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Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

980 replies

LucindaE · 30/03/2012 12:21

We need a new thread.

This thread is for anyone suffering from the Horrors of Hyperemesis and if anyone's got bad m/s too they're welcome to join in. Hopefully sufferers will continue to get support through talking with present and past sufferers on here.

There's no such thing as TMI here - by definition with this awful illness there can't be - and feel free to moan all you like. You have reason to!

I want to thank Everyone MOH Mother of Pearl Ovaltine (once theOnly Melange (once NitNat) FluffyWhiteKittens* and so many more
for all their stirling work, and so many more that I can't name them all.

My apologies to anyone I've rudely overlooked, I daren't keep gabbling too long, or I might put off current sufferers.

Remember, when you are at your worst, the words from the Eastern story: - 'This Too Shall Pass.' It will...

Below is some brilliant information from sites.google.com/site/pregnancysicknesssos/

However, if you don't feel up to reading it now, feel free to skip it for now and have a good moan.

Hyperemesis gravidarum (HG) is a severe form of pregnancy sickness which affects between 1 and 3% of pregnant women. Historically, it was mistakenly thought to be a psychosomatic illness and women were treated as though they had a psychotic disorder. This view has been comprehensively disproven by numerous research papers in recent decades, and it is now known to be an illness of organic origin, although its causes have yet to be fully understood. There is a persistent common belief that no drugs should be given to women in the first trimester of pregnancy. This is not true. There are a number of effective anti-emetic (anti sickness) drugs which can safely be taken in early pregnancy. Unfortunately, the erroneous views that HG is a psychosomatic conditions and that no drugs are safe in the first trimester still persists in many places, shockingly, even amongst GPs and midwives. Sadly, many women still come across unsympathetic health professionals who are ignorant of current treatment methods.

How do I know if I have HG?
If you are suffering from persistent nausea and/or vomiting which is preventing you from eating and/or drinking then you may be suffering from HG. With ordinary nausea and vomiting of pregnancy (NVP), the sickness does not interfere with your ability to eat and drink enough, you should not be losing weight and you should be able to continue to care for yourself and your family although you may not be feeling too great. With HG, sufferers often need help caring for themselves, never mind look after their family. The illness can be completely debilitating for weeks or even months. If you're not sure, the HER foundation website who have a fact sheet to help you determine whether or not you are suffering from HG
www.helpher.org/mothers/hyperemesis-or-morning-sickness/index.php

Diagnosis is important as you will inevitably become dehydrated and you will need to be admitted to hospital for IV rehydration. Starvation is another risk. When your body burns fat for energy, it produces chemicals called ketones which can be detected in your urine. You can monitor your levels of starvation using ketosticks, available from pharmacies. You pee on the stick and it monitors your levels of ketones. If levels are high, you should tell your doctor or midwife. If you are worried about dehydration and ketone levels and you can't see your doctor or midwife, you can go to A&E.

Facts and Figures and FAQs

HG is worse in the first trimester for the majority of sufferers, though a significant proportion (10 ? 20%) suffer for the entire duration of the pregnancy. If you have close relatives (mothers, sisters) who have had HG, you are also at significantly higher risk of being a sufferer yourself. HG is the most common cause of hospitalisation of pregnant women in the first trimester.

Is it worse carrying a boy or a girl?
There is conflicting evidence as to whether having a boy or a girl makes HG worse, some studies say boys, some say girls.

Is it worse with twins?
Yes there is evidence that carrying more than one baby makes HG worse.

Will my baby be ok?
Babies born to HG mothers are usually absolutely fine. If you lose some weight during the first trimester the risks for the baby are low as it does not need much nutrition at this time and your body should have enough stores from before your pregnancy. However, if you continue to to lose weight due to lack of treatment or failed treatment, then there is an increased risk of low birth weight or pre-term birth. Studies show that this is a risk for women who are severely ill, are dehydrated for long periods and lose more than 10% of their body weight.

There is also growing evidence of long term health effects in some children born to mothers who suffer malnutrition in pregnancy. In some cases this is not evident until adulthood with increased risk of chronic conditions such as diabetes and hypertension.
For more information see forums.helpher.org/viewtopic.php?t=18 and www.helpher.org/hyperemesis-gravidarum/complications/fetal-programming.php

I've heard that being sick is a sign of a healthy pregnancy, is this the case with HG?
You will often be told that morning sickness is a good sign and you should be happy that you're feeling sick. This is generally the case with normal NVP, however, it is not the case with untreated HG. There is actually a higher risk of pre-term birth and low birth weight. However, continuing to feel sick may be a sign that the pregnancy is still progressing. Some women with HG who miscarried reported that the first sign was that they suddenly stopped feeling sick.

What are the treatments?
Initially you will be advised to use non-pharmacoligical strategies which are similar to the general advice given to any pregnant women suffering from nausea. These include eating little and often, eating protein-rich, low-fat meals, avoiding triggers of nausea such as strong smells and getting enough rest. You can try ginger, seabands (accupressure wristbands used for travel sickness) and extra doses of vitamin B6. Avoid getting out of bed in the morning without something in your stomach such as a tea biscuit or cracker. Some women find that these give relief in the initial stages of HG but they become ineffective once the illness is in full swing.

The next line of treatment is prescribed antiemetics such as phenergan, cyclizine, stemetil and ondansetron. For many women these work well and control the nausea and vomiting enough for them to eat and drink normally and regain some of their lost weight. Many can even return to normal life. You may find that one antiemetic on its own is not effective and you may need to try different combinations but you can discuss this with your doctor. Even with antiemetics, you will probably still need to use coping strategies such as getting extra rest, eating small frequent meals and avoiding triggers when the HG is at its peak. If you are dehydrated, you may be admitted to hospital for IV fluids. Minerals and vitamins can be added to the drip to replace any you may have lost, as well as antiemetics.

Unfortunately, antiemetics don't work for everyone. If they are ineffective, you should be referred to an obstetrician (if you haven't been already) for the next line of treatment, which will probably be steroids. These carry a small risk of cleft palate, but this will be discussed with your doctor. In a small number of cases even this is not effective and drastic treatments such as feeding with a tube directly into the stomach may have to be considered.

My GP is unsympathetic and refuses to prescribe me drugs - what should I do?
Unfortunately this experience is all too common. In this case you should see another GP if possible. You should also ask for a referral to an obstetrician. If you remain untreated and become dehydrated, you can have yourself admitted to A&E for IV fluids and ask to be seen by an obstetrician.

Do alternative remedies work?

Some women are greatly helped by alternative medicine, particularly Homepathy and Acupunture. Some women can claim to have had the illness 'stopped in its tracks' by Acupunture, but success varies between individual patients and it tends to be expensive. These remedies are worth a try if you can afford it but have a back up plan incase it doesn't work.

How long will this last for?
For most women, HG peaks in the first trimester and tails off or disappears completely later in the pregnancy. The usual advice for morning sickness is that it will improve after 12 weeks. The majority of HG sufferers find that it takes longer than this. Unfortunately, some women suffer severely for the entire pregnancy. Others find that it improves, but they suffer from nausea and occasional vomiting until birth. Relapse is quite common especially if you have tried to return to your normal busy life. There is a great temptation to make up for lost time and become very active once you start to feel better, but this very often leads to the nausea returning. You should be very careful about resuming work and normal household activities even if you feel as though you're up to it. Be careful too about stopping your medication, do it very gradually and resume at the first sign of the condition returning. You may have to continue to take it for the entire pregnancy to prevent a relapse.
All I can drink is coke, I'm worried that I'm not eating a healthy diet.

Through pregnancy, we are bombarded with advice about what to eat and what not to eat. Women with HG often find that the list of food and drinks that they can keep down is very small and not at all from the healthy options. For some reason, women with Hyperemesis ofen find sweet and salty foods ie, sweet drinks like coke, and crisps, are more likely to stay down than healthy foods. Their peculiar diet can lead to disapproving comments and the incorrect assumption that this is how they normally eat.
Various women find different drinks acceptable. Coke (often left to go flat) Lucozade, lemonade, milkshakes and IronBru, Dr Pepper, orange squash, apple juice, lime juice, ice cubes made of flat coke or just tapwater, ice lollies and sips of tepid water can help in keeping rehydrated. 

When the illness is at its worst during the early hormonal surges - typically between eight and ten weeks- then it is difficult to retain any liquids and you may need to be hospitalised for rehydration at about this time. 

When solids do become bearable,jelly, tinned fruit, ice lollies, ice cream, crisps, fish fingers, potato cakes, crumpets, soda bread and similar potato based or salty foods have often been found to be acceptable.

The important thing to remember at this time is that it doesn't matter what you eat or drink, the crucial thing is that you eat or drink something. Don't forego something because you are worried that it's bad for you. In a normal diet, too much salt and sugar is bad for you, but when you consume nothing else, this may be your only source of calories, fluid and salt for the day. Instead of berating yourself for your unhealthy diet, congratulate yourself that you have kept something down because your body needs it. If you are able to take vitamin tablets or syrups, then do so but most women find that large multivitamin tablets make the nausea worse. You may be able to get vitamins that dissolve under your tongue which you may be able to tolerate. If and when you begin to feel better, you can start to re-introduce more healthy food.

Will it go away when I give birth?
The good news is that for the vast majority of sufferers the physical symptoms of HG disappear completely as soon as the baby is born. You should be aware though that it is not unknown for the nausea to persist after birth especially if you have been severely ill. If this occurs, speak to your doctor. For women who suffered persistent, long term nausea and vomiting, it may take some time to restore energy levels and nutritional reserves. Moreover, while the physical symptoms may leave, the trauma of HG can leave an emotional legacy for many women, especially when combined with the rigours of caring for a baby. If you have any concerns, speak to your doctor or midwife. Don't feel that you should just be able to pick yourself up and get on with things, if you're having problems you are entitled to seek support.

Will I get it in my next pregnancy and will it be the same?
Unfortunately, having HG in one pregnancy puts you at a high risk of suffering in subsequent pregnancies although it is possible to escape it. Some women find that the HG gets better in subsequent pregnancies, whereas others find it stays the same or gets worse. There is really no way of knowing how your pregnancies will relate to each other.

Can I do anything to prepare for HG incase I get it again in my next pregnancy?
The HER website has a page of advice on preparing for your next pregnancy. forums.helpher.org/viewtopic.php?t=17. If you had medication which worked for you in your previous pregnancy, make sure that you have it ready to take as soon as you feel ill. Studies show that the quicker you get on top of the sickness, the better the medication works. Because HG can start within days of missing your period, see your GP as soon as you know you're pregnant.

Useful sources of information
The Royal College of Obstetricians and Gynaecologists in the UK have no guidelines on the treatment and management of HG. However, the American College of Obs/Gynae (ACOG) and the Society of Obs/Gynae of Canada (SOGC) have published guidelines which can be found at the following sites

www.sogc.org/guidelines/public/120E-CPG-October2002.pdf 

www.guideline.gov/content.aspx?id=10939

Pregnancy Sickness Support is a UK based organisation run by GPs and midwives with direct experience of HG. They have a helpline which you can call for advice ? if nobody answers you leave a message and a midwife will call you back. They will be able to answer your questions about treatments and they keep a note of doctors around the country who are known to be sympathetic to HG sufferers and are willing to treat it with medication. Their website is at www.pregnancy sicknesssupport.org.uk

The Hyperemesis Education and Research Foundation (HER) is a US based foundation which was formed by HG survivors and has a mission to research the causes of HG and provide information and support for other sufferers. They have links to the latest scientific research and are actively involved in funding research, although you usually have to live in the USA to take part. There are loads of threads on every topic related to HG from women who have been through it, including very useful information about which treatment regimes worked. Their website is at www.hyperemesis.org.
Dealing with well meaning but unhelpful advice

Women with HG are often told by friends and family that it's just morning sickness, a normal part of pregnancy and you just have to put up with it. Many HG sufferers report extreme frustration at being advised to try ginger, dry crackers or eat little and often. Most of them have tried every remedy they can think of to no avail. Because most women are familiar with NVP, there is often an attitude of, well I had morning sickness and I just got on with it. HG sufferers are often left with the feeling that they are whingers and malingerers and that if only they could adopt a positive attitude then they would be fine. This can lead to further depression in what is already a depressive condition. In order to deal with this, it is important that the HG sufferer has some supportive friends or family who can firmly but politely fend off these comments. The sufferer will often have no energy to deal with it herself. If possible explain to the person giving the advice that you are not suffering from morning sickness, you are suffering from a condition called hyperemesis gravidarum.

I have never known anyone with HG. Where can I talk to women who understand how I feel?
There is a support thread on the talk boards here (ask MT to add link) which is run by sufferers and ex-sufferers. There are discussions of practical issues such as tips for coping and medication but the real value of this forum is that you get sympathy and understanding from people who know exactly what you're going through. If you just want to moan or let off steam, you are free to do so and nobody will hold it against you. Comments are also welcome from relatives, partners, friends and carers of HG sufferers. The HER website also has talk boards at forums.helpher.org/. There is also a UK based yahoo group called Bloomingawful at health.groups.yahoo.com/group/bloomingawful/

OP posts:
Are your children’s vaccines up to date?
kalidasa · 12/06/2012 21:09

pineapple feeling bored is definitely a good sign! I went weeks and weeks lying there doing nothing and not even feeling well enough to be bored and it is definitely encouraging when you feel well enough to think "this is very tedious"! Hope it went well if you braved the choir. Also good that you are getting one patch in the day that isn't quite as bad.

I had quite a good day today and didn't throw up. I am missing DP but it is quite nice to be here. I'm in Southwold, if you know it, and my parents live right on the high street so there are shops literally next door. Even in my feeble state I can sometimes make it out of the house to buy a small thing which is really heartening after so many weeks stuck in the flat in London. I even managed to get some work done today which makes me feel much better (am a workaholic academic and only feel myself if I can do some work!). I am quite uncomfortable though - 15 weeks on Thursday and everything inside feels squashed and stretched, I have pains in my back and stomach that feel like muscles stretching. I'm sure it's all normal though and at least it's not convulsive vomiting!

Mornings are my toughest time now and when I am most likely to be sick. I think its because of my stomach getting empty over night so I am experimenting with Ready Brek last thing at night and first thing in the morning on the basis that oats are really 'slow-release' so might keep me going. It worked last night but I did take some ondansetron too. Going to try it without the ondansetron just the other drugs tonight. Funny as I don't really like Ready Brek but it feels like what I "need".

Hope everyone else had an OK day.

LucindaE · 13/06/2012 08:41

Kali So glad you have ben able to get out, that is heartening. Things are looking up for sure! I remember all those aches and pains, especially in the ribs.
Blush suppositeries, that is it, though it's beyond my dylexic head how to spell it. The 4+ ketones after days on a drip, is pretty impressive! What a nightmare experience.
MrsD How are you today? I do so hope you manage to avoid that third visit.
Meebles So glad baby is staying put as time passes. That is obviously why they are so reluctant to prescribe Ondanestron. Hugs.

Goldie Lovely news about scan. Thak your daughter for my kisses, how sweet. Smile
Stepford Your gp not even testing your urine is shocking because he sounds just like mine was, and that was years ago. Sorry to bore on, but as others say do watch out for a sudden onset of dehydration, the dr had been dismissive and a couple of days later the Acupunturist was telling me that I had must report to A and E as an emergency if I didn't stop vomiting water within hours. Do monitor it with kesosticks!
MOP Lovely to hear from you.
Blonde Are you OK?
Plastic Sorry about relapse, don't stint yourself on meds if you are suffering.
Pinapple So agree with others, boredom is a miserable sign of feeling a bit better. Do whatever comes naturally, it seems to be right.
Hope Everyone is Ok.

OP posts:
BarmeeMarmee · 13/06/2012 10:17

Hi everyone! Seems to have been a flurry of activity on here over the last few days! Hope everyone is having a good day today. I'm still suffering a bit and think I may be developing a chest infection (am sitting here coughing away) but I'm stubbornly hoping if I pretend I'm fine it'll go away. Too busy to be ill on top of HG - today is my 3rd wedding anniversary and DS turns 2 on Saturday so keeping everything crossed we get some ok weather so at least people can go out in the garden for his party.

Hugs (gentle ones of course) to everybody!

amatuermummy · 13/06/2012 10:36

Hi everyone, sorry I haven't been on for a while. After my last post, things got quite bad again and I started suffering badly. About four days ago I woke up feeling slightly better, I took my cyclezine pill and within an hour, I felt awful again. I decided not to take my cyclezine anymore and see how I go. I felt a lot better for a few days, but yesterday and today have been not so good again. I'm fighting to keep anything down at the moment, although it still doesn't feel as bad as it was before. I'm going to see how I go and might start on the pills again if it continues to get worse. I'm due to go back to work on Monday, but if I'm like this, I won't be able to.

Does anyone else have a constantly watering mouth? Have you got any tips to ease it a bit? Boiled sweets or mints don't help, I can't face anything sweet at the moment.

I hope everyone is doing ok and that there is an end in sight for most people.

mrsdaisaku · 13/06/2012 10:42

lucindae Feeling okay, was my daughters 8th birthday yesterday and was even able to eat a slither of her birthday cake (minus the icing of course). I was just so happy to be able to sit of the sofa and see her face light up after she opened her pressies.

Managed 2days with no sickness and just a little nausea. However tiredness is still so pervasive. However i'm taking what I can from the respite of HG, long may it last. I am however a pessimist so assuming to worst, but hoping for the best. Thankyou everyone for your congratulations, I think our shock has finally subsided and has been replaced a little by excitement. :)

Hope everyone else has a good day. Gentle hugs to everyone suffering!

PineapplePol · 13/06/2012 10:48

Hi again! All ok at choir last night and it was so great to get out and just for a while forget I was pregnant. Havnt been for nearly 5 weeks and doing something so normal and enjoyable was great. The queasiness has stayed at bay which I'm trying not to panic about after last week. (only 2 days to go before scan). Apart from feeling tired today and resisting the temptation to garden in the rare appearance of sunshine, I'm wondering about cutting down on the cyclizine. I havn't had any since yesterday afternoon, but its mainly the evenings when I suffer. I'd really appreciate some advice from your experiences. Is it best to cut down slowly or just go cold turkey? I know that some of you have found symptoms returning quite quickly when you stop the meds.

Lifeiswhatyoubakeit · 13/06/2012 17:05

I am writing this from hosp so sorry for any typos. Started vomiting every hour since 5 am and I kept my consultant appointment (where I was hoping to get some better oral meds than stemetil or phenergan) in the hope I might get some intravenous meds as nothing was staying down. Fortunately ketones high enough to be admitted on drip and hoo-bloody- ray they gave me ondansetron! Care is really good here have to say on Isle of Wight St Marys. Poss due to small population?! Plastic thanks for the info on ondansetron. pineapple so glad you got to go to ur choir, must help you to feel like " you " again. MrsD congrats on twins! Barmee hope it's not achest infection. Gentle hugs to all I've missed. I've not been sick for 3 hours now so I'm very happy.

LucindaE · 13/06/2012 17:16

Life I'm just dashing on - have to go out again - to say how sorry I am that you deteriorated quickly like that, my goodness, it's early, too. I remember you were refused pre-emptive meds, and my goodness, they shouldn't have, obviously! You poor thing, every hour. Offer of Cyber pats rather than hugs are appropriate, I think...
Amateur Cluck cluck, mother hen says do go back on meds, not worth making yourself suffer and risking it getting bad.
Barmee chest infection? That's horrible, have as happy an anniversary as you can.
MrsD Congratulations on sliver of cake, that is encouraging. Eating, whatever next...I have just thought of something. A poster called CakeforBreakfast I think may have been expecting twins, too, about a year ago.
Blonde I hope not in hospital, too...
Knicky?
Kali I bet missing OH but I hope still doing OK.
Everyone I hope managing. Sorry have to run off...

OP posts:
kalidasa · 13/06/2012 17:49

Life sorry to hear you are in hospital but glad they are looking after you. I remember being pretty relieved to be there each time, because by that stage you just want them to do something - anything! - to stop the vomiting. Hope you are still doing OK.

I had a really good afternoon today despite throwing up this morning. Felt properly like myself for an hour or so, and managed to get a lot of work done. Really cheering. I didn't take many drugs today which I think made a difference - I feel like my real personality/self emerged through the drugged haze for a while! Quite tired now and queasy again but pleased about the good day. Hope everyone else managing OK.

smk84 · 14/06/2012 08:00

Hi Ladies, just to let you know Joshua David was born on 060612 weighing 7 pounds 12. We are absolutely over the moon ! Sending big hugs to everyone who is suffering. (sorry no time to read thread!) xx

LucindaE · 14/06/2012 09:09

SMK Lovely news, congratulations! ThanksWine. Thanks for coming on, shows to those suffering the happy ending.
Life Are you still in hospital, poor you? What ketones?
MrsD I hope still eating a tiny bit.
Kali Morning puking is always horrible (particularly bile runs) but that you felt your normal self for a while is a wonderful sign.
Thinking of Everyone and I am especially impressed by those who somehow manage to cope with an LO...

OP posts:
Lifeiswhatyoubakeit · 14/06/2012 12:05

Kali forgot to say thanks for ur info on ondansetron. It seems to be the only thing that works for me and I can actually feel the nausea escalating as it wears off. Going to ask for high dose to take home like ur 3x 8mg. It does make me constipated too but as nothing else works will have to take that. Glad u got some more work done, know what u mean about the drug haze the meds cause. Ketones still high annoyingly so not yet been discharged but I'm not missing my DS as much as I thought I would yet (perhaps it's because I don't get jumped on and roughed up when he's not around) so it's not been too bad. Not been sick (yet) today.

Lifeiswhatyoubakeit · 14/06/2012 12:07

Also does anyone else sing to food/drinks (in their heads) "hope to not see you again" to the tune of When Will I See You Again or is it just me?!

MOH100 · 14/06/2012 12:59

Sorry for no posts for a while, I'm snowed under with survey data - just over 100 women have responded, I'm so pleased - and trying to make a power point presentation for the PSS conference next Thursday. I'm also in charge of putting on a talent show at our local community hall this Saturday, don't ask me how I get roped into these things. The survey results are really interesting and are making me think about why a lot of our experiences are not reflected in the official information about HG and in the academic literature. Quick example, literature says that only about 20% of women suffer HG all the way through pregnancy, 80% supposedly are in remission by week 22. This just doesn't stack up with the answers I'm getting. I wrote to the author of a paper where this number was quoted and he said that what he meant by remission, was that it improved from the nightmarishly horrendous constant vomiting needing high doses of steroids, to being manageable and being able to stop the steroids. Now, for me, that is NOT what is understood by the word remission. It's a matter of definitions, but definitions matter (sorry for bad word play). If the medical establishment think you should be 'better' by 22 weeks and you're still feeling sick, you end up with all these unhelpful comments from midwives etc saying oh you should be better by now that make women feel dismissed and humiliated. I think we need better, proper descriptions of the characteristics of the disease which we get by ACTUALLY ASKING WOMEN THEMSELVES!!!!! Not just saying, oh that patient has gone home and doesn't need hospital treatment anymore so she must be cured. We know we're not cured when we're sitting at home feeling crap, thinking now can i manage another mouthful or will it all just come back up? Sorry, I'm ranting, I'll get off my soapbox now. Anyway, just wanted to explain why I've been missing in action. If anyone's going to the conference, I'll see you there. Once I've done the full analysis, I'll get it on to www.pregnancysicknesssos.co.uk there are interim results there already. I also intend to make the power point available somehow, possibly on PSS website.

MotherofPearl · 14/06/2012 13:23

MOH, you are doing excellent work - bravo! Your comments reminded me of my experience at a midwife check when I was about 6 months pregnant, just about this time last year. She asked how I was doing and I said something like 'OK, although even on cyclizine I'm still being sick once or twice every day'. Her response of 'Surely not STILL?' was so full of disbelief (and even impatience) it really made me feel as if I must have somehow made it up! Good luck for your presentation, and please do report back on responses and on the conference in general.

SMK, many congratulations on the birth of your little boy, and welcome to the lovely Pink Castle, where all types of delicious food can be eaten without anxiously thinking 'when will I see you again?', as Life so aptly put it!

Kali, glad to hear you've been having some better days. It much such a difference to one's morale.

Hope everyone else doing OK today?

Littleplasticpeople · 14/06/2012 18:49

moh you are doing a great job, and that's really interesting about 'remission'. Just this week, at a 24 week MW check, the MW said how I must be so relieved now the 'morning sickness' Angry had passed. When I told her it was HG and actually I'm still throwing up most days she was very sheepish and just muttered about it easing soon. Not really surprising though if it's widely quoted that we are all better by 22 weeks. Angry

kali so pleased you had a good hour, fingers crossed it multiplies!

life sorry you ended up in hospital but equally at least now you are getting treated. I went from 2 x 4mg to 3 x 8 mg of ondansetron and that kept things manageable. Please be careful with the constipation though, it was horrific for a while and as Kali says, it actually makes you feel ill. That said, I struggled to take anything like fibrogel as I couldn't keep it down.

barmee we are also keeping everything crossed for dry weather on Sunday for my 5 year old's bday party!

lucinda thank you for your ongoing care and concern, you are a superstar Smile

Things improved for me since the horrid weekend, but I'm still feeling worse than I had got to if that makes any sense! Tiredness and acid are making me sick Sad, thankfully I'm now counting down my last 5 weeks at work as I'm a teacher and will finish in July but not have to technically start mat leave til september. Smile

Littleplasticpeople · 14/06/2012 18:50

Just realised how similar mine and mop's stories of the six month MW conversation are! Grin

kalidasa · 14/06/2012 21:30

I really agree the info needs to be clear. On the other hand, I did feel very dispirited when I was so very ill reading the survey results - I thought they meant that most respondents had been as ill as that (e.g. in and out of hospital, unable to eat, constantly losing weight) right through to 20 odd weeks. So I think it's important to produce and disseminate a realistic description: that for most people the most acute phase is over by [whenever that is], and most hospitalisations happen in weeks 6-14 [or whatever the average is] but that you shouldn't expect a magical remission just because the worst is past. I realise I was particularly bad at the worst, but for me the difference between a fortnight ago and now is a really significant one, even though I'm sure that when I am well again now will still seem pretty ill by all normal standards. The huge difference is that just in the last few days I am able to function in basic ways again - eat small meals, go to the loo, go for (very) short walks, do a bit of home-based work (emails and stuff), have a bath. Really basic stuff.

I really agree as well with the 'out-of-hospital blindness' effect. Once you've got it sort of under control and are no longer being admitted/seeing your GP for dehydration every five minutes I can see that women disappear from the statistics and get put down as "better" even when they and their families are still really suffering. For me for instance there were five weeks between when I was last discharged from hospital and when I could actually get out of bed at all. By any normal standards those five weeks entirely in bed is a very serious illness in a healthy adult but might appear as "better" in official data.

life More info than you want but I think the problem for me with the ondansetron is that I was taking it with very high doses of metoclopramide which itself causes diarrhea. So basically what was in there was pretty liquid but the ondansetron meant my bowel wasn't contracting at all. No contractions + no bulk = absolutely nothing happening for weeks on end and a really serious problem. Another time (ha!) I wouldn't bother even trying the awful struggle with lactulose/fibogel/movicol/dulcoease/senna etc - all useless and really unpleasant when nothing is staying down. I would go straight to a home enema which is grim and pretty violent when you are already frail but reliably worked. You can buy them v. cheaply on the internet if you look up 'Fleet enema' and it's what they did in hospital in the end anyway so presumably safe.

My impression is that others on ondansetron but not metoclopramide as well had more "conventional" constipation (i.e. hard) which may respond better to the standard over-the-counter stuff.

Sorry for the tmi but working this out earlier would have saved me some really miserable days and it might help someone else.

BarmeeMarmee · 14/06/2012 22:34

Evening everyone. How are you all? Nice to hear the good news of another arrival at the pink castle Grin. Congratulations!

A sad day for me today - my gran died this evening Sad. Although we knew it was coming I'm still very sad, obviously. On the plus side the doctor this morning told me I don't have a chest infection, however it would appear my asthma has flared up (normally very mild) and I've suddenly exploded with hayfever so now as well as 2x8mg ondansetron and 3x50mg cyclizine every day I also have to take a steroid inhaler morning and night! Oh the joys...

Hope everyone else has had a better day than me.

Gentle hugs to Everyone.

LucindaE · 15/06/2012 09:03

Barmee So sorry about your Gran - it is a dissapointment too, she won't meet this baby. Sorry about flaring up of ashma and hay fever - hay fever can make you puke too, if the coughing is nasty enough.
Life I hope you will be out soon. How do you feel, if that's not a silly question? I always thought it was like a grotesque conjuring show with food, 'Now you don't see it, now you do, but slightly altered...'
Kali That is really useful info about bowels, never timi, and makes sense of things I haven't understood. Hope you are still feeling a lot better. I so agree about 'remission'. I feel a bit guilty myself as besides surveys and info on webs, earlier on I may not have emphasized sufficiently to you that that while not medically qualified I have learnt anecdotally (forgotten how to spell it, too lazy to look it up) that the worst weeks for most people are between weeks eight and twelve, that things only rarely stay as bad as this, but there are a minority of unlucky women who suffer quite badly throughout, and some are even in and out of hospital throughout, so one doesn't want to be too blithe while trying to give reassurance. Feel really sorry that you were worried you would be suffering as badly up till week twenty, that's unusual. I wonder what they mean by 'remission' though as there seem to be residual symptoms in so many cases, for instance, heartburn seems to be more severe than average. and people take a long time to build up their strength again, far too many go back to work not fully recovered.
Plastic Thank you for that, and re acidity, so feel for you. I had it to the point of vomiting throughout. I think it's things like that which make it so hard to say when 'remission' happens, though obviously there was no danger of dehydration/starvation.
MOH Keep up the good work, you are brilliant.
Meebles Is baby still hanging about in there?
Blonde A bit anxious about you.
MrsD How are things and Pinapple?
Apologies to anyone I've overlooked.

OP posts:
mrsdaisaku · 15/06/2012 10:57

Hey guys, enjoying feeling semi human and getting some basic (i think kali put it) functions back. Still managing to keep a tiny amount of food down.

I was actually going to ask you ladies when you think going back to work is advisable. I've nearly managed 4 days with no incidences of sickness, but i'm still incredibly tired. Did 30mins in the garden yesterday and was falling asleep on the sofa. Not sure if an 8.30 - 5.30 shift at work is viable yet. Thankfully the doc at the hospital has said that he will sign me off for as long as I need, but I don't get paid sick leave and obviously with my bogof (what i've nicknamed the twins) I have alot more to save for....

Opinions...??

life So glad you are where you can be treated, the drip is so nice. Hope the stay isn't too long.
kali I took your advise about the sepositories, but the chemist refused to give them to me as i'm pregnant and I can't get a docs appointment now till Monday. Typical. Hope you're feeling better.

Sending gentle hugs to everyone.

meebles · 15/06/2012 12:48

MrsD 'bogof' - hahahaha! I would say that you need to stay off a little longer. Working is very tiring anyway when pregnant, and the HG will tip the balance. What do you do? Is it very active?

Barmee so sorry to hear about your Gran.

Baby still inside, although I've managed to add another rare complication (obstetric cholestasis) today. I'm crap at pregnancy!

Littleplasticpeople · 15/06/2012 19:02

mrsdai could you do a phased return to work? Doctors can recommend this on the sign off form. I agree that a full shift sounds unmanageable . I had 4 weeks off sick, then 2 weeks morning only, then had the Easter holidays for 2 weeks, then went back full time (I was 16 weeks then). The first couple of weeks back full time were totally exhausting but I could cope iyswim.

barmee sorry about your gran, Sad look after yourself.

MotherofPearl · 15/06/2012 19:21

Barmee, so sorry to hear about your gran - that's very sad news for you, and of course emotional upset is not what you need at the moment.

Mrs D, as LittlePlastic suggests, a phased return to work sounds very sensible. Don't rush it or you will in all likelihood regress. On the chemist refusing you the suppositories, could you not get someone else like your DH to buy them for you, without mentioning who they're actually for? They are quite safe in pregnancy. As Kali said a while ago, they even get used on tiny babies, so very safe and just made of glycerol afaik.

Very glad to hear Baby Meebles is still on the inside, but sorry to hear Meebles has a new pregnancy affliction to contend with - at least the end is more or less in sight now. :)

goldie32 · 15/06/2012 21:25

Sorry I've missed so many posts. Back to work full time, it's good to be back, but boy am I exhausted! I see mixed news from you, sorry to hear the sad, happy to see some improvements. Love to all, as always. X

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