30 weeks pregnant w/ baby boy diagnosed w/ PUV

[Tilly8888]

Hello Ladies, was just wondering if any other mums out there in the same boat?

Hi Tilly,

Has the PUV's just been detected? Did it show on your anomaly scan at all? The later it's detcted the better, and there are things that can be done in utero, if need be.

What have they said?

The baby's bladder showed an anomaly at the 20 weeks scan and it was confirmed at 23 weeks that it was most probably PUV. I have been having scans every few weeks and the amniotic fluid is normal. The consultant said to be prepared for a small op at birth and years of follow ups. They have said that an operation in utero is not needed as long as the fluid is normal.

Well, that is really good news

My DS1 had PUV's. There was found to be a problem at our 12 week scan, and the PUV diagnosis was confirmed at 14 weeks. The thing that complicated matters in DS1's case was that he was a twin (originally a triplet, but we lost one at 10 weeks) so they were limited in what they could do.

It's great that your son's fluid is normal - in utero, babies practice thier breathing by swallowing the amniotic fluid and then weeing it out - with PUV's there is a little skin tag over the uretheral opening from the bladder, so it can't be wee'd out. This can sometimes cause firstly kidney/renal problems and secondly lung problems as the lungs can't develop. The fact that your sons amniotic fluid is normal is a great sign - it means that the blockage is only partial and that his lungs will be working well.

Sadly in my DS1's case, the outcome wasn't good, but we knew it was unlikely to be as his PUV's were detected so early.

I really hope theres a positive outcome for your baby.

deemented I'm so sorry to hear about your baby. I'm half way between being positive it will all be fine and thinking of the worst - keep flipping back and forth all the time. The lungs appear to be developing normally, what I'm worried about is the possible damage to the kidneys. Thanks for your response.

It's a good sign that your baby's amniotic fluid is normal - if it wasn't then that would indicate that the urine is not coming out, and backing up into the kidneys, causing damage.

It really is just a 15 min operation when baby is born to correct the PUV's, and no doubt there will be lots of kidney scans to go through - it's a bit of a whirlwind, isn't it?

Also, i don't know if you know this, but if you have a boy with PUV's theres a greater chance that in any future pregnancies with boys that either the PUV's can occour, or there can be renal/kidney problems - something to bear in mind, and the reason why i'll be finding out DC5's sex in a few weeks time.

I don't know if you have Yahoo at all, but there is a PUV support group on there - it's American based, but there are a few Brits on there too and i've found them really helpful and supportive. I'll look for a link for you tomorrow.

Thanks for that, I've just been on Google and found the support group you talked about. The kidneys and ureters are abnormally dilated which means that there is a backup of urine, basically the pressure exerted from the backup is making the urine escape just enough to relieve the pressure but never enough to completely empty the bladder so we are definitely not out of the woods yet.

Ah right - sorry, i didn't realise.

What have they said about what they might do re his kidneys at birth? For us, they did mention a transplant at some point, if all had been well.

They have been a bit sketchy about the post op bit - they talked about possible dialysis, kidney transplant, problems with potty training, everything that could happen but not what they think will happen, if that makes sense. I think they don't want us to get our hopes up until they get to assess the baby when he's born. They have said that he will definitely be transferred to Bristol after birth and to take it from there. He is kicking lots and seems to be very active and in a breech position on top of everything so I am hoping he is a little fighter!

We went to Bristol for a second opinion - not because i wanted one, but because the doctor we'd been sent to see in Cardiff requested it. They were lovely in Bristol.

It's really hard not knowing whats going to happen. Have they said anything about possible induction early if need be?

They said the longer he stays in my belly the better but if he is still breech they would look at a c section at 39 weeks. I'm in Plymouth and there isn't a specialist unit here to deal with my baby which is why they would send him to Bristol. I have also heard that they are quite good over there and have specialists for this sort of thing. I am not planning to have another child, this would be our first and last as I am already 36 so I am hoping that he will be ok in the end.

I too hope he'll be fine for you Theres plenty of time yet for him to move, so fingers crossed you could avoid the csec - the last thing you'll need when you want to go to Bristol to be with him.

Do have a look at that Yahoo group - theres lots of info there and the people are lovely.

I have just got accepted into the group on Yahoo so I will go through it later on. Thanks so much for all the info, you've been great! Nice to know I'm not alone in this, I wish it could have worked out better for you, hopefully you will have a happy and healthy baby this time! All the best to you, thanks again. xxx

Hi Tillly8888,

I just your posting. I am facing the same thing. PUV but fine AF. Currently I am 25 weeks. We are in Bristol and I am just trying to find out more. Do you remember how dilated things became when you were pregnant? How are things now? Many thanks.

Hi ladies, I know this is an old blog but just wondering how your children are doing? In my 20 week scan specialist said my baby has mild bilateral hydronephrosis and possibly due to partial blockage of the urethra valves, amniotic fluid normal and check up in 6 weeks, I'm just hoping things don't worsen from now until birth as I don't think I could cope losin my child. What are the usual happenings when this is found x

Hi ladies, can any of you reply to my post, just want some information from mums that have dealt with puv being detected in scans and children born now how there doin? Does it make any difference ours is believed to be partial blockage and specialist believes baby is releasing urine intermitently x one week kidneys dilated 8mm and 13mm but now both 8mm does this mean anything? X