Are your children’s vaccines up to date?

Set a reminder

Please or to access all these features

Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Hyperemesis Support

980 replies

LucindaE · 30/03/2012 12:21

We need a new thread.

This thread is for anyone suffering from the Horrors of Hyperemesis and if anyone's got bad m/s too they're welcome to join in. Hopefully sufferers will continue to get support through talking with present and past sufferers on here.

There's no such thing as TMI here - by definition with this awful illness there can't be - and feel free to moan all you like. You have reason to!

I want to thank Everyone MOH Mother of Pearl Ovaltine (once theOnly Melange (once NitNat) FluffyWhiteKittens* and so many more
for all their stirling work, and so many more that I can't name them all.

My apologies to anyone I've rudely overlooked, I daren't keep gabbling too long, or I might put off current sufferers.

Remember, when you are at your worst, the words from the Eastern story: - 'This Too Shall Pass.' It will...

Below is some brilliant information from sites.google.com/site/pregnancysicknesssos/

However, if you don't feel up to reading it now, feel free to skip it for now and have a good moan.

Hyperemesis gravidarum (HG) is a severe form of pregnancy sickness which affects between 1 and 3% of pregnant women. Historically, it was mistakenly thought to be a psychosomatic illness and women were treated as though they had a psychotic disorder. This view has been comprehensively disproven by numerous research papers in recent decades, and it is now known to be an illness of organic origin, although its causes have yet to be fully understood. There is a persistent common belief that no drugs should be given to women in the first trimester of pregnancy. This is not true. There are a number of effective anti-emetic (anti sickness) drugs which can safely be taken in early pregnancy. Unfortunately, the erroneous views that HG is a psychosomatic conditions and that no drugs are safe in the first trimester still persists in many places, shockingly, even amongst GPs and midwives. Sadly, many women still come across unsympathetic health professionals who are ignorant of current treatment methods.

How do I know if I have HG?
If you are suffering from persistent nausea and/or vomiting which is preventing you from eating and/or drinking then you may be suffering from HG. With ordinary nausea and vomiting of pregnancy (NVP), the sickness does not interfere with your ability to eat and drink enough, you should not be losing weight and you should be able to continue to care for yourself and your family although you may not be feeling too great. With HG, sufferers often need help caring for themselves, never mind look after their family. The illness can be completely debilitating for weeks or even months. If you're not sure, the HER foundation website who have a fact sheet to help you determine whether or not you are suffering from HG
www.helpher.org/mothers/hyperemesis-or-morning-sickness/index.php

Diagnosis is important as you will inevitably become dehydrated and you will need to be admitted to hospital for IV rehydration. Starvation is another risk. When your body burns fat for energy, it produces chemicals called ketones which can be detected in your urine. You can monitor your levels of starvation using ketosticks, available from pharmacies. You pee on the stick and it monitors your levels of ketones. If levels are high, you should tell your doctor or midwife. If you are worried about dehydration and ketone levels and you can't see your doctor or midwife, you can go to A&E.

Facts and Figures and FAQs

HG is worse in the first trimester for the majority of sufferers, though a significant proportion (10 ? 20%) suffer for the entire duration of the pregnancy. If you have close relatives (mothers, sisters) who have had HG, you are also at significantly higher risk of being a sufferer yourself. HG is the most common cause of hospitalisation of pregnant women in the first trimester.

Is it worse carrying a boy or a girl?
There is conflicting evidence as to whether having a boy or a girl makes HG worse, some studies say boys, some say girls.

Is it worse with twins?
Yes there is evidence that carrying more than one baby makes HG worse.

Will my baby be ok?
Babies born to HG mothers are usually absolutely fine. If you lose some weight during the first trimester the risks for the baby are low as it does not need much nutrition at this time and your body should have enough stores from before your pregnancy. However, if you continue to to lose weight due to lack of treatment or failed treatment, then there is an increased risk of low birth weight or pre-term birth. Studies show that this is a risk for women who are severely ill, are dehydrated for long periods and lose more than 10% of their body weight.

There is also growing evidence of long term health effects in some children born to mothers who suffer malnutrition in pregnancy. In some cases this is not evident until adulthood with increased risk of chronic conditions such as diabetes and hypertension.
For more information see forums.helpher.org/viewtopic.php?t=18 and www.helpher.org/hyperemesis-gravidarum/complications/fetal-programming.php

I've heard that being sick is a sign of a healthy pregnancy, is this the case with HG?
You will often be told that morning sickness is a good sign and you should be happy that you're feeling sick. This is generally the case with normal NVP, however, it is not the case with untreated HG. There is actually a higher risk of pre-term birth and low birth weight. However, continuing to feel sick may be a sign that the pregnancy is still progressing. Some women with HG who miscarried reported that the first sign was that they suddenly stopped feeling sick.

What are the treatments?
Initially you will be advised to use non-pharmacoligical strategies which are similar to the general advice given to any pregnant women suffering from nausea. These include eating little and often, eating protein-rich, low-fat meals, avoiding triggers of nausea such as strong smells and getting enough rest. You can try ginger, seabands (accupressure wristbands used for travel sickness) and extra doses of vitamin B6. Avoid getting out of bed in the morning without something in your stomach such as a tea biscuit or cracker. Some women find that these give relief in the initial stages of HG but they become ineffective once the illness is in full swing.

The next line of treatment is prescribed antiemetics such as phenergan, cyclizine, stemetil and ondansetron. For many women these work well and control the nausea and vomiting enough for them to eat and drink normally and regain some of their lost weight. Many can even return to normal life. You may find that one antiemetic on its own is not effective and you may need to try different combinations but you can discuss this with your doctor. Even with antiemetics, you will probably still need to use coping strategies such as getting extra rest, eating small frequent meals and avoiding triggers when the HG is at its peak. If you are dehydrated, you may be admitted to hospital for IV fluids. Minerals and vitamins can be added to the drip to replace any you may have lost, as well as antiemetics.

Unfortunately, antiemetics don't work for everyone. If they are ineffective, you should be referred to an obstetrician (if you haven't been already) for the next line of treatment, which will probably be steroids. These carry a small risk of cleft palate, but this will be discussed with your doctor. In a small number of cases even this is not effective and drastic treatments such as feeding with a tube directly into the stomach may have to be considered.

My GP is unsympathetic and refuses to prescribe me drugs - what should I do?
Unfortunately this experience is all too common. In this case you should see another GP if possible. You should also ask for a referral to an obstetrician. If you remain untreated and become dehydrated, you can have yourself admitted to A&E for IV fluids and ask to be seen by an obstetrician.

Do alternative remedies work?

Some women are greatly helped by alternative medicine, particularly Homepathy and Acupunture. Some women can claim to have had the illness 'stopped in its tracks' by Acupunture, but success varies between individual patients and it tends to be expensive. These remedies are worth a try if you can afford it but have a back up plan incase it doesn't work.

How long will this last for?
For most women, HG peaks in the first trimester and tails off or disappears completely later in the pregnancy. The usual advice for morning sickness is that it will improve after 12 weeks. The majority of HG sufferers find that it takes longer than this. Unfortunately, some women suffer severely for the entire pregnancy. Others find that it improves, but they suffer from nausea and occasional vomiting until birth. Relapse is quite common especially if you have tried to return to your normal busy life. There is a great temptation to make up for lost time and become very active once you start to feel better, but this very often leads to the nausea returning. You should be very careful about resuming work and normal household activities even if you feel as though you're up to it. Be careful too about stopping your medication, do it very gradually and resume at the first sign of the condition returning. You may have to continue to take it for the entire pregnancy to prevent a relapse.
All I can drink is coke, I'm worried that I'm not eating a healthy diet.

Through pregnancy, we are bombarded with advice about what to eat and what not to eat. Women with HG often find that the list of food and drinks that they can keep down is very small and not at all from the healthy options. For some reason, women with Hyperemesis ofen find sweet and salty foods ie, sweet drinks like coke, and crisps, are more likely to stay down than healthy foods. Their peculiar diet can lead to disapproving comments and the incorrect assumption that this is how they normally eat.
Various women find different drinks acceptable. Coke (often left to go flat) Lucozade, lemonade, milkshakes and IronBru, Dr Pepper, orange squash, apple juice, lime juice, ice cubes made of flat coke or just tapwater, ice lollies and sips of tepid water can help in keeping rehydrated. 

When the illness is at its worst during the early hormonal surges - typically between eight and ten weeks- then it is difficult to retain any liquids and you may need to be hospitalised for rehydration at about this time. 

When solids do become bearable,jelly, tinned fruit, ice lollies, ice cream, crisps, fish fingers, potato cakes, crumpets, soda bread and similar potato based or salty foods have often been found to be acceptable.

The important thing to remember at this time is that it doesn't matter what you eat or drink, the crucial thing is that you eat or drink something. Don't forego something because you are worried that it's bad for you. In a normal diet, too much salt and sugar is bad for you, but when you consume nothing else, this may be your only source of calories, fluid and salt for the day. Instead of berating yourself for your unhealthy diet, congratulate yourself that you have kept something down because your body needs it. If you are able to take vitamin tablets or syrups, then do so but most women find that large multivitamin tablets make the nausea worse. You may be able to get vitamins that dissolve under your tongue which you may be able to tolerate. If and when you begin to feel better, you can start to re-introduce more healthy food.

Will it go away when I give birth?
The good news is that for the vast majority of sufferers the physical symptoms of HG disappear completely as soon as the baby is born. You should be aware though that it is not unknown for the nausea to persist after birth especially if you have been severely ill. If this occurs, speak to your doctor. For women who suffered persistent, long term nausea and vomiting, it may take some time to restore energy levels and nutritional reserves. Moreover, while the physical symptoms may leave, the trauma of HG can leave an emotional legacy for many women, especially when combined with the rigours of caring for a baby. If you have any concerns, speak to your doctor or midwife. Don't feel that you should just be able to pick yourself up and get on with things, if you're having problems you are entitled to seek support.

Will I get it in my next pregnancy and will it be the same?
Unfortunately, having HG in one pregnancy puts you at a high risk of suffering in subsequent pregnancies although it is possible to escape it. Some women find that the HG gets better in subsequent pregnancies, whereas others find it stays the same or gets worse. There is really no way of knowing how your pregnancies will relate to each other.

Can I do anything to prepare for HG incase I get it again in my next pregnancy?
The HER website has a page of advice on preparing for your next pregnancy. forums.helpher.org/viewtopic.php?t=17. If you had medication which worked for you in your previous pregnancy, make sure that you have it ready to take as soon as you feel ill. Studies show that the quicker you get on top of the sickness, the better the medication works. Because HG can start within days of missing your period, see your GP as soon as you know you're pregnant.

Useful sources of information
The Royal College of Obstetricians and Gynaecologists in the UK have no guidelines on the treatment and management of HG. However, the American College of Obs/Gynae (ACOG) and the Society of Obs/Gynae of Canada (SOGC) have published guidelines which can be found at the following sites

www.sogc.org/guidelines/public/120E-CPG-October2002.pdf 

www.guideline.gov/content.aspx?id=10939

Pregnancy Sickness Support is a UK based organisation run by GPs and midwives with direct experience of HG. They have a helpline which you can call for advice ? if nobody answers you leave a message and a midwife will call you back. They will be able to answer your questions about treatments and they keep a note of doctors around the country who are known to be sympathetic to HG sufferers and are willing to treat it with medication. Their website is at www.pregnancy sicknesssupport.org.uk

The Hyperemesis Education and Research Foundation (HER) is a US based foundation which was formed by HG survivors and has a mission to research the causes of HG and provide information and support for other sufferers. They have links to the latest scientific research and are actively involved in funding research, although you usually have to live in the USA to take part. There are loads of threads on every topic related to HG from women who have been through it, including very useful information about which treatment regimes worked. Their website is at www.hyperemesis.org.
Dealing with well meaning but unhelpful advice

Women with HG are often told by friends and family that it's just morning sickness, a normal part of pregnancy and you just have to put up with it. Many HG sufferers report extreme frustration at being advised to try ginger, dry crackers or eat little and often. Most of them have tried every remedy they can think of to no avail. Because most women are familiar with NVP, there is often an attitude of, well I had morning sickness and I just got on with it. HG sufferers are often left with the feeling that they are whingers and malingerers and that if only they could adopt a positive attitude then they would be fine. This can lead to further depression in what is already a depressive condition. In order to deal with this, it is important that the HG sufferer has some supportive friends or family who can firmly but politely fend off these comments. The sufferer will often have no energy to deal with it herself. If possible explain to the person giving the advice that you are not suffering from morning sickness, you are suffering from a condition called hyperemesis gravidarum.

I have never known anyone with HG. Where can I talk to women who understand how I feel?
There is a support thread on the talk boards here (ask MT to add link) which is run by sufferers and ex-sufferers. There are discussions of practical issues such as tips for coping and medication but the real value of this forum is that you get sympathy and understanding from people who know exactly what you're going through. If you just want to moan or let off steam, you are free to do so and nobody will hold it against you. Comments are also welcome from relatives, partners, friends and carers of HG sufferers. The HER website also has talk boards at forums.helpher.org/. There is also a UK based yahoo group called Bloomingawful at health.groups.yahoo.com/group/bloomingawful/

OP posts:
Are your children’s vaccines up to date?
shouldIbecrossaboutthis · 30/04/2012 14:58

Hey everyone just popping back in, I haven't been here for a few weeks as trying to ignore it!

19+2 now and still no sign of it going, it's very weird and seems to be related to work - does anyone else have this? Sat & Sun I did barely nothing all day and lay down as soon as I felt off, I was only sick twice each day. Today though, back to work and sick 5 times so far... I can't just not work!

I've now hit the 2 stone mark, so weighing only 8.5 stone Sad

mattysmum09, I'm no expert but I don't think they could give you anything unless you are losing weight. Have you tried the other stuff, like mint, ginger, travel sickness bands, eating regular small snack meals, eating before you get out of bed etc?

TheDetective · 30/04/2012 15:09

No, no more car episodes!

This last week I have been sick every day (apart from one) as soon as I have got up out of bed. Two days I have been sick twice, about 30 mins after the first vomit.

I have felt nauseous every day, some times worse than others.

My weight has stabilised - no further loss.

I still have strong food/smell aversions.

I'm considering going back on the meds, mainly as I go back to work on wednesday. Utterly dreading it. They aren't being in the least bit supportive. So, if anyone comes across a flaky, vomiting midwife in the next few weeks. It might be me - sorry :(

TheDetective · 30/04/2012 15:09

Forgot to add, I am now 13+2. :(

LucindaE · 30/04/2012 16:21

Detective andShouldI My goodness, neither of you seems well enough to work with all this vomiting! I think you should both have sick notes, surely? You poor things...
Lucinda
xx

OP posts:
ovaltine · 30/04/2012 16:24

detective Why have you stopped taking your meds? And a midwife! Shame on you ;) work makes it so much worse. My Dr told me if lying in bed doing nothing but taking meds was what it took for me not to be sick then thats what i should do. Between 29-34 weeks i was proper productive at work but could only do 6 hour days (the travelling was a killer! No rush hour for me as couldn't cope)

well after 8 months maternity leave, i am back full time work tomoro so i am Sorry if i am not about much to offer support during the day but i shall be thinking of you all! Hope MoP hasn't been washed away, we all quite dry considering! Waves to lucinda x x x

TheDetective · 30/04/2012 17:05

Lucinda I guess I just feel like I have to go back - I don't feel ready if I am honest, but I feel like if I go back and they see how I am, at least I can justify it if I do end up going back off sick? I don't know... I'm also worrying about my maternity pay being shite because I need to do unsocial hours to get it up :(

Ovaltine The oral meds didn't seem to be helping - if anything I felt worse with them. But now I am out of the first trimester, I am wondering if its worth giving them another go, as it might have just been the fact I was feeling so bad anyway?

ovaltine · 30/04/2012 17:45

there's lots of different ones you can try. Unfortunately most of us have found rest is the only thing that really helps. I found once work saw how sick i was they weren't in a hurry for me to come back!

TheDetective · 30/04/2012 18:01

I was on Cyclizine, Stemetil, Ranitidine and Ondansetron. All at the same time.

I tried different combos etc, but nothing seemed to help.

The only thing guaranteed to stop me vomiting is IM, which I was doing - but I'm reluctant to do that unless I am vomiting more than 4-5 times a day. My legs still hurt from the injection sites, and I haven't injected for 2 weeks. And I only did 4 in each leg - 8 in total.

shouldIbecrossaboutthis · 30/04/2012 18:11

I'm self employed and although money isn't an issue I'd be leaving 15 sets of people in the lurch for childcare so I have to suck it up!

TheDetective, no meds work for me now, but I would give them another try now your out of you 1sttrimester as they did work for 2 weeks for me where I was only being sick / times 14-15 weeks.

Good luck Grin

kalidasa · 30/04/2012 18:14

I feel your pain detective. That's very similar to what I'm on (only metoclopramide rather than stemetil), I'm on the max dose of all of them and I have literally not got out of bed for weeks except to go to the bathroom/GP/into hospital. I am horizontal and motionless 95% of the time and I am still being sick.

I think the meds do make a difference for me. I think without them I would be vomiting a lot more and failing to keep water down. As it is I am OK with fluid but food is a disaster - I manage to eat only tiny amounts and then lose about 2/3 of it. If I don't try to eat at all I am less sick but I am already so thin and weak that this isn't really an option.

On a more positive note, I had a scan today after some light bleeding this morning. I'm about 8w4d and the baby looks good and actually looks like a baby now too! I could recognise head, legs and beating heart and it's just over 2cm long - very different from the 5mm lentil at 6w. The bleeding is coming from a patch on my cervix well away from the baby so not a problem.

kalidasa · 30/04/2012 18:56

Seymore thanks so much for kind message, just saw it. You're right, I'm due about the 6th too and I was briefly on a due in December thread. I stopped posting when I became so ill because it's hard to read about women still at work and so on but it's very kind of you to remember. I'm sorry you've been struggling with sickness as well, it's horrible isn't it.

TheDetective · 01/05/2012 09:37

Well, I admitted defeat last night. Started back on the tablets. Took the first ones just as I went to bed at midnight, up at 8am - and NO VOMITING! Took the next ones then. So going to try just 8 hourly today, and see how I get on.

I don't feel particularly nauseous - its there in the background, but not enough to be bothering me, or make me feel like I need to lie down flat!

kalidasa · 01/05/2012 11:27

Hold your horses everyone . . . I have a (slightly) POSITIVE MESSAGE. Still 100% in bed, still v. v. nauseous, still throwing up BUT the Ensure 2-Cal things really do seem to be helping. I feel a bit more alert and human already and have moments of almost-hunger (haven't felt anything other than disgusted by all food for weeks). I really think they are working to take the edge off the starvation after all this time. Thank goodness!

LucindaE · 01/05/2012 12:59

Kali It's wonderful to hear of any improvement for you, my goodness - almost hunger sounds good. My 'This too must pass' talk must be sickening you too at the moment, and I am keeping my fingers crossed.
Detective ShouldII think that you have every right in the circs to think only of your own health and the baby's. Hyperemesis is enough for anyone to cope with on its own.
Over the years, I've had Domperidone (lol not, as someone on here said, the champagne) and Metroclopramide for my migraines and thought they made the acid stomach and theefore the vomiting worse, if anything, but how they'd help in Hyperemesis, I couldn't say, as due to that awful GP the only meds I was on were funny little pills from the Acupunturist.
Lucinda
xx

OP posts:
MotherofPearl · 01/05/2012 15:19

Kali, so great to hear that things have taken a tiny turn for the better. I found that once the worst of the sickness had passed, although I still felt nauseous and was sick every day, hunger did return, and eating my particular 'safe' foods (invariably very, very salty things) did help. Also nice to hear about your scan, and that the lentil has grown. Isn't it amazing how these babies thrive and develop, in spite of the hell the mother's body goes through?
Detective, I think it's wise to go back on your meds if you have to go back to work tomorrow - I can't imagine how you'd cope otherwise. Even on the meds, I hope you'll be OK and not get too tired. Good luck!
Speaking of being at work, how was your first day back Ovaltine? Was thinking of you. Is your DD at nursery now then?
Hope everyone else doing OK today? How's the swelling Horsey?

horseynewmum · 01/05/2012 18:36

Hi all

Kali glad your seeing an improvement and I'll keep my fingers crossed that it continues for you.

Detective I'm worried you may relapse unless you start your tablets again before going to work.

Pearl Swelling not bad last 2 days as have been able to lie on sofa and have legs up over the arms which helps. Its days when I dont get to put feet up that they swell. Its def water retention as it goes when i keep legs higher then body

I had bit of naursea last night which really pee'd me off but once asleep I was ok until I work up early hours of this morning with a wet top to find both my boobs had leaked. Think DH thought xmas come early when he work up to find me topless LOL

TheDetective · 01/05/2012 18:43

Feel fabulous today - maybe this is the right combo for me - Ondansetron and Stemetil...

I have had the odd day where I have felt great though, so not holding out much hope! On a late shift tomorrow, so at least I can have the morning to get myself sorted.

I've even just been doing little bits of DIY/jobs around the house! Woohoo!

Littleplasticpeople · 01/05/2012 18:53

I've come on for a moan. Although I don't feel any where near as bad as I did, I'm getting down about still being sick every evening. I'm off the meds, and am happy to stay off them because I'm no worse without them. But every evening from about 5 o clock I feel nauseous, and without fail I throw up ALL of my evening meal. I then go to bed, because if I stay up I will be sick again and again. So I'm fed up of the nausea, vomiting and having to go to bed at 8.30. Moan over.

LucindaE · 01/05/2012 20:29

Plastic Losing your dinner every night is horrible, no wonder you feel like moaning. Sending you gentle cyber hugs. You are getting there.
Kal I hope the improvement continues,and Detective You too. Best of luck at work.
Ovaltine Best of luck with work. We'll miss you, but I do hope you can pop back on often. Thanks so much for all you've done so far for this thead, you've been invaluable.
MOP So agree.
Horsey How uncomfortable! OH shouldbe so lucky...
Thinking of Everyone.
Lucinda
xx

OP posts:
ovaltine · 01/05/2012 21:25

thanks everyone day went well! I am surprised. Its now Daddy Day Care in our house. He was in bed by 7 so i think i had the easier day as baby missed me and was very grumpy. Dinner on table when home though girls! Good man!

Kali and detective SO glad you are feeling an improvement. Plastic did meds not help at all? The throwing up every night it a sign of over doing in the day (cluck cluck) if i did too much i was exactly the same. Maybe meds might help? Worth a try hun.

Right off to sleep already! Wishing you all a well day tomoro x x

kalidasa · 02/05/2012 08:29

Hi all. I'm doing well (relatively speaking!). I only threw up once yesterday, in the morning. And I managed all three prescribed bottles of Ensure TwoCal, plus two half-slices of toast and butter. Also feeling OK this morning. Even have moments when I'm lying still and don't feel too sick. Such a relief! I think finally having some calories in my system has made a huge difference and also allowed the drugs to build up and work better. Just hope the baby is OK. I suppose it's inevitable that as soon as I feel a bit better I worry about the baby? But if was fine on the scan on Monday.

ovaltine I'm really glad work went OK. Hope everyone else is managing.

LucindaE · 02/05/2012 09:09

Kali Oh, I am glad. Toast, the luxury! Baby should be fine as the scan on Monday said all was well, though it's natural to worry, after what you've been through. One of the reasonsyou feel so bad is that all the nourishment goes straight tothe baby, so I hear. I do hope this continues, you deserve a break, to put it mildly.
Ovaltine Really happy work went well, so nice of you to come on to encourage sufferers after a day's work.
Plastic How was last evening? The same as ever?
Ihope Should and Detective are dong OK at work.
Lucinda
xx

OP posts:
MotherofPearl · 02/05/2012 11:41

Ovaltine, your DH sounds brilliant, dinner on the table on your first day back at work is just the ticket!
Kali, so pleased to hear that you're improving a little. I think when you've got as bad as you were, the starvation makes you feel nearly as bad as the actual sickness, so keeping some calories in will as you say hopefully start to make a big difference.
LittlePlastic, sounds like you've having a rough time, sorry. Being sick every evening is awful. I'm sure you've already thought of this, but maybe you could eat your main meal of the day at lunch time, and then that way when you're sick at night you're not losing your biggest meal of the day?
Hope everyone else doing OK.

MOH100 · 02/05/2012 11:46

kali how great that you're getting some relief at last. I was visiting friends whose son has type 1 diabetes at the weekend and I was reading one of their diabetes management books. I noticed that the section on ketones said that one of the symptoms of ketoacidosis is vomiting and feeling unwell. For diabetics the solution is to eat, but of course, HG women can't do that. That must be the reason for the vicious circle, you vomit so you become ketonic, this makes you vomit so it gets worse and so it goes. What astonishes me is that medical profession can't seem to have any kind of joined upness about treating women with HG, if diabetes doctors know that being ketonic makes you feel ill, why the hell don't midwives, GPs and obstetricians?!! Sorry I'm ranting again, glad you're feeling better and getting some calories in.

detective ondansetron and stemetil (well, buccastem) was my golden ticket too. I'm so glad you're feeling great. With me the 'cure' lasted till the end, there was just occasional nausea if I was too tired.

mattysmum whether you can get antiemetics if you're not actually throwing up depends on your GPs attitude. Personally, my feeling is that all women with pregnancy sickness, no matter the severity, should be offered the medications that have been proven to be safe over decades of use by millions of women, these are the antihistamines like avomine, phenergan and promethazine and the phenothiazines like stemetil. If your sickness is interfering with your ability to care for your child then that would be good enough reason for me. Unfortunately your GP might disagree, but I would go and see one anyway. You'll have a better chance of success if you go informed. Look at www.pregnancysicknesssupport.org.uk/healthcare-professionals/medication/. There's information about medications there. If you want something in your hand to show to the GP, you can download papers from the documents page of www.pregnancysicknesssos.co.uk. The SCOG guidelines, Motherisk update, NICE guidelines and ACOG guidelines are good ones to start with. The NICE guidelines are useless for full blown HG, but they do advise doctors to prescribe antihistamines for nausea and vomiting of pregnancy, so are good to refer to if they say that they won't give you anything unless you're throwing up. In fact, a lot of HG ladies don't actually start off vomiting a lot, it's more being unable to eat and drink to begin with, then the vomiting kicks in later. It does astound me that doctors won't treat women who can't eat and drink properly - what do they think will happen to you, that you'll just survive 9 months of being barely hydrated and almost starving. The only reason they're afraid to prescribe is because they believe the myth that drugs are unsafe in pregnancy. some are, but lots aren't, in fact a lot of drugs are a bloody good idea in pregnancy. Ok I'll get off my soapbox now. You might be surprised though, you might get a great GP who's well informed and is happy to help you. Let us know how you get on.

littleplastic sorry if you've answered this before, but have you tried everything meds wise? Maybe like detective, you just hadn't hit on the winning combination? Or maybe not taking enough, were you on maximum dose?

kalidasa · 02/05/2012 12:30

MOH The doctors I saw were all fairly clear that the ketosis itself makes the vomiting worse. What I did find frustrating is that it was only on the final day of my third admission (my twelfth day in hospital overall), when my ketones were at the maximum level after three full days on a drip that the doctors finally seemed to accept that it was not principally about hydration. Even though I had been trying to say from the beginning of the second admission that I felt I was starving. In my first admission they sent me out having eaten nothing at all which I also think was a mistake; and the second time I was eating a bit by the end and feeling better, but they sent me out on a lower dose of ondansetron than I had been having in hospital, and they also gave me no time in hospital off the drip to see how I'd manage. During the whole of the second admission (five days) not a single nurse asked if I'd opened my bowels, which meant during the third admission (still hadn't gone) I had reached the stage of impaction and the painful and very distressing treatment that was then needed. This was avoidable with better nursing during admission §2. (Constipation is not usually a problem for me and I just assumed I wasn't going because I wasn't eating.)

If I were advising doctors on the essential care in this situation of v. resistant hyperemesis I would suggest that patients are not sent home until:

  1. Ketones are normal
  2. At least some regular eating has been possible with little or no subsequent vomiting for at least 24 hours
  3. Patient has been off the drip without a deterioriation in ketones/sickness/eating for 24 hours.

And that any patient in this situation - prolonged starvation, intermittent dehydration etc - be treated automatically for constipation.

If I had been given the Ensure drinks from the beginning of admission §2 that would also have been an improvement.

It was also unhelpful that they insisted for ages on lactulose which of course I just kept promptly vomiting, doing no good at all.

On the whole I think I have had good care, but I was frustrated to the point of tears by the endless doctors who came round day after day, especially in admission §2, and said "don't worry about eating, it only matters that you drink". I can see that on any given day that is medically true, but they just didn't seem to grasp that by the time I reached hospital I'd been eating less and less for weeks already and that I was weeping and vomiting with hunger!

To be honest I think I underestimated myself how much my eating had tailed off before I even started vomiting, because I had been feeling so sick for weeks at that point. If I were in this situation again (ha!) I would get hold of the food supplements and start using them as soon as I felt my appetite begin to falter.

Sorry for essay! I wish there was some sort of 'experienced patient' consultation on this. I understand that even a big hospital doesn't see that many patients in this state but lots of the things that would have helped were really pretty simple.