'October 2009-chattering and on the run, our toddlers are such fun'

[HumphreysCorner]

Right ladies, off we trot into the next stage of our gorgeous toddlers lives.

HC
x

[littlepea72]

Hey everyone.....last time on in England!!!! Computer is now being packed up, so i will talk to you all from NI!!!! Be good!!!!

Girl please!!! Where are you?????

xxx

[littlepea72]

Where is everyone????

Is this the thread finished???

GIRL!!!! Where are you......please......Im more than worried, but dont know how to find you!

[Scout19075]

I had my biopsy last week and while the procedure was fine (no pain, etc.), it wiped me out and all I wanted to do was sleep all week. This week I'm enjoying spring while it's here.

[littlepea72]

When will you get the results back Scout? Will you start the treatment soon???

[littlepea72]

GIRL!!!!!!!!!

[CalypsoFramboise]

So quiet on here :(

But a very belated hello from me!
All fine in lovely London, Lyra is now 13m but currently very snotty, conjuctivitis and coldsores, poor thing. Has been "walking" since 11m but just won't quite let go of my finger, my back's knackered :o

Annalise flipflops between being so funny and lovely to being just unbelievably defiant and willful. When it was particularly cold and sleety she went through a 2wk phase of refusing completely to put her coat on. Pft, and you can imaging the people tutting and making loud comments such as "ooh don't you think you should be wearing your coat young lady in this terrible weather" [pointed look my way]. I would have done the same thing if I hadn't had my own 3yr old!!

Littlepea I hope you are much happier back in NI and DS gets to go to school.

Scout a biopsy? I'm sorry, that sounds stressful, I hope you're going to be well again soon x

AG Hello! hope all good your way

fidelma no suprise to see that your life is as crazy as ever - envious about the build, we've had 3wks of work here just ended last week and had enough of builders in the house from 8am and the dust, the DUST! Anyway its looking good now :)

HT or is that who 'Girl' is - where are you? And what was going on with you lately??

Hopefully it won't be stupidly long before I post again. Have added MN app to my phone so I will be able to read at least, yay :)

[CalypsoFramboise]

...and I added a few photos of the girls in my profile - can't really make them out with the poor res but you get the idea!

[Scout19075]

Sadly, no date yet for round two any time between now and the end of 2015 to start. If the results from my biopsy show lots of damage I may get bumped up on the waiting list. However, if it shows little or no damage we're looking at closer to 2015. Grrrr. It's a catch-22 really obviously I don't want there to be damage but if there's damage I get the medicine sooner. Ack. I'm meant to have a letter through inviting me to clinic to review the results. So far no letter but the HCA at the day-patient ward where I was said I'd get the letter in two-to-three-weeks and the test was two weeks ago this coming Monday.

This weekend S officially turns 3 1/2. Where has the time gone?!?!?!

[Scout19075]

Well, we're looking at "early 2015." I have mixed feelings about it, but such is life.

[littlepea72]

Bugger that Scout, at least you have gone through it once before, you know what to expect, but maybe that makes it worse.
Calypso!! It doesnt take them long to grow up thats for sure. Gabe was 2 yesterday, times just flying in.
Great being back home, and DH will be home on Sunday for 10 days. Kids miss him like crazy. DS1 isnt in school yet....i went mad with the special needs board today, and they are going to supply a tudor at the house! Happy days lol

Where are the rest of you ladies????

Girl!???!!

[Scout19075]

littlepea, it's one of those things where I'm not sure how I feel about it. Obviously over the moon that the biopsy came back with some awesome results. Gutted, though, because it means I have to wait another 18 months to start. I think if I had started immediately/when I thought I should have been I'd be okay because S was still napping and I could have done, too. But by waiting until he's 5+ to start he'll be that much older to be able to understand/help out a bit/watch TV on his own for an hour while I slump in an exhausted heap. I'm lucky that he entertains himself very well (he always has). The next round consists of three medications -- two of which I had the first time and they're adding a third/new drug. I'm dreading the effects of the first two and the third is obviously an unknown entity. It is, however, intense. The doctor said to expect to be at the hospital at least twice a month for blood tests, appointments, etc., as well as daily texts to remind me to take my meds, etc. (though I was good and only missed less than 1/2 dozen doses last time). I'll be looking at 15-18 pills a day plus weekly (self) injections. I shall rattle.

Oh well, it is what it is.

How is it being home, littlepea?

Yesterday was US Mothers Day. S and I rang my mom and his five minute monologue telling her about our weekend just made her day/week. I don't think he came up for air while he told her everything we had done.

[littlepea72]

You know Scout, in 18 months they could have found some other way of doing it. But also, Seb will be at school part time, so at least you could rest then. And its good that he can play away on his own, you dont need to be on the floor all the time with him. Lots of dvd time x

Being home is great. Apart from a nightmare with schooling for Ethan again! They are going to send a home tudor for a while. Faith will start pre-school in September, and we have to see about getting Gabe into a special needs nursery. Its hard being here on my own again, but its worth it, being close to my family.

Girl????

[fidelma]

Scout I am sure all will go well.Hard waiting perhaps? Is there a chance you won't need to have it? Also i think you are going to homeschool?

Which almost sounds what you are having to do littlepea, I hope they sort out schools for you very soon.Are all your family near by?

Life is hectic as usual.sadly I have been feeling unwell,turns out I need my gallbladder out! Fair,Fat and 40! I am none of thoes things yet! (well 40 next year,gulp) hopefully I wont have to wait too long.should be 12 weeks max. (but I want it done next week)

Children growing up so fast.Nursery for Connor in August. He is fun fun fun.I am enjoying him alot.

Hope to hear from you all soon xxxx

[Scout19075]

fidelma, gah, I wish I wouldn't need it but unfortunately I do. It's not something that will go away on it's on. And if it doesn't go away it could/will start to attack my liver which, well, we all know what happens when you have no liver/liver function. However, on a positive, I've had this awfulness for 29 years and have a perfect liver and that in itself is a miracle.

I will hold on to my miracle. I also hold on to my baby boy who, if it weren't for him, I would still be clueless about this awfulness and what we don't know about could kill us.

fidelma, bah about gallbladder. Double bah about the wait but three months (12 weeks) really isn't too long compared to some waits I've heard about.

Yes, the plan is to home educate. I should start treatment in the middle of our little ones' reception year. I'm glad we made the decision to keep him home with this treatment I need to be at the hospital for 8 a.m. two-four times a month, which means I need to leave by 7 a.m. to avoid YOUT traffic, park and get through the hospital to the blood-letting room. Which means I would need to drop S off at a school friend's for 6:30 a.m. I mean, GAH! I can't rely on MrScout for school drop-off/collection as his job takes him away/travelling regularly, sometimes at short notice. And really, no new school-gate friend is going to want to take my reception-aged child at 6:30 a.m. up to four times a month. He comes with me to all of my appointments now anyway the clinicians, nurses, HCAs, receptionists, etc., all seem to love him. We go to appointments armed with snacks, picnics, books, puzzles (his magnetic tangoes/tangrams are a big hit for hospital waiting), mazes, etc. He learns about life by going with me but we spend a lot of quality time waiting around for doctors (my cardiology clinic ran over two hours late a few weeks ago, plus we had already been at the hospital for two hours for my pre-appointment tests so spent a good four hours or so at YOUT hospital).

[fidelma]

I now have no gallbladder! Dr managed to get me in on the emergency list :) however it was the toughest thing I have ever done. I couldn't hardly think about my children. The oo was very successful just the anaesthetic knocked me totally sideways! I have never felt sooo rough in all my life. I have been very dick do now on antisickness which is helping.
My friends husband did the op! Amazing. I won't be moving much for a few weeks.

Scout you sound like you have made the right decision for Seb. I can only imagine how hard it is. I think you are amazing. Xxx

[fidelma]

Omg just read my post back you have to laugh!

[Scout19075]

Painkillers are ace, aren't they fidelma?

[fidelma]

On the mend. Loving the gorgeous weather and light nights.
helloooooooo out there! x

[littlepea72]

Hello my wee lovies!!!

Fidelma you have been through the wars! Are you ok??

Scout any results back???

[Scout19075]

How are you, fidelma?

Biopsy had good results, littlepea, so now waiting for 2015 and the drugs to begin.

S and I are starting to prepare for the Fourth of July (next Thursday). The local air bases aren't running their annual 4th celebrations this year so I'm making our own fun for the day. Disappointed, really, because S and I had a great time up there last year (AND I got to have a mid-year root beer it's all about the root beer! and I got to be amongst my people, if for just a few hours).

We're enjoying the decentish weather when/while we can!

[littlepea72]

Hi Scout!

Good news on your tests :)
What did you end up doing for the 4th July cels? I remember 15 years ago, being in Texas, and we were really looking forward to them, and nothing happening....a bit embarrassed when a guy told us they didnt do 4th July in Texas LOL....how Irish were we!

Where are you all!!!!! xxx

[Scout19075]

littlepea, Fourth of July was okay. The local RAF/US Air Bases didn't do their annual 4th of July Fun Fair/Concert/Military fly-by(s) & air show/fireworks so I ran an American themed afternoon for some HE families/friends. Just some activities and an afternoon of running around the park playing on the playground and playing pooh sticks (my park has a fab playground for all sizes, great fields to play in and a couple of wooden bridges (one higher than the rest) over the river that are perfect for pooh sticks). I also had a root beer -- MrScout had bought me two cans a few weeks before and not able to remember which brand was my favorite he bought one can of each so I saved my favorite brand of American drink for my truly American holiday.

Feeling rather blah at the moment. Need to give myself a swift kick.

We've been out and about every day, enjoying the weather. We've also been having regular "picnic dinners" to stay outside. After swimming today we spent most of the afternoon at the park with friends, came inside briefly while I sorted dinner, then went back out under the tree for a picnic until the start of bedtime routine. Our flowers and other plants are doing well it appears S has a green thumb. He loves "giving the marigolds/lavender/sunflower/Christmas trees/potatoes a drink of water so they can have their food and grow and grow and grow!" It's now become one of his jobs checking the plants and watering them.

I think we're going to YOUT tomorrow to go around the shops and maybe to the science museum (we have an annual family membership and S loves it there).

[Scout19075]

You haven't been patronized until you've been patronized by a three-year old.

Oh dear, help me!

[littlepea72]

Crazy times here, we have just bought a house and my DS1 has gotten into a great special needs school!

Hope you ladies are ok, not very many on here now

[Scout19075]

Oooh, very exciting stuff, littlepea.

On holiday in Devon right now. Going back tomorrow so will update then.