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Pregnancy

Talk about every stage of pregnancy, from early symptoms to preparing for birth.

Arthritis in Pregnancy...

6 replies

Westcountrywife · 21/12/2011 17:13

....so I'm due 3rd August with my first. I have psoriatic arthritis and came off methotrexate in April, still taking sulphazalazine. Obviously a very planned pregnancy... Currently having an arthritic flare in one hand and on/off bursitis in both hips. Are there any mums out there with arthritis that can tell me what to expect, what they wished they'd known and any words of wisdom....

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homeaway · 21/12/2011 17:40

Hi, I am not an expert and have not been in your position but as nobody has replied I thought i would chime in. Have you looked into supplements that might be able to help you ? I would also look at diet as that can have an effect on arthritis and it might help ? My sil suffers and has changed her diet and that has helped but you would need to consult a dietician. Pregnancy yoga and pilates ? Hope you find some relief soon.

Westcountrywife · 21/12/2011 17:57

Thanks homaway... I am very lucky to have an amazing consultant, fabulous nurse and supportive GP who are helping now and have plans in foot for the next seven months and beyond. Grin

I've heard about a two week crash that happens two weeks after delivery when the hormones start to reduce back to normal (my consultant is already planning). Was hoping that maybe someone out there has experienced this (or other things I don't yet know about) and can help with preparation for whats to come. We thought long and hard about doing this as I know that it's not going to be easy. I am very lucky to have loads of support....

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BelleStar · 22/12/2011 08:32

Congratulations on your pregnancy!

I'm a fellow PsA sufferer and first time mum...my dd is now 15 weeks old. I chanced upon your post so thought I'd share my experiences with you!

By the second trimester all my symptoms had totally disappeared! I wasn't taking any meds at all. Amazing! Something to do with the steroids produced by the placenta someone said. My knees were still a little fluid-y but no pain. I decided that I wanted to use a birthing pool for the birth so that I had a bit more freedom over birthing positions...there's no way I could kneel or squat without the water supporting me and I know that lying flat on your back isn't really the ideal position. I spoke to my rheumatologist and obstetrician and there was no way I could 'bagsy' the pool at the hospital so I opted for a home birth. With it being my first baby I have no point of reference but I do feel that the water helped as I was able to find the best position for me without worrying about my joints too much. I should probably say that I did transfer to the hospital for the last half hour or so and birth of the bubs, but not for any serious reason and all was fine...I was just getting pretty tired out and my contractions were slowing down a bit. But being able to do my whole labour at home was great.

I was also aware that my joints were likely to flare up pretty soon after the birth and that I may need to start taking meds again that weren't compatible with breastfeeding (i.e. methotrexate). I spoke about it a lot with my consultants and family and friends in order to mentally prepare myself for it, and I had great support too. It knew that it would be more important for the baby to have a mummy who could actually move and look after her than to breastfeed beyond the first few weeks. I sort of told myself to aim for 6 weeks breastfeeding and not to beat myself up about it. It was important to me to have this sorted in my head beforehand.

And yes, within 2 weeks of the birth I could feel the pain and inflammation creeping back in, particularly in my wrists as they were working overtime with a new baby! I had an appointment with my rheumatologist set up for within 2 weeks of the birth and further discussed my options (again!). She gave me a prescription for prednisolone, which she said was safe to use, but I was really reluctant to take anything at all whilst breastfeeding so put the prescription to one side!

When baby was about 6 weeks old I introduced a bottle of expressed breast milk. It was important that she would take a bottle in case I needed to wean to bottle sooner than I hoped. By this point my joints were getting pretty bad and I decided to start the process of moving her onto the bottle. I first changed the bottle of expressed milk to formula. But then I remembered the pred script and did a bit of research; the data suggests that the amount that passes into my milk is almost none even when the dose is much higher than I'm taking (which is 10mg/day). The recommendation is that if you're taking 50mg or more then wait 4 hours after taking it before nursing. So although I'm taking much less than this, I now take the pred in the evening and I've kept the bedtime bottle of formula so there are a number of hours between me taking the meds and her next feed. Which hopefully means she's getting nothing of it through the milk, and if anything it's a negligible amount which has shown no effects on babies. With the prednisolone I've been able to continue breastfeeding...I'm now up to 15 weeks and counting. I'm hoping to keep taking the pred for a couple of months so that I can keep feeding. I don't think it's something you'd want to take long term but at the moment it's really helping. I'll then be much happier to wean when the time comes!

Sorry for this massively long post! But hopefully you'll find this useful! And please do use this thread if you've got any other questions or concerns that I might be able to help with...sometimes it's just helpful to share with someone who's going through or been through the same thing!

All the best!xx

Westcountrywife · 22/12/2011 17:35

Thank you so much bellestar for your wonderful message. I must admit to having a little cry when I first read it... possibly hormones but also happiness that you replied. I've only ever met one other person with PsA and she was elderly!

You must be so happy to have your daughter and you seem like you cope really well.

So far my consultant has only spoken about going back on the methotrexate as soon as possible, but even now I am wary. Coming off it has really shown me what side effects I have been living with. I'd love to breastfeed so will note down the name of the drug you mentioned.

Did you find that once your symptoms went with your pregnancy they stayed gone? I'm a bit anxious about having flare in the third trimester.... What about labour? Did the PsA have any effect? Actually I have thousands of questions, but they van wait.

For now, thank you, your response has reduced some of my anxieties already. I can't thank you enough.

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BelleStar · 24/12/2011 04:53

Since having my baby I haven't looked at the pregnancy board - how amazing that I did when you posted! I'm so glad to be able to reply to you and hopefully give some support and reassurance. I must admit to shedding a tear too!

I had an appointment with my rheumatologist yesterday. Thought I'd pass on more info about the pred, so you can talk to your consultant about it. It's basically a steroid and painkiller. Which means that my joints are still bad, I just can't feel it! So it's not a long term solution as my joints could be suffering damage but it does enable me to breastfeed. But at my appt we discussed probably not continuing beyond baby being 6 months. Which is amazing as I thought I'd only do 6 weeks!

Sorry...got to go...will be back later to answer your q's!xx

BelleStar · 28/12/2011 14:09

I hope you had a merry Christmas and have been feeling well! Thought I'd respond to your questions...although I guess it's important to remember that everyone's symptoms and stuff are going to be somewhat different.

Once my symptoms had gone during early pregnancy I didn't have any flares or any significant pain until after I'd given birth. I don't know how likely it is to have a flare up in third trimester. Perhaps having a pre-existing joint condition makes you more likely to get aches and pains that a lot of women get whilst pregnant?

My affected joints are in my feet, knees, wrists, elbows and shoulders but not in my hips. Other than not being able to kneel or squat without water I don't feel that the labour and delivery was affected by my arthritis. There was never any suggestion from my rheumatologist or obstetrician that having PsA would make labour more problematic. What have yours said?

Let me know if you have any other questions! There is a PsA Facebook group - maybe other people can share their experiences with you too.

Xx

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