickness does not interfere with your ability to eat and drink enough, you should not be losing weight and you should be able to continue to care for yourself and your family although you may not be feeling too great. With HG, sufferers often need help caring for themselves, never mind look after their family. The illness can be completely debilitating for weeks or even months. If you're not sure, the HER foundation website who have a fact sheet to help you determine whether or not you are suffering from HG
www.helpher.org/mothers/hyperemesis-or-morning-sickness/index.php

Diagnosis is important as you will inevitably become dehydrated and you will need to be admitted to hospital for IV rehydration. Starvation is another risk. When your body burns fat for energy, it produces chemicals called ketones which can be detected in your urine. You can monitor your levels of starvation using ketosticks, available from pharmacies. You pee on the stick and it monitors your levels of ketones. If levels are high, you should tell your doctor or midwife. If you are worried about dehydration and ketone levels and you can't see your doctor or midwife, you can go to A&E.

Facts and Figures and FAQs

HG is worse in the first trimester for the majority of sufferers, though a significant proportion (10 ? 20%) suffer for the entire duration of the pregnancy. If you have close relatives (mothers, sisters) who have had HG, you are also at significantly higher risk of being a sufferer yourself. HG is the most common cause of hospitalisation of pregnant women in the first trimester.

Is it worse carrying a boy or a girl?
There is conflicting evidence as to whether having a boy or a girl makes HG worse, some studies say boys, some say girls.

Is it worse with twins?
Yes there is evidence that carrying more than one baby makes HG worse.

Will my baby be ok?
Babies born to HG mothers are usually absolutely fine. If you lose some weight during the first trimester the risks for the baby are low as it does not need much nutrition at this time and your body should have enough stores from before your pregnancy. However, if you continue to to lose weight due to lack of treatment or failed treatment, then there is an increased risk of low birth weight or pre-term birth. Studies show that this is a risk for women who are severely ill, are dehydrated for long periods and lose more than 10% of their body weight.

There is also growing evidence of long term health effects in some children born to mothers who suffer malnutrition in pregnancy. In some cases this is not evident until adulthood with increased risk of chronic conditions such as diabetes and hypertension.
For more information see forums.helpher.org/viewtopic.php?t=18 and www.helpher.org/hyperemesis-gravidarum/complications/fetal-programming.php

I've heard that being sick is a sign of a healthy pregnancy, is this the case with HG?
You will often be told that morning sickness is a good sign and you should be happy that you're feeling sick. This is generally the case with normal NVP, however, it is not the case with untreated HG. There is actually a higher risk of pre-term birth and low birth weight. However, continuing to feel sick may be a sign that the pregnancy is still progressing. Some women with HG who miscarried reported that the first sign was that they suddenly stopped feeling sick.

What are the treatments?
Initially you will be advised to use non-pharmacoligical strategies which are similar to the general advice given to any pregnant women suffering from nausea. These include eating little and often, eating protein-rich, low-fat meals, avoiding triggers of nausea such as strong smells and getting enough rest. You can try ginger, seabands (accupressure wristbands used for travel sickness) and extra doses of vitamin B6. Avoid getting out of bed in the morning without something in your stomach such as a tea biscuit or cracker. Some women find that these give relief in the initial stages of HG but they become ineffective once the illness is in full swing.

The next line of treatment is prescribed antiemetics such as phenergan, cyclizine, stemetil and ondansetron. For many women these work well and control the nausea and vomiting enough for them to eat and drink normally and regain some of their lost weight. Many can even return to normal life. You may find that one antiemetic on its own is not effective and you may need to try different combinations but you can discuss this with your doctor. Even with antiemetics, you will probably still need to use coping strategies such as getting extra rest, eating small frequent meals and avoiding triggers when the HG is at its peak. If you are dehydrated, you may be admitted to hospital for IV fluids. Minerals and vitamins can be added to the drip to replace any you may have lost, as well as antiemetics.

Unfortunately, antiemetics don't work for everyone. If they are ineffective, you should be referred to an obstetrician (if you haven't been already) for the next line of treatment, which will probably be steroids. These carry a small risk of cleft palate, but this will be discussed with your doctor. In a small number of cases even this is not effective and drastic treatments such as feeding with a tube directly into the stomach may have to be considered.

My GP is unsympathetic and refuses to prescribe me drugs - what should I do?
Unfortunately this experience is all too common. In this case you should see another GP if possible. You should also ask for a referral to an obstetrician. If you remain untreated and become dehydrated, you can have yourself admitted to A&E for IV fluids and ask to be seen by an obstetrician.

Do alternative remedies work?

Some women are greatly helped by alternative medicine, particularly Homepathy and Acupunture. Some women can claim to have had the illness 'stopped in its tracks' by Acupunture, but success varies between individual patients and it tends to be expensive. These remedies are worth a try if you can afford it but have a back up plan incase it doesn't work.

How long will this last for?
For most women, HG peaks in the first trimester and tails off or disappears completely later in the pregnancy. The usual advice for morning sickness is that it will improve after 12 weeks. The majority of HG sufferers find that it takes longer than this. Unfortunately, some women suffer severely for the entire pregnancy. Others find that it improves, but they suffer from nausea and occasional vomiting until birth. Relapse is quite common especially if you have tried to return to your normal busy life. There is a great temptation to make up for lost time and become very active once you start to feel better, but this very often leads to the nausea returning. You should be very careful about resuming work and normal household activities even if you feel as though you're up to it. Be careful too about stopping your medication, do it very gradually and resume at the first sign of the condition returning. You may have to continue to take it for the entire pregnancy to prevent a relapse.
All I can drink is coke, I'm worried that I'm not eating a healthy diet.

Through pregnancy, we are bombarded with advice about what to eat and what not to eat. Women with HG often find that the list of food and drinks that they can keep down is very small and not at all from the healthy options. For some reason, women with Hyperemesis ofen find sweet and salty foods ie, sweet drinks like coke, and crisps, are more likely to stay down than healthy foods. Their peculiar diet can lead to disapproving comments and the incorrect assumption that this is how they normally eat.
Various women find different drinks acceptable. Coke (often left to go flat) Lucozade, lemonade, milkshakes and IronBru, Dr Pepper, orange squash, apple juice, lime juice, ice cubes made of flat coke or just tapwater, ice lollies and sips of tepid water can help in keeping rehydrated. 

When the illness is at its worst during the early hormonal surges - typically between eight and ten weeks- then it is difficult to retain any liquids and you may need to be hospitalised for rehydration at about this time. 

When solids do become bearable,jelly, tinned fruit, ice lollies, ice cream, crisps, fish fingers, potato cakes, crumpets, soda bread and similar potato based or salty foods have often been found to be acceptable.

The important thing to remember at this time is that it doesn't matter what you eat or drink, the crucial thing is that you eat or drink something. Don't forego something because you are worried that it's bad for you. In a normal diet, too much salt and sugar is bad for you, but when you consume nothing else, this may be your only source of calories, fluid and salt for the day. Instead of berating yourself for your unhealthy diet, congratulate yourself that you have kept something down because your body needs it. If you are able to take vitamin tablets or syrups, then do so but most women find that large multivitamin tablets make the nausea worse. You may be able to get vitamins that dissolve under your tongue which you may be able to tolerate. If and when you begin to feel better, you can start to re-introduce more healthy food.

Will it go away when I give birth?
The good news is that for the vast majority of sufferers the physical symptoms of HG disappear completely as soon as the baby is born. You should be aware though that it is not unknown for the nausea to persist after birth especially if you have been severely ill. If this occurs, speak to your doctor. For women who suffered persistent, long term nausea and vomiting, it may take some time to restore energy levels and nutritional reserves. Moreover, while the physical symptoms may leave, the trauma of HG can leave an emotional legacy for many women, especially when combined with the rigours of caring for a baby. If you have any concerns, speak to your doctor or midwife. Don't feel that you should just be able to pick yourself up and get on with things, if you're having problems you are entitled to seek support.

Will I get it in my next pregnancy and will it be the same?
Unfortunately, having HG in one pregnancy puts you at a high risk of suffering in subsequent pregnancies although it is possible to escape it. Some women find that the HG gets better in subsequent pregnancies, whereas others find it stays the same or gets worse. There is really no way of knowing how your pregnancies will relate to each other.

Can I do anything to prepare for HG incase I get it again in my next pregnancy?
The HER website has a page of advice on preparing for your next pregnancy. forums.helpher.org/viewtopic.php?t=17. If you had medication which worked for you in your previous pregnancy, make sure that you have it ready to take as soon as you feel ill. Studies show that the quicker you get on top of the sickness, the better the medication works. Because HG can start within days of missing your period, see your GP as soon as you know you're pregnant.

Useful sources of information
The Royal College of Obstetricians and Gynaecologists in the UK have no guidelines on the treatment and management of HG. However, the American College of Obs/Gynae (ACOG) and the Society of Obs/Gynae of Canada (SOGC) have published guidelines which can be found at the following sites

www.sogc.org/guidelines/public/120E-CPG-October2002.pdf 

www.guideline.gov/content.aspx?id=10939

Pregnancy Sickness Support is a UK based organisation run by GPs and midwives with direct experience of HG. They have a helpline which you can call for advice ? if nobody answers you leave a message and a midwife will call you back. They will be able to answer your questions about treatments and they keep a note of doctors around the country who are known to be sympathetic to HG sufferers and are willing to treat it with medication. Their website is at www.pregnancy sicknesssupport.org.uk

The Hyperemesis Education and Research Foundation (HER) is a US based foundation which was formed by HG survivors and has a mission to research the causes of HG and provide information and support for other sufferers. They have links to the latest scientific research and are actively involved in funding research, although you usually have to live in the USA to take part. There are loads of threads on every topic related to HG from women who have been through it, including very useful information about which treatment regimes worked. Their website is at www.hyperemesis.org.
Dealing with well meaning but unhelpful advice

Women with HG are often told by friends and family that it's just morning sickness, a normal part of pregnancy and you just have to put up with it. Many HG sufferers report extreme frustration at being advised to try ginger, dry crackers or eat little and often. Most of them have tried every remedy they can think of to no avail. Because most women are familiar with NVP, there is often an attitude of, well I had morning sickness and I just got on with it. HG sufferers are often left with the feeling that they are whingers and malingerers and that if only they could adopt a positive attitude then they would be fine. This can lead to further depression in what is already a depressive condition. In order to deal with this, it is important that the HG sufferer has some supportive friends or family who can firmly but politely fend off these comments. The sufferer will often have no energy to deal with it herself. If possible explain to the person giving the advice that you are not suffering from morning sickness, you are suffering from a condition called hyperemesis gravidarum.

I have never known anyone with HG. Where can I talk to women who understand how I feel?
There is a support thread on the talk boards here (ask MT to add link) which is run by sufferers and ex-sufferers. There are discussions of practical issues such as tips for coping and medication but the real value of this forum is that you get sympathy and understanding from people who know exactly what you're going through. If you just want to moan or let off steam, you are free to do so and nobody will hold it against you. Comments are also welcome from relatives, partners, friends and carers of HG sufferers. The HER website also has talk boards at forums.helpher.org/. There is also a UK based yahoo group called Bloomingawful at health.groups.yahoo.com/group/bloomingawful/

OP posts:
Are your children’s vaccines up to date?
LucindaE · 12/04/2012 19:47

Back! Just been reading through, trying to catch up, the advice and support MOP MOH have been wonderful and that Magnum and Feekerry too, and Ovaltine. My mother's pc is unluckily in her bedroom, so there was no sneaking on it at night...
[thanks[ Thanks ThanksThanks and Magnum WineGrin Congratulations, wonderful news, baby at last! and Feekerry Congratulations again. Isn't the view from the Pink Castle wonderful? And as MOH says, the champagne. The ordeal is over, the reward starts! Tabitha is a lovely name.
I'm worried too that poor Kali has gone to hospital, it sounded very bad.I know what she meant about that fifteen minute interval, but perhaps it wasn't enough to keep enough liquid down.
Horsey You poor thing, you were throwing up every hour at this late stage? And the heartburn was so bad at night it set you off, that's awful.
OH was certainly being insensitive. I am so glad that the funeral wasn't traumatic. I don't think, oddly enough, that they usually are, it's the shock of the first news, but worrying about being sick during it is another thing entirely.
Barmee Mother hen is anxious about how you are doing now? I do hope after that fainting episode you are off with a sick note?
PlasticPeople Oh dear, poor poor you. What meds are you on?
Cosmo That sounds awful, the grinding nausea. It wears you down for sure. Is it all day non stop still?
Detective Isn't that odd, horrible puking but no bile run in the morning.
Savannnah I wish the thread had been going then, too. As others say, never blame yourself, it was almost certainly just bad luck.

I hope I haven't rudely ignored Anyone. Some clucking and fussing.
Lucinda
xx

OP posts:
TheDetective · 12/04/2012 20:33

Can I ask if anyone on here has had a significant improvement after 12 weeks? I know from experience that mine went on til 22 weeks with DS. However, I seem to remember that I was feeling a bit better after 12-13 weeks, although still vomiting.

I know I enrolled on a college course, and I was 14-15 weeks when I started, and I didn't have any time off sick and managed it okay. But I definitely know the vomiting didin't cease til 22 weeks.

I guess I am just worried. I do get full sick pay from work, but its for 5 months. This will take me til 27 weeks. I can't go on maternity leave until 38 weeks, because I can only afford 6 months leave, and obviously I want that to be with my baby! I am just worried about that gap from 27-38 weeks, almost 3 months, where I either have to work, or take a £2200 a month pay cut. Who can afford that?! (Not me - main earner here!)

I think I will just hope that it gets better. Please!!! Or at least to the point where I can work.

kalidasa · 12/04/2012 20:54

Hello everyone. Thanks for your good wishes. Short version: LucindaE and MOP were right. Longer version below!

I got the GP and started to cry when I saw him because I felt so ill. He was a locum I think as I hadn't met him before but he was really good. He spent ages on the phone to the Royal Free gynae dept while I tried to produce a urine sample. I think they told him to send me anyway even if I couldn't but in the end I did and my ketones were 4+ so he said I had to go straight to A&E in a cab and he gave me a letter. A&E took hours of course - about five hours altogether - and I was sitting on a chair on a drip attached to the ceiling for the last two of those hours waiting to see a gynae consult to admit me. Fortunately a very fantastic friend arrived about 2pm and stayed with me.

By the time I was admitted I was freezing and couldn't get warm and had a bit of a fever. They admitted me onto a sort of A&E holding ward first and then I got moved up to a general admissions ward, that was at about 6.30pm I think. They gave me cyclizine and metaclopramide. The night was OK but this morning I was sick again despite the regular cyclizine (so they gave me more metaclopramide) and my ketones were still 3+ even after 12+ hours on a drip. At the point they said I'd probably have to stay another night because I'd need to stay on the drip. But I finally started to feel better this afternoon and the ketones came down and since my mother has arrived to look after me they discharged me this evening. They would have kept me if I was on my own I think. I had five of those drip bag things in the end.

They also did a scan (the slightly humiliating internal way) and I saw the embryo. It looks good and the heart is beating, apparently it looks just right for my dates (6 weeks today!). It is 5mm long. Amazing that something the size of a lentil can be causing such chaos!

Still quite overwhelmed with how ill I got how quickly but at least have meds now and also I'm no longer so frightened of having to go to hospital because although it was grim - especially in A&E - all the actual staff were good and I did feel safe and looked-after. At the moment I can drink without problems and have managed small amounts of food in the last few hours too.

Anyway, I wanted to say a big thank-you to everyone who offered advice on here. I really did feel more prepared for the whole experience having read this thread.

MotherofPearl · 13/04/2012 10:06

Kali, dear me, you've had a dreadful time. 5 IV bags! It's strange for me reading your post because your experience so precisely mirrors my own, almost exactly a year ago too. I keep looking back on 'this time last year', when it was hard to imagine getting through the day, let alone the whole pregnancy. I remember sitting in A&E holding a little pink plastic pot I used to carry around with me under my chin to catch all the excess saliva that constantly poured out! Blush The worst part was, I didn't even feel embarrased, I was so far gone! Anyway, I am so glad you have some meds now - do you feel they are helping? It must be very difficult with your DP away, but it does sound like you have some good support from friends and your mum. It's exciting to have had an early scan and see the little lentil; it certainly makes it all feel real.

Magnum, enjoy every bite of post-HG food! Zoe is such a pretty name.

Detective, I guess you have to just take it a day at a time. I think everyone's experience is so different, and even for the same woman no two pregnancies are the same. But here's hoping you stop vomiting at 22 weeks as before, or even sooner! :)

Welcome back Lucinda! Hope you had a relaxing break.

I am taking little Abel for BCG vaccination this morning. I can't quite believe he's 4 and half months old already. If only my pregnancy had flown by as fast as my maternity leave seems to be doing! Hope everyone doing OK today.

LucindaE · 13/04/2012 10:19

Kali Thank goodness for that GP and your mother but horrified by your long wait in A and E - five hours?! Sending you cyber hugs. I hope you weren't being sick all that time, how awful. So glad that meds appear to be working at the moment and fingers crossed they keep on working. This is the worst stage, anyway - things do get so much better for almost everyone. Keep us informed. What drinks are bearable at the moment?
Detective It is so difficult about finances - most people do get a lot better sometime between 14 and 20 weeks but it does take weeks to get over the debilitation and working too hard can set it off again.
MOP Poor old you last year - I do remember about the Spit Pot!
I hope Everyone is OK today, comparatively...
Lucinda
xx

OP posts:
kalidasa · 13/04/2012 10:21

Thanks MOP. The meds definitely make a difference. I still feel sick and I feel very close to vomiting this morning, but I haven't (yet!) so definitely much better than Tuesday and Wednesday when I was vomiting bile repeatedly.

My Mum is being great because she does understand and just keeps bringing me little things to try. She just told me that the doctors were on the point of terminating her pregnancy with my eldest sister because she was so ill. This is 1967/8 so not long after thalidomide and there were no drugs they could use, only IV fluids. She had five children in the end, with HG every time!

Detective my mother said she did always find it better after 12 or 13 weeks. Still being very ill but she says her energy came back then so it was all a bit easier to cope with. Hope that's encouraging.

kalidasa · 13/04/2012 10:26

Thanks LucindaE. Yes, I think the long delay is because I was waiting to see a gynaecologist and he was tied up with someone else. They got me onto a drip after about 3 and a half hours while I was waiting for him - but just in the corridor on a chair, not a bed which I was longing for. The gynae chap did apologise about it when I saw him and said he'd been trying to find me a bed upstairs. I ended up on a general admissions ward because there was no room in the gynae ward so they were obviously very busy.

Actually I didn't throw up in A&E - I think partly adrenalin (I've never been sent to A&E before and was on my own for the first few hours and in some shock I think) but mostly I suspect because I probably unwisely stopped either eating or drinking. I just felt I didn't even have the energy to get a drink and although the GP told me my ketones were 4+ I didn't know what that meant or how bad it was so I didn't realise how dehydrated I already was.

My friend who was with me said afterwards I probably should have forced myself to eat something because then I would have thrown up and I reckon if I'd thrown up a few times they might have moved me through a bit faster!

BarmeeMarmee · 13/04/2012 11:59

Lucinda thanks for your concern-not signed off no, just trying to muddle on as best I can at the moment. DS and DH both have a vomiting bug at the moment so desperately hoping I manage to avoid it, although tbh I'm not sure I'd know the difference, lol.

Kali I'm glad your mum is looking after you and so good to have someone who understands!

Empusa · 13/04/2012 12:53

Just thought I'd update you all, my hyperemesis carried on right up until the day I gave birth. I ended up in hospital for 3 weeks on a drip (I'd be in for a few days, get discharged, be violently sick and be back in again within 24 hours), and ended up asking for an induction as I couldn't take any more. Luckily they agreed, and little Toby was born 2 weeks early by ventouse delivery.

Within hours of giving birth I was eating normally and feeling fantastic though, no sickness at all.

LucindaE · 14/04/2012 11:44

Empusa Lovely news! [thanks} Grin Wine. Congratulations on Toby. Thank you so much for coming on with this encouraging message, but I really am sorry that you suffered so throughout, I remember the name well and you really should have come back on to let off steam about how awful it was! Sad
Kali How are the meds helping today? I was disappointed that Acupunture didn't help you dramatically.
Detective Here's hoping you don't get that bug, it's the last thing you need, my goodness.
MOP I forgot to say, I do like the name Zoe. Greek, I think...

Lucinda
xx

OP posts:
LucindaE · 14/04/2012 11:46

Sorry, BarmeeeMarmee It was you who was fearing the bug, how rude of me to confuse you!
Lucinda
xx

OP posts:
MOH100 · 14/04/2012 15:44

empusa congratulations, what a terrible time but at last you can enjoy eating - and having a little baby. Being the mother of a newborn will be a piece of cake (no pun intended) compared to what you went through to get him.

barmee oh no not the dreaded stomach bugs!! I really hope you don't get it, it's too cruel to have it on top of HG. Me and DD had one recently, coinciding with me ttc so I thought I was pregnant again. I was actually just as much relieved as disappointed to get negative test that I dont know if we're going to try again. I just don't know if I can put myself through it. I wasn't even sick it was just the nausea and feeling crap but all I could think was no no no!! I can't bear it. I'd even go so far as to say I felt pregnancy phobic. When i feel fine it seems like a good idea to have another one, but a couple of days of nausea just brought the physical memories flooding back. Hideous.

horsey hope you're getting some sleep, the more hours you spend unconscious the fewer you have to feel crap, that was my motto through the worst of it. There's nothing worse than lying awake even when you're healthy never mind this hell.

Kali glad you've got help and support and drugs at last. Can you tell us if they have a hyperemesis day clinic at the Royal Free, I know that there used to be one in one of the London hospitals but it went all quiet and I wonder what happened to it. If you have to be readmitted, do you have to go through A&E again or is there a civilised way to go straight to a gynae ward? I'm surprised your mum didn't get drugs in the late 60s because my mum was given sparine, a similar class of drug to stemetil, between 1996 and 1973. Maybe she was given drugs in the drip and didn't realise? Antiemetics have been used in pregnancy since the late 1940s, so it puzzles me why they used (and still use!!) the thalidomide excuse not to prescribe - ok for new drugs, but why couldn't they still keep giving the old drugs they had been using for 20 years without incident? Before antiemetics there was a 4% risk of death for HG mothers and 8% for babies according to statistics from the Glasgow Royal Maternity Hospital, so the introduction of antiemetics was a huge leap forward. Sorry I've gone all academic, it doesn't take much to get me quoting stats. I can send you that reference btw, it's from a book but I have scanned copies of the relevant pages.

MOH100 · 14/04/2012 15:47

Been meaning to post this for anyone who's interested, I put it on the facebook group as well. Myself and some of the trustees of Pregnancy Sickness Support recently wrote a comment on an article in an open access online journal. The authors suggested that anxiety may be a risk factor for HG - we shot them down in flames in the politest possible way, with references of course. You can see the comment at www.plosone.org/annotation/listThread.action?inReplyTo=info%3Adoi%2F10.1371%2Fannotation%2F73e21265-e325-448b-8f64-917e4945be81&root=info%3Adoi%2F10.1371%2Fannotation%2F73e21265-e325-448b-8f64-917e4945be81

kalidasa · 14/04/2012 16:21

I don't think there's a day clinic, no. At least no-one mentioned one. But I wasn't even on a gynae ward as that was full.

Unfortunately I think I do just have to go through A&E again, though I'm seeing my GP next week so I'll ask her about that.

Yes, it's possible she had IV drugs or by injection in hospital and doesn't remember it. She's sure though that it was only with her last pregnancy (1982) that she was prescribed oral meds to take at home.

MOH100 · 14/04/2012 17:57

kali my mum didn't get oral meds, she had to get a GP or nurse to come to the house and inject, or go to the surgery for the injections. Shame about the lack of clinic, could you call the gynaecologist and ask if you can be admitted without going to A&E? Some women do manage to make this arrangement but you have to speak to the right person I think. Hopefully you won't need it if the meds work but it would be good to know you didn't have to run the gauntlet of A&E if you do need more fluids.

kalidasa · 15/04/2012 14:26

OK, so after 48 hours of drugged non-vomiting (though feeling grim) I've just been very, very sick despite cyclizine and metoclopromide. I'd actually forgotten what it's like to be sick when there's something in your stomach.

Obviously throwing up occasionally is not a disaster (though disappointing given that I have done absolutely nothing other than lie in bed) but how do I assess what is acceptable? Should I judge mostly on the basis of the ketone test things and assume I am OK (if miserable) as long as they are OK?

I'd also really like some idea of when the "peak" is likely to be. I'm 6w3d at the moment and I fear the hormones are still increasing quite rapidly which is why the vomiting has broken through the drugs. When did others here find their symptoms reached their peak?

My Mum's gone home now so it's just me and DP doing our best, though before she went she gave him a tutorial on hydration, regular tiny portions of food, serving everything in small cups/saucers etc so that it looks manageable. Quite a test of our relationship this I think!

MOH100 · 15/04/2012 16:00

kali I can't really say when I peaked because I got very effective medication at 8 weeks - ondansetron - and things stabilised quickly then gradually improved from that point. From the survey data I have, the average week at which the severity of HG reduces is around 20, with a range of 10 weeks to 40 weeks. The average duration of the HG is 35 weeks.

Stemetil improved things for me pretty instantly, I could eat and drink and the edge was taken off the nausea even though I was still vomiting every other day and feeling nauseous most of the time. After two weeks it got gradually worse, then one night I vomited twice in two hours and decided I wasn't going to wait to see how much worse it was going to get and took an ondansetron pill. That was my last vomit till I was in labour, though the nausea remained crippling for several more weeks and would worsen if I did anything at all. Whether you push for better meds is up to how you feel about it to a certain extent - are you prepared to lie in bed feeling unbearably nauseous till x weeks, or would you like a semblence of a life? I wanted a life which was not pure misery and I wanted to be able to eat and drink, so I took ondansetron. The ketosticks is more for testing when you're at crisis point, but my attitude to medication is that it shouldn't just spare you from reaching a crisis, it should help you to function more normally and have some quality of life. My wonderful obstetrician agreed with me and prescribed freely, some doctors think it's ok for you to have zero quality of life and have a tortuous miserable existence as long as you're not ketonic. My advice on meds is always the same, try them all until you get the best possible resolution of your symptoms - this usually translates as push for ondansetron.

MotherofPearl · 15/04/2012 18:37

Oh poor you Kali, so sorry to hear you've regressed. I think I said in an earlier post, I do wish in retrospect that I'd pushed for ondansetron. Cyclizine worked fairly well for me - what I mean is it kept me out of hospital after my first admission, but I felt nauseous 100% of the time, and was still sick once a day, twice on a bad day. I only coped work-wise because I was on research leave, so at home and could fit work into times of day when I felt slightly less awful. And my relationship with DP, lovely though he was, did take strain. Better meds could potentially have made a big difference, but it took me a while to properly realise that.

I so agree with what MOH says about quality of life. I think you need to go back to the GP, ketonic or not, but of course it's your decision. I take it your DP cut his trip abroad short? Glad you have good support, especially as your mum is obviously so experienced.

kalidasa · 15/04/2012 18:50

Actually I just did one of those test strips and it was pretty bad, I must just produce the ketone things quite quickly because I was only sick once today. I think DP wasn't bullying me about the water as much as my Mum was! But he has now measured exactly how much water is in a large glass so that he knows how often I must finish one and is going to make sure I do. We'll try that for a day but obviously if I'm still ketotic (ketonic? in ketosis?) then we'll go back in. I have a GP appointment in a few days anyway.

Yes, DP flew back from the States after only three days, at huge expense. He said what sealed it for him was when I emailed to say they were probably going to keep me for a second night. He thought that if the NHS had not only admitted me but were considering keeping me longer than planned I must be practically dead!

When did it ease for you MOP?

Littleplasticpeople · 15/04/2012 18:59

kali make sure you do go back the the hospital if you are in ketosis, even if you aren't being sick much you don't want to spiral downwards. For me, in both HG pregnancies, I peaked around 8/9 weeks. This time I got prescribed ondansetron at week 8, and it did reduce the vomiting. I went on o a higher dose a couple of weeks later and that led to a big improvement in the nausea levels. For me, week 6-9 is horrific, 9-12 almost as bad, 12-15 a time of improved horrific ness .... I'm hoping that I get better now at 15.5!

Thank you to the posters who come back once they have had the baby, it certainly helps me through the days.

LucindaE · 15/04/2012 19:09

I so agree with MOH Plastic MOP and others, Kali and please do go back if the ketones remain high. Really sorry that the foul symptoms haven't properly gone away. If the meds they've given you don't stop you from being sick there's others.
Plastic Poor old you, I do hope things get a lot better soon.
MOP You were too stoic! How horrible being sick once or twice a day all the way through...
I've just been watching that modern film version of 'Romeo and Juliet', SadSad.
Lucinda
xx

OP posts:
kalidasa · 15/04/2012 19:18

Thanks for giving me your timeline littleplastic. What I find depressing at the moment is the awareness that it's probably going to carry on getting worse for a while before it gets better.

I've just been sick again. If it happens once more this evening I think we'll have to go back to A&E, though I don't fancy our chances of seeing anyone very useful on a Sunday evening! So would rather avoid if at all possible.

And yes, it's great to read about the babies! Even if it seems impossibly far off right now. (Very depressing seeing 6/40 on all my notes in hospital . . . )

horseynewmum · 15/04/2012 19:42

Hi all sorry to hear so many are having a rough time but just remember each day is a step closer to the end. I've only got 5 weeks and 2 days left till my due date and I can tell you it really does come round when you least expect it even when ill.

MOH I've been sleeping like a log at night now thanks. I think gettng the funeral out the way has helped majorly aswell as gaviscon. (peppermint flavour I may add. Aniseed I hate normally cant see it changing during HG.)

I'll come on for a catch up tomorrow. Only got home from my mums today and I'm knackered

Big hugz to all surving and waves to all the supporters

x x x

MotherofPearl · 15/04/2012 21:24

Kali, it only eased for me after the birth, I'm sorry to say. Admittedly the peak was roughly weeks 7-12, but I can't say it really improved that much even after that. I was sick right up until the day of going into labour. I'm sorry, I know that's not what you want to hear. Hope you get some rest tonight and don't end up spending it in A&E.

Waves to Lucinda and cheers on Magnum for the last few weeks :)

ovaltine · 16/04/2012 09:19

how you feeling today kali? i really feel for you, but you have the best DP flying back early to look after you. i know too many husbands who that would never of crossed their minds!

i go back to full time work in 2 weeks