fidelma, gah, I wish I wouldn't need it but unfortunately I do. It's not something that will go away on it's on. And if it doesn't go away it could/will start to attack my liver which, well, we all know what happens when you have no liver/liver function. However, on a positive, I've had this awfulness for 29 years and have a perfect liver and that in itself is a miracle.
I will hold on to my miracle. I also hold on to my baby boy who, if it weren't for him, I would still be clueless about this awfulness and what we don't know about could kill us.
fidelma, bah about gallbladder. Double bah about the wait but three months (12 weeks) really isn't too long compared to some waits I've heard about.
Yes, the plan is to home educate. I should start treatment in the middle of our little ones' reception year. I'm glad we made the decision to keep him home with this treatment I need to be at the hospital for 8 a.m. two-four times a month, which means I need to leave by 7 a.m. to avoid YOUT traffic, park and get through the hospital to the blood-letting room. Which means I would need to drop S off at a school friend's for 6:30 a.m. I mean, GAH! I can't rely on MrScout for school drop-off/collection as his job takes him away/travelling regularly, sometimes at short notice. And really, no new school-gate friend is going to want to take my reception-aged child at 6:30 a.m. up to four times a month. He comes with me to all of my appointments now anyway the clinicians, nurses, HCAs, receptionists, etc., all seem to love him. We go to appointments armed with snacks, picnics, books, puzzles (his magnetic tangoes/tangrams are a big hit for hospital waiting), mazes, etc. He learns about life by going with me but we spend a lot of quality time waiting around for doctors (my cardiology clinic ran over two hours late a few weeks ago, plus we had already been at the hospital for two hours for my pre-appointment tests so spent a good four hours or so at YOUT hospital).