high risk?

[rhibutterfly]

hi i'm 17 weeks pregnant and been informed today by midwife that i'm in high risk factor for downs with a 1 in 82 chance of having baby with DS, i don't want to have amnio cos the thought of that is more scary to me than having a baby with DS i'm just wondering how many others were given those odds and all turned out ok

Due to maternal age and the fact I had no tests done (fear of miscarriage worse than prospect of DS) They gave me 1:9 ratio. All turned out well in my case. At my 20 week scan they did say that when they do this scan they can sometimes see "markers" which could indicate Downs and they would tell me if I wanted to know. I said ok to this. No "markers" were seen although they did say this was obviously not infallible. Hope this helps x

thank you just what i needed to hear was hoping that possible indicators could be picked up on scan THANK YOU XXX

I have odds of 1:42 and had amnio yesterday after much deliberation. The procedure really was ok, not painful. Trip to dentist for filling= much worse! Odds of MC were 0.5% - 1%, so better than MT chance of abnormality. When I some to my consultant though he said they ate the published odds he has to tell me but that the odds of MC following amnio at their clinic were much better. I'm resting today and have not had so much as a cramp and feel very lucky. Just praying for a good news phone call for results now.
I understand anyone not having the invasive tests, we're all different but just wanted to share my experience in case anyone is nervous about the procedure. I was terrified and would now happily have it done again as it is no worse than a blood test and let's face it ladies we have enough of those whilst pregnant!
Thinking of you all.

Sorry full of typos, pesky auto correct!

thanks amethystmoon saw the midwife today and reassured more also told i could always opt for amnio at 33-34 weeks which at worst would result in prem labour if any markers show up in scan i'll consider this as it be nice to be forewarned.Good luck with your results Please let me know how it goes xxx

Hiya, I was told at 14 weeks that my risk factor was 1:108. I had decided in advance that if that happened (I'm 38, so it was fairly likely) I would have tests and I waited a week so that I was far enough along to have an amnio rather than CVS (slightly lower MC risk).

The waiting was agonising for that week and then waiting a further day for the results (they were really quick) after the test, but I weighed it up and decided that I would rather know. I'm glad I did. Everything was fine.

A friend told me that a friend of hers didn't have the tests for religious reasons but then spent the rest of her pregnancy in agonies over whether the baby would be born with Down's or not.

It sounds like you are resolved that you wouldn't have an aborion if the baby were to have Down's so maybe the test would just make you worry more about MC.

At the end of the day it's your choice and 1 in 82 is still pretty good odds, I mean you would be reluctant to bet on a horse with those odds wouldn't you.

Best of luck with what you decide and the rest of your pregnancy.

I got my results today. high risk for down, 1:3! I will go to amnio next week.

Thinking of you bansku, wishing you lots of luck for your amnio next week. If you've not had one before please try not to worry too much about the procedure itself, I had mine on Monday and was terrified - however it is really quick from 'need in' to 'needle out' it was about a minute and really not painful - the 'going in' felt just like a blood test and then just an odd sensation whilst the amniotic fluid is drawn off (def not pain), then I didn't feel the needle come out just him pressing on the little hole like they do after a blood test. I didn't even bleed - DP thinks that not bleeding after having a need inserted into tummy is weird but it made it a lot easier for me to deal with!
I got my result today, which I am delighted to say was all clear - a huge relief. I'm glad I had the test as, like your friend Mikocat I think I'd have just stressed the entire pregnancy - 3 weeks between getting odds and having amnio was bad enough!

thanks mikocat and good news amethystmoon bet yur relieved.Banksu good luck keep my fingers crossed all turns out ok for u, keep us posted if you can xx

so sorry meant bansku xx

I had a 1:20 risk, had the amnio and it was all ok. Good luck, whatever you decide xxx

seeing all you ladies with much slimmer odds makes me feel a little silly about worrying in first place thank you allxxx bansku still keeping fingers crossed for you xx

Please don't feel silly Rhibutterfly, it's a tremendously worrying time and I know how hard it is to focus on the huge odds that everything is fine. The support I got from MN helped me hugely and none of us that have been through this would ever think that of you. I wish you lots of luck with your pregnancy and hope that you'll be delighted on delivery day with a very healthy baby :)

I was 1 in 23; we had the amnio and all was fine. One thing I find helped was to turn the numbers around. Like 1 in 82 chance DS is actually 98.8% chance that everything is fine! If someone told me there was a nearly 99% chance of something, I'd feel pretty sure that that something was going to happen. Like for me the numbers turned to more than 95% everything okay, which still felt like almost sure. Good luck and I hope all is well for you, too!

We had the odds come back 1:89, which, like ardenbird pointed out, really isn't that bad! But it is labelled high risk and everyone leaps into action asking what you want to do, etc. That almost made me more worried than the risk itself!

Like you, we decided against an invasive test based soley on that result. We didn't want to risk a miscarriage, however small the risk was. So after much heartache, we went for an early anomaly scan at the Fetal Medicine Centre in London. We saw Prof Nicolaides who has a brilliant reputation and is at he forefront of all things fetal. At the scan, there are far more things looked at than just one measurement of fluid.

If there had been markers present, we would probably have opted for the amnio, but done by him. As it was, there was nothing unusual seen, and we were reassured. He did say that we could have an amnio at 32 wks if we wanted certainty and time to adjust to the idea. Not sure that we will. We feel much happier now.

And I don't think we'll be having the screening done again, as we wouldn't want to terminate, but the worry was incredible.

Good luck to you and to bansku

thank you all for the support i'm in such a better mood these past 2 days and really enjoying my pregnancy xxx

I've just posted something similar - should have looked a bit harder first :)

I'm 13w into my 4th pregnancy, I only had Nuchals before which were all very low risk, but this time had combined screening which has given me a 1:78 'high risk' result. The scan was OK but my bloods are way out of normal range.

I've asked for a second more detailed scan but this isn't offered by my hospital, so I've booked an amnio but have to wait another 3 weeks... the wait is terrible... my mind is working overtime!

Lovely to hear some positive stories, especially about the amnio not being painful! Although the risk of mc worries me more than the pain :(

Suzy x

If you can suzy try to blank your diary out for a few days after the amnio (although I realise this is not easy for everyone to do). I was terrified of miscarrying after my amnio last Monday, and I was lucky that my Mum came and stayed for the next day so I literally stayed in bed for the whole day (apart from loo trips!). I then worked from home for a day, then went back to work on the Thursday. I have been taking it easy ever since as the midwife/nurse said there is an increased risk of miscarriage for 10 - 14 days afterwards. I had my regular MW appointmet this morning and heard the baby's heart beat, which she was pleased with and she said it is very strong :), so hopefully all will be well. The whole amnio was carried out whilst watching everything on the ultrasound, which drastically reduces the chances of mishaps...considering years ago they just did amnios 'blind'! plus my consultant confirmed that the percentage risk of miscarriage is based on very old data. Good luck :)

hi bansku have you had amnio yet, if so hope all gone ok xx