Hyperemesis Support

[LucindaE]

A new thread needed here already! Lovely Grumblin who started the second one, may be actually having that baby at this minute!

I hope this will be a source of support for present sufferers and ex sufferers alike and also worried family members.

I want particularly to mention my favourite feline FluffyWhiteKittens, who has been so invaluable a source of support on the old threads, and MOH, who has slaved to produce articles full of useful information and links to useful websites, LaTrucha, lovely CaramelloKoalaLover, Grumblin, NitNat, La, Lottie, Grandmagain, MaryLou, Cocoanuts and so many that I cannot name everyone for fear that the current sufferer may became annoyed at the long list...

Never worry about tmi or moaning. When suffering one has to discuss things that would make most people go weak at the knees and to have a good moan can help enormously with an illness where there is still a lot of ignorance and sometimes insensitive treatment.

It might help to remember - when you are at your worst - the words in that Eastern story.
'This Too Shall Pass.'

LucindaE
xx

Congratulations Grumblin, what a lovely name for your DD! Enjoy the chocolate, teeth cleaning and vomit free days in the Pink Castle, you deserve it after your long struggle!
Coconuts my EDD is 22/01/2011, my dating scan is 12/07/2011, but my scan on monday more or less confirmed it will be around then! Even though I'm only 10 weeks 3 days, I feel like I've been pregnant forvever!
My sickness has been back with avengance since last night, so I'm having a duvet day because I didnt sleep last night with the nausea, maybe its time to start taking my ondansetron again??
Big waves to everyone else! xx :)

Grumblin nearest thing to a cake - Oh, wonderful, congratulations on your daughter - a lovely name indeed - Welsh for star! and Kate is nice, too... Can I give you cyber big hugs as you arrive in the Pink Castle clutching bundle, no longer a need for gentle patting...You had the sort of birth we all wanted for you, too. What an ordeal, eh? Lol about your first words...I think you have had a nastier experience of Hyperemesis than almost anyone and come out smiling.
Angel Sending some cyber pats your way. Maybe you have to go back on it, if you are going to be kept awake suffering?
M1N any luck with meds?
I'm puzzled about that induction date for Lottie. Has it happened, then?
LucindaE
xx

Congratulations grumblin. If we'd had a dd she'd have had Kate as a middle name as both my grandmothers had Kate in their names.

MOH I've done your survey, as a previous HG sufferer on this thread to give moral support!!

Congrats Grumblin, beautiful welsh name xx

Grumblin that's fantastic news, well done. A girl to join your brood of boys, bet she'll be spoiled rotten by them :) So glad you can enjoy choc cake at long last - you had HG so bad we all really felt for you. Lovely name - my DD's middle name is Kate too after her wonderful great gran.
Lottie cheering you on x

MOH finally checked out site as DD at nursery and cracking through to do list! Great job, well done. Just completed survey but unable to complete support form (not scrolling to submit button)?

Hi, my GP has been reading up on Hyperemesis & was lovely when I saw him, I had Ketones & he weighed me & saw that I had lost over a stone in 3 weeks. He prescribed Cyclizine?....only im so scared to take it as he said (& the pharmacist) that it makes you very drowsy & im on my own caring for my 2 boys at the moment. Mum is helping out as much as she can but she works too. Has anybody else experienced this with this drug? He rang me today to see how I am doing & I am back there again tomorrow for a check up....but I did manage 3 very small meals yesterday which is a 1st for about 4 weeks! Feeling rough today, but not as bad as I have been doing....what to do?!

My due date is 1/2/12

Hi m1nn1e, I was origionally on cyclizine, my first dose was given intraveinously in hospital and made me a little woozy, but the oral tablets after that were fine, it just didnt work for me, so I was given Ondansetron. Well done....3 meals! i always feel proud of myself after each meal achieved that hasnt come back up.....its funny how your priorties change!? You could give it a go one day when you dont need to drive and see how you are, cyclizine is an antihistamine (what you use for hayfever) so its a little like the feeling you get when using those, but of course the dosage is higher! take care, I hope you get your weight back up soon and the rough days are less xx :)

Hi Minnie, I'm on cyclizine and have been since week 7 (I'll be 20 weeks tomorrow, hurrah!). As I think other cyclizine users on the thread have said, the first week or so on the drug does knock you out a bit and you may feel a bit zombie-like, but just keep on taking your dose and eventually you will get used to it and feel much less drowsy. I still experience some residual drowsiness, but nothing like at the beginning. And for me cyclizine has enabled me to return to reasonable eating, just a bit of background nausea and only 1-2 voms a day, which is a massive improvement on how I was before. Really hope it gives you some respite :)

grumblin congrats on yir wee lady, isn't that post birth tea and toast like a gourmet meal...

La not sure what's going on there, will have to look into it. DD had grommets op today so not sure when I'll have time, but bear with me.

grandma of course you can help, please fill in the form and say who you are. I just made it sufferers only in the first instance because I haven't really have time to do anything else yet, but support for other carers is a very good idea. The more people spreading the word and helping others out the better.

Minnie I was on cyclizine from week 8 to approx week 28 and it does tend to make you drowsy at first as per MotherofPearl note but settles down after week or so. It is hard coping with LOs and HG so glad your Mum is helping and perhaps other friends and family can be on hand whilst waiting for drugs to kick in? Perhaps ask GP about ways of handling dose so most drowsy late afternoon and evening when you have help? The cyclizine did reduce my vomitting although didn?t really help with nausea when at peak but enabled me to eat something. Could also ask about other drugs such as ondansetron as understand better tolerated - present and past users best to advice on this though. Good luck :)
MOH don't worry have fudged it so think worked, let me know. It may be my screen resolution but worth checking out. Hope DD op went well?

I just logged on and said to be DH "oh, thank God, Grumblin's had her baby!"

Hoooooooraaaaaaah for Grumblin - congrats - Karma must have kicked in at last and given you that lovely water birth. Hope there was no vomiting in labour and that you are now stuffing your face with as much cake as Ocado can deliver!
Seren - now you're here, all will be forgiven, despite the trouble you've caused your poor mother! Your mum is a very brave lady.

Minnie at last some meds! Nice to hear that your GP has been doing some reading up - you must have made an impression last time you went!

NitNatLA you must be waddling with a vengance now lol...
Kara Any luck with GP?
M1N I can't find the post where you say you are on cyclazine, thickhead that I am; so the doctor did finally prescribe? I hope the symptoms settle down soon.
Moonbells Grandma Caramel [waves madly]. Moonbells the name rings a bell, awful joke, it was unconcious actually, so nice of you and Grandma and everyone to want to offer support on MOH's great website - the Hyperemesis Sufferers strike back!
Still delighted about Grumblin's prize and nice birth...
Pearl Is it still 'only' once or twice a day, because that is very nasty...
Coconuts I hope things are still going well, and with the decorating?
Angel Any luck with meds?
I hope Alias is out of hospital and OK?
ElliottsMum and anyone accidentally overlooked, how are you?
LucindaE
xx

Hi all, just popped on to say that I had my 20 week scan today and it's a boy! Am really pleased but also in a state of shock as I guess assumed it would be another girl! The scan picked up no anomalies or 'soft markers' for Downs, which is reassuring, but of course this is not conclusive, so still having to wait and see at the birth what that 1:150 chance works out as. But really massively reassured and generally more upbeat. Lucinda, thanks for asking, yes still 1-2 voms a day (very occasionally 3), but normally it's on an empty stomach so don't often lose whole meals!

Lucinda I'm back on my ondansetron since yesterday morning.....vomited 3 times yesterday and unfortunately on a full stomach, but I was much better through the night and slept all the way through without waking up with the nausea! I've had a 'good day' today, no vomits, occasional nausea and managed to catch up on house jobs (defrosted the dreaded freezer after severe over frost for the past month after DD age 13 left the door open) so far soup and a sandwich has stayed where it should! I've decided to stay on the Ondansetron until after my holiday in 2 weeks time.....it'll be a waste of rather alot of money if I spend 2 weeks in the room puking!
MotherofPeal CONGRATULATIONS! and so reassuring there are no anomalies :o
MOH hope the gromets went well, I went through it all twice with my DD, it does make a huge difference though.....my DD used to put the tv on full volume, after her first set of gromets she couldnt stand the hoover on! ;)
minnie how are you managing today? did you try the cyclizine?

Pearl Congratulations on scan, though sorry about puking continuing. When you think of it, that is (I think, my head's not working today, even less than usual ) eight chances in 1,200? Not high...The chances of having low fertility are one in ten, I think, and one in twenty for being infertile, after all, though the only people who seem to worry about that are people like me, who left it late...[hmmm]
Angel I think you are really sensible to go back on the Ondanstrun (sp?) when you can be sure they woudn't have prescribed it if it wasn't safe and know themselves that it is far more risky for you to start getting really ill again. It would be too much of a shame to have a miserable holiday!
MOH Grommets? That sounds a horrible problem, and y our L/O suffering from a nasty skin thing, too...I'm full of admiration about the site, done in such spare time as you have.
LucindaE
xx

Hello ladies

I was on the old thread a few weeks ago, on and off, when I wasn't in hospital, but things cleared up for me at about 14 weeks (as in previous pg) and I flet a bit sheepish about coming back here feeling relatively well. Still feel queasy most of the time, but nothing as horrific as in first trimester. I have experienced the full range of drugs this time - stemitil (useless), Avomine (made things worse/couldn't keep it down), cyclizine (OK as tablets, v trippy but v effective intravaenously); accupuncture useless too, but that could have been the mad hippy I saw!

Just to let you know I am thinking of you all still with much sympathy and many hopes for you all.

PS Batting for Team Pink! Bit of a shock after 3 years of being steeped in blue and diggers.

MOH I have tried to register as some to give support on you fabulous webiste, but am having trouble submitting the info - all the columns go funny on my screen, and there does not seem to be a submit button. Can I PM you my details?

bike oh god sorry about website problems, no idea whats going on, consulting with techno-teen to try to sort out. By all means PM, thanks for support. DD ok, grommets all done fine, load of gunk suctioned out of ear too so hopefully she can actually hear now. just over 24 hours on and she's behaving like nothing happened, just as well they forgive you, felt like such a b***d handing her over to anaesthetist even tho its for her own good and all that.

BikeRunSki Welcome back, it's so nice when people who have suffered come back feeling better as an encouragement for current sufferers, whyever should you be sheepish calling in? You have earned your place and more - the Pink Castle at the end of the Hyperemesis run awaits you - that's a metaphor, we at one point imagine the old thread as a sort of horrific game with spaces and figures being pushed about 'admitted to hospital back two spaces' 'puking down sink' back one space, 'good day -went out' move forward one space, etc and saw the end as a glorious pink castle as on an old Snakes and Ladders board I had when I was little, lol.
You are well on your way there with a pink baby!
MOH With my shocking IT ignorance, it is a comfort to know things can go wrong for those with more skill . For sure, this is only a glich and there are a lot of volunteers, this is all turning out wonderfully.

LucindaE
xx

Bike I forgot to say, mad hippy, oh no! Really sorry Acupunture failed to help you,and sorry too that you still feel queasy, that is really unpleasant as a long term thing. Are you able to eat much at all?
LucindaE
xx

Lucinda - oh yes, with eating I seem to be making up for lost time! Am functioning pretty much normally now. Work, toddler, bit of swimmimg etc. Thanks for explaining about the pink castle.

Friend of mine who'd been on phenergan for months had a baby boy yesterday, so feeling very chuffed for her.

Bikerunski So glad that you can eat - it must have been good knowing somone in person who suffered badly, I did, but she moved away early on; she was being sick 35-50 times a day, so when she said she thought I was going down with Hyperemesis myself just before, I didn't believe her, as it only averaged ten with me, but was bad enough to get dehydrated!
MOH So glad L/O a lot better.
LucindaE
xx

Kara Wow, I have just seen that your baby is only 15 weeks old. My goodness, but in a way, I suppose it is like getting right back on to a bicycle or a horse?! Any news re meds?
LucindaE
xx