Hi Natz, I just read your thread and really wanted to send you some hugs >
Unfortunately we have been in the same place as you, our third pregnancy was Turners Syndrome detected at 12 weeks by a very traumatic scan.
I know the doctors will talk through all of this with you but I thought I'd post our story and am here to chat if you need to.
Our NT measurement was off the scale and the baby had fluid on the brain, it also had fluid all around the head and neck area. The Consultant we saw to do our CVS was certain it was Turner's even before the results came back. We spoke at length and several times with specialists and genetic counsellors. Unfortunately they gave the baby less than a 5% chance of surviving to term and if it did a high probability of needing multiple operations immediately after birth. We decided in the end to have a termination at 14 weeks and it is the hardest thing I have ever done. I knew then and still know now it was the right thing to do for us, I didn't want to bring a little baby into the world who would suffer so much and couldn't contemplate how awful a late term miscarriage could be.
We were told not to worry about it in the future and that Turners is in no way anything passed through a family genetically or linked to age.
Anyway, it's such an awful thing to go through and I hope I don't upset you in anyway with this information, I just wanted to post our story.
Our DS who was 9 months at the time is now 4 1/2 and him being around really helped us get through that time. We also now have a DD who is 2. I still think about our loss regularly but it gets better with time, I'm just so sorry to see other people having to go through so much pain.
My thoughts are with you xxx