wontbepreggersagain HOW DO YOU DO IT? i've started treatment for rheumatoid arthritis(just steroid so far) and i feel pretty much on my uppers re: stamina and fighting the good fight. any words of wisdom for me please?
i've just posted this on my arthritis forum if anyone interested, skip if you don't want a downer on this lovely autumn day:
'Yesterday I saw rheumatologist who confirmed 'active and agressive RA', I have at least 21 painful/swollen joints and an anti-ccp >100 plus an awesonely high sedimentation rate. I had a 120mg depo-medrone injection after the consult and am due to start methotrexate on Tuesday if chest x-ray and yesterday's bloods OK. Sulfalazine to follow once meth is settled.
this all came on the night after my second baby was born, back in march, and i've trooped along, losing function, fun, rest, everything that makes life a joy along the way. the jab yesterday has relieved nearly all the pain i had at rest in my joints and tendons, so I kind of forget about them and i've been really hurting myself overdoing things today.
the baby is teething and has puked terribly everywhere, the toddler has fallen head first down the stairs. i've convnced them both quiet time/naps are in order at the same time and here i am, thinking about myself for the first time since i got up. i had a hot flush in the shop so bad i nearly lept in a chiller cabinet, my right eye feels like it's swelling up, i think i'm getting vertigo just sitting on the sofa and i do not know where the stamina has gone/is going to come from. we have all had a cold since monday and mine seems to have morphed into plague quality grimmness since the steroid has dialed down my immune system. and i can't eat. me! i NEVER lose my appetite!
my husband was also very impressed by our treatment yesterday, but also being very sunny side up, seems to think that things are solved now, but i've just had to chat to him on phone to vent how crap i feel and to get jollied up to make it through to tea time. i am taking things one at a time but to be honest am hating it. i hate i can't make plans, i hate the tip the house is in, i'm scared i won't cope when the kids wake up and i really don't want husband to come home today, i just want to find the strength myself .
so: milk and gloop for baby on waking. jungle book or the incredibles for the toddler. sugary drinks for me. when husband comes home, more time for me to get head round mound of paper work and stuff from yesterday and an exceptionally early night.
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