Just had fetal anomaly scan - problem - mears can you or anyone else help ?

[Tillysmummy]

I just had my fetal anomaly scan and there appeared to be a unilateral eulagenic (??) area to the right of the lung. It appears as a clear area. Any ideas what this might be ?

Going to have another scan at fetal medicine centre this pm?

Sounds like basically good news, Tillysmummy. All the best with the other appointments, do let us know how it goes!

I googled and got quite a few results - including this . It seems to suggest it is easily treatable in the vast majority of cases.
I hope everything works out for you - at least now you have people who seem to know what thay are doing looking after you.

yes that's right. It is a good article. Thanks prufrock. And thanks all of you for your well wishes. It seems it's fairly rare. We need more info on it. It does also seem that most babies with this can have breathing difficulties. God I can't believe this is happening

I am so pleased to hear that it is not a major malformation. It certainly sounds good that she said it would not impair the baby's life or health in a profound way. Now you have time to find out lots of information and to be ready by the due date. I was told that for some conditions they can arrange for a paediatrician to be present at birth so the baby gets the absolute best care straight away. I know you are still very sad and worried, but it does seem like good news. I hope it will not change the way you feel about your baby. xxx

Yes. It's difficult to know. I almost felt better before I started surfing the internet. So much information on it and how rare it is. Looks like the baby would need an operation soon after birth to remove it to prevent the possibility of it turning malignant / causing breathing difficulties etc.

Sorry I didn't see thids post till now Tillysmummy. I wouldn't have been able to offer any knowledge regarding what you had been told I am sorry to say. I have a real difficulty with scans sometimes because they can show up things that are of uncertain significance. Sometimes they show things (especially kidney) that are fine on scanning post delivery. Hope you will be able to not dwell on it considering there is a good outcome.

hi mears don't worry. I am trying not to dwell on it but to be honest can't stop crying about it all. I just feel so helpless and because we haven't seen a specialist about it yet am not sure what to think. The lady doctor in the fetal medicine centre was very positive but my internet research has been less so.

Tillysmummy,

Try to stay positive and keep repeating to yourself what you were told at you most recent scan - this is not a serious abnormality or a reason for termination.

Re the internet searches - from personal experience I know how alarming this can be without the reassuring explanation / interpretation of a health professional.

Sorry you've been put through all this stress and angst. A friend of mine was told that her child was growing abnormally and given regular scans throughout her pregnancy, only to be told towards the end that the baby's growth had now adjusted to normal. All that angst for nothing

I would echo Handlemecarefully's message. I had problems with both my pregnancies, so I know how you are feeling (((hugs))). It's pointless to say don't worry, but do try to keep positive. I was lucky, and ended up with 2 beautiful healthy children - although my ds did have to have an operation in the first week of his life.

I don't know what to say, really, I just wanted to say I'm thinking of you.

Tillysmummy, I have had a look on Pubmed for you, and it seems very clear that this is a condition that used to be thought of as much more severe than it really is. There are lots of papers in the last 2 years saying that it really needs to be re-evaluated as a real risk. I would suggest that maybe the advice from the hospital was bang on, and the general internet pages may be more out-of-date. I hope this is a bit reassuring.
Good luck xx

Tillysmummy - this must be so worrying for you, I hope you manage to get some rest over the next few nights.

I went through something similar with my nuchal fold scan for my ds which showed up high risk of downs. I went to the fetal medicine centre for second opinion and they re-assessed my risk to be 1:6000 - there was still that nagging doubt however. I was never really happy till I saw him (absolutely perfect). But I cannot speak highly enough of the fetal medicine centre - they were brilliant and I think you should really trust what they tell you. The internet can be a bit like Pandora's box - once you open it you wish you hadn't but can't stop looking. I was exactly the same.

Lots and lots of luck on Wednesday - Prof Nikolaides is brilliant. One word of advice ... take a good book, my appt to see him was at 6pm and I didn't get seen until 11.30pm!! He likes to take his time - absolutely worth the wait though.

Thanks ladies so much for your helpful advice. You have given me a lot of encouragement and hope. Things don't seem so bleak this morning. We'll see what the consultant says. Tamum thanks for having a look for me that is very hopeful. I agree that the internet may well be out of date and also I think a little knowledge is a bad thing often without the correct medical people to explain the exact risks etc. I am going to the consultant this morning hopefully he will have a few answers then professor nikolaides will hopefully have more.

Good luck for your appointment, Tillysmummy.

tillysmummy - only just read this thread this morning and just wanted to send you lots of hugs. I don't have anything useful to add to the info from other mumsnetters but good luck this morning.
xxx

I just want to wish you and baby all the best, Tillysmummmy. Good luck.

best of luck tillysmummy, thinking of you

hi ladies
No real news to report. I think I feel better although still a bit teary. Consultant was very good and nice but didn't have much info. Just reconfirmed that is wasn't life threatening and was fairly small at this stage and that the likelihood was that it wouldn't get bigger. He also said that a couple of years ago they didn't even have the advanced scanning equipment to detect this sort of thing and so you would never know. It still amazes me how rare it is. He said the last case he had seen was 14 years ago.

Hi ks, don't worry please and thanks for your well wishes. It's just nice to have somewhere to vent. I go from feeling more positive to being sad again.

hello tillysmummy
I'm sorry - I missed this thread earlier - I'm so sorry you've been going through all this stress and worry. I hope you are feeling more positive again now after speaking to the consultant. will you have to continue seeing the consultant/having scans or are they going to wait until after the baby is born? lots of hugs and well wishes to you and yours today - how's your dh and family been coping/supporting you?
by the way, hope this doesn't sound flippant, but is it a boy or girl? any idea of weight/size? was it doing anything cute like sucking its thumb? or just having a snooze?

Hi Tillysmummy,

Hope Prof Nikolaides can give you some more reassuring information today. Thinking of you. ((())))

Oh are you seeing Prof Nik? He is great, in fact my dh was in a meeting with him yesterday and said he is so innovative and dedicated.

Oh TM, I'm so sorry I missed this. I don't look at the pgcy threads v often. I will email u now. Good luck with the professor. LOL xxxxxx

hi ladies,

Thanks so much for your well wishes. It's really meant a lot to me. Great news is that my son (!) is going to be absolutely fine well so the professor says as far as he can. The tumour which is only small is very unlikely to grow and is benign anyway. There is a 25% chance of it disappearing in the pregnancy or getting smaller and less than a 5% chance of it getting bigger. He quelled my fears about the child having an impaired life and health etc and said he would be perfectly healthy etc etc. He will have to have a small op when he is born (within 48 hours) just to remove it and any future risk of infection and then he will be fine the professor said. I can't tell you how I feel today. It was our anniversary yesterday and we didn't celebrate much because of the upset but tonight we are out to celebrate. We weren't going to find sex out but I thought during all this turmoil that it might be a good idea for bonding etc. Thanks again for all your concerns. I will keep you all posted. Have to be monitored fairly regularly but not by the professor just my normal consultant and then another scan by the professor's team at 32 weeks.

Oh what fanstastic news, I'm so pleased for you and your son