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Politics

Which Political Party will introduce Blood Test Screening Kits for vCJD?

11 replies

Beaaware · 21/04/2010 10:45

At present there are no blood test screening kits in use to screen UK donor blood, anyone could be carrying the lethal vCJD pathegons and be spreading vCJD through blood, organ & tissue donations. Since 1980 many people have died of vCJD as a result of receiving infected blood. At least 5 people in 2005 were given blood transfusions from blood doners who later developed vCJD. Currently France screens donor blood anonymously using Blood Test Screening kits which are highly effective, France considers the health of its nation as priority unlike here in the Uk where it is hit or miss whether you receive unscreened blood,tissue or organs potentially riddled with vCJD. It also reported that BSE remains in our food chain in 2010, a farmer in the UK has recently been prosecuted for feeding his animals bovine material feed which is meant to be banned, these animals were destroyed as a result. Sadly the latest victim currently dying from vCJD is a young man aged 25 "Dean Burrell" from Norfolk, he wil leave behind 2 young children and a wife, but nobody will give his family answers as to how he developed this lethal disease. The youngest victim to die from vCJD to date is was 11 years of age.
Many new mothers receive blood transfusions when they lose a lot of blood during child birth, here on mumsnet mothers who have ahd blood transfusions after childbirth have shown their concerns that they are no longer allowed to donate blood,tissues,bone marrow,eggs or breast milk, and may now be at risk of developing vCJD, this is a fact. Anyone concerned should look up the department of healths latest advice of how to stop the spread of vCJD to other people.
For over 25 years now we continue to be exposed in one form or another to vCJD, this is a national scandal, I challenge any political party to be honest and upfront with the true facts of BSE & vCJD, and why they can't protect our blood supplies?

OP posts:
azazello · 21/04/2010 11:21

None of them because there isn't a reliable test, or for that matter absolute consensus about how it is caused given that the identified 'prions' seem to affect an awful lot of people who haven't so far developed VCJD so therefore appear not to be the whole story.

Beaaware · 21/04/2010 11:37

Yes actually there is a reliable test manufactured by a Canadian Company called "Amorfix", their test kits are highly reliable and are currently in use in France where all blood donors are anonymously screened. The difference bewteen France and the UK is that the French Government are more concerned about the health and well being of their citizens at any cost and so far have found the testing of blood for vCJD highly effective. I ask the question WHY can France use Blood test screening kits but not the UK, we are a HIGH RISK nation, we have more deaths than any other country from vCJD. Latest victim currently dying from vCJD is Dean Burrell aged 25 from Norfolk, maybe he was given infected babyfood, vaccines, surgical instruments. Will he be added to the national statistics, some victims are some are not, we will never know for sure how many people are dying from this lethal disease. Surely safe blood is paramount, would you want a blood transfusion from a donor carrying the vCJD pathagons, I would not. Governments are ignoring this, only if you are under 13 years of age will you be guaranteed so called safe filtered blood.

OP posts:
azul1 · 21/04/2010 11:41

It is correct that there is no validated screening test for vCJD. However, there is a prion reduction filter that a govt expert committee has recommended for use in kids born after 1996 receiving red blood cell transfusions. The question is which party will adopt this recommendation and gradually implement prion filtration for the population as a whole. The answer may well be the Conservative Party based on the recent debate in the House of Commons!

www.theyworkforyou.com/debates/?id=2010-03-18b.1075.0&s=prion+filters+segment%3 A20714472#g1075.2

Paul Beresford (MoleValley, Conservative)

I suspect that thereason for the professor's opinion is that it is extremely difficult todetect the prion. However, there is afeeling-correctly-that the precautionary principle should be applied,although hopefully in a sensible manner.

Withthat in mind, I draw the Minister's attention to the decision in April2007 by the chief dental officer that dentists should not reuseendodontic reamers and files-by that, I mean single-patient use. This, Iunderstand-I may be corrected-was derived from research on mice thatwere particularly susceptible to variant CJD. The basis of thisthinking is that the removal of the prion fromstainless steel reamers is difficult, as I think we all accept.Stainless steel reamers are cheap and so not a particular economicproblem, even for dentists claiming that their fees are not largeenough.

Nowadays, however, most endodontists, orthose doing serious amounts of endodontics, are using nickel titaniumreamers. A number of specific designs are used in different techniques.Reputable nickel titanium reamers are expensive. I also understand thatcleaning the prion off nickel titanium is mucheasier than taking it off stainless steel. Treatment for a tooth thatneeds endodontic treatment is therefore made very much more expensive.It is time-consuming if done properly, especially if molar root canal isinvolved. The unit of dental activity award for molar root canal issmall, especially when compared with the alternative treatment, which isextraction using-surprise, surprise-stainless steel forceps, where thesame prion difficulty would apply. That mightexplain the apparent increase in NHS extractions andreduction in NHS endodontics-I expect a letter from the BritishDental Association telling me I am wrong.

Anumber of questions arise. Many stainless steel instruments and burs areused in dentistry, including forceps. If the research on thesesusceptible mice was so conclusive, one questions why the chief dentalofficer chose those reamers and whether he thought about extending hisban further. Of course, if he did, he would have to face the problem ofprobability versus application of the ban versus cost. Should the banapply only to stainless steel reamers? Should it not be applied tonickel titanium? In 2007 D-Gen and DuPont produced a new prion disinfectant called RelyOn prioninactivator to remove or de-activate the prionon instruments. I would be interested if the Minister could tell me-if not tonight, certainly ina letter-whether that product has been tested, because if so, it wouldbe sensible to introduce its use into the new onerous disinfection andsterilization regulations that dentists are now facing, before theregulations are finalised. That would be better than landing it on abeleaguered dental practitioner after he has installed the equipment formajor changes that are coming through.

In 2001,the Departmentof Health allocated £200 million to modernise NHS surgicaldecontamination, along similar lines to that descending on dentists now.Attempts have been made to produce single-use instruments for somesurgery, and I understand that plastic instruments were developed fortonsil surgery but proved a failure. New rules have also been brought inon contact lenses, and it would be interesting to see whether thosewould be applicable or useful.

However, the wayforward has to be blood transfusion filtering.Some 1.8 million blood units are donated in the UK annually, and SaBTOhas recommended the immediate P-Capt filteringof all blood for children. In the Prime Minister's letter to me, on11 February, following myquestion on this subject, he said that the introduction of the filter should be subject to the satisfactorycompletion of a clinical trial. I assume that he was referring to theongoing-long ongoing-PRISMstudy. I understand that the study is way behind schedule. There areprevious studies-I can draw the Minister's attention to them, if theyare not in her notes-and, as I have said, the filterhas a CE mark.

I ask the Minister to move now on blood filtering,initially for children and then for all. If it is good enough for theDepartment of Health to use the precautionary principle for endodonticfiles after questionable thought, the same principle should be appliedto blood transfusion filtering. Action onendodontic files is essentially fiddling around the edges. Bloodtransfusion filtering is central to reducing orstopping blood transfusion transference of prions,to the benefit of future generations. I am sure Health Ministers wouldnot like to be named in what I will call an "If only we had" report in20 to 40 years, when people are dying from variant CJD.

azul1 · 21/04/2010 11:49

Be Aware, please see a recent press release from Amorfix below and you will understand why the blood screening test by this company has not been adopted here int he UK. In short it is not sensitive enough to detect vCJD in people who unfortunately are currently suffering from this disease.

The only device available to reduce vCJD risk tthru blood transfusion is the P-Capt filter manufactured by Macopharma. A govt expert committee has recommended its use in children only. The previous Labour govt was awaiting the results of the PRISM clinical trials before considering this recommendation.

AMORFIX CORPORATE UPDATE:
AMF CURRENTLY DEVELOPING SIX PRODUCTS WITH
FIRST SALES FOR AMYLOID PRODUCTS ALREADY ACHIEVED AND
FIRST TEST OF vCJD PATIENT SAMPLES
TORONTO, Ontario ? December 29, 2009 ? Amorfix Life Sciences (TSX:AMF), a company
focused on treatments and diagnostics for misfolded protein diseases provides a corporate
update on its six (6) product development
DIAGNOSTIC PRODUCTS
Blood Test for variant Creutzfeldt-Jakob Disease (vCJD): The Company continues in the
UK National Institute for Biological Standards and Control (NIBSC) process to obtain and test retained blood samples from clinical-stage patients who have died and been verified to have vCJD. The NIBSC provided three plasma samples from three different patients which the Company tested using the first generation of the EP-vCJDTM test. The samples tested negative
and NIBSC has concluded that the first generation test is not sufficiently sensitive to detect infected human blood samples.

Beaaware · 21/04/2010 11:59

My sister was given a UK blood transfusion in 2008 she was not told that there was a vCJD disclaimer on the donated blood, she was not told that she could never donate her organs, tissue, eggs, breast milk or blood in the future, she was not given any advice on the spreading of vCJD/CJD. Now according the the Department of Health's website under the banner "PUBLIC HEALTH ADVICE ON HOW TO STOP CJD SPREADING TO OTHER PEOPLE" anyone who is at INCREASED risk of CJD (i.e had a blood transfusion) is advised to follow their advice:

1.DON'T DONATE BLOOD, NO-ONE WHO IS AT INCREASED RISK OF CJD OR WHO HAS RECEIVED BLOOD DONATED IN THE UNITED KINGDOM SINCE 1980 SHOULD DONATE BLOOD

2.DON'T DONATE ORGANS OR TISSUES, INCLUDING BONE MARROW, SPERM, EGGS OR BREAST MILK

3.IF YOYU ARE GOING TO HAVE MEDICAL, DENATL OR SURGICAL PROCEDURES TELL WHOEVER IS TREATING YOU BEFOREHAND SO THEY CAN MAKE SPECAIL ARRANGEMENTS FOR THE INSTRUMENTS USED TO TREAT YOU.

  1. YOU ARE ADVISED TO TELL YOUR FAMILY ABOUT YOUR INCREASED RISK. YOUR FAMILY CAN TELL THE PEOPLE WHIO ARE TREATING YOU ABOUT YOUR RISK OF CJD IF YOU NEED ANY MEDIACL OR SURGICAL PROCEDURES IN THE FUTURE AND ARE UNABLE TO TELL THEM YOURSELF.

last reviewed 16 July 2009

I ASK THE QUIESTION WHY WAS MY SISTER NOT GIVEN THIS INFORMATION AT THE TIME OF HER BLOOD TRANSFUSION IN 2008?
HOSIPITALS ARE CLEARLY NOT GIVING ADVICE OR INFORMATION TO PATIENTS WHO HAVE RECEIEVED DONATED BLOOD, ORGANS OR TISSUES.

How on earth are we ever going to stop the spread of vCJD if we cannot give advice to those at increased risk.
We must follow France's example and use the latest BLOOD TESTING KITS.

OP posts:
Beaaware · 21/04/2010 12:03

azul1

As I understand France is using the Amorfix tests very successfully.it begs the question why do we not follow suit?

OP posts:
azul1 · 21/04/2010 13:09

Be Aware, is France just testing Amorfix's vCJD screening kit or has the government formally adopted the blood test? The Amorfix test has not yet been adopted in England because it failed to test positive in blood samples known to be infected with vCJD. With such evidence I find it difficult to believe the French have formally adopted this test as it would be a total waste of money!

As I mentioned previously the P=Capt filter is the only device to reduce vCJD in the transfusion of red blood cells. Because of the risk involved, I firmly believe that there should be universal adoption of the filter now and not just for kids.

Review of this precautionary device can be undertaken when a blood test for vCJD has been validated and the issue of false positives adequately addressed.This could take another year or two. That is why it is important to adopt the filter as quickly as possible as called for in the private members Contaminated Blood Bill.

For your info, the Labour govt objected to this Bill during 2nd reading on several occasions thus eliminating the chance of it being adopted before the election. You may want to check out the Tainted Blood website.

Beaaware · 21/04/2010 16:29

The most recent update on Amorfix Life Sciences website informs that as at October 2009 at total of 39,000 blood donations have been tested at two EFS blood transfusion centers in France with a specificity of 99.95% exceeding the 99.85% specificity required by the UK Blood Transfusion unit.

Whether we adopt a blood test screening kit or the P=Capt filter, I think that it is grossly unfair to select an age group (under 13) that will only receive the filtered vCJD free blood here in the UK.

The fact that blood has to be filtered at all is an admittance that UK blood is not free from vCJD prions.

All I want to know is which political party has the will to introduce complete screening/filtering of all UK donated blood therefore protecting the whole population and not just a minority.

OP posts:
azul1 · 21/04/2010 17:00

Based on the House of Commons debate, it seems to me that the Conservatives are more inclined than Labour to take universal action on vCJD, although I do not know what the LibDEM response would be.

Beaaware · 21/04/2010 17:28

I do find it rather ironic that the Conservative party are more iclined than Labour to take universal action on vCJD when it continues to allow Kenneth Clarke to play an active role as Shadow Minister for Business.

Was he not one of several Conservative minister's whom under the John Major leadership in the 1980's kept vital information about BSE & vCJD out of the public domain? The answer of course is Yes, and I am afraid I could not trust the Conservative party as long as this man remains involved, he lied then,and now we are living with the consequences of his then policies on BSE.

I have a very interesting article written by Kevin Toolis from the Guardian Weekend Magazine dated 22.09.01 here is a quote:

"BSE IS PROBABLY THE MOST CYNICAL ACT OF BIOLOGICAL WARFARE EVER WAGED AGAINST A CIVILIAN POPULATION BY A WESTERN GOVERNMENT, THE BRITISH GOVERNMENT PUT THE NARROW MINDED BUSINESS INTERESTS OF IT'S FARMING INDUSTRIES BEFORE THE HELATH OF ITS OWN POPULATION AND THAT OF OTHER COUNTRIES"

Even though it is 25 years since BSE raised it's ugly lethal head, today people of all ages are still dying from vCJD, we just do not read about it in the news, it's as if there has been a blanket ban on reporting deaths of vCJD victims.
One gets the impression that this subject of vCJD and unsafe blood is being kept tightly under control by the powers that be, the less people know about it the better. All very well unless you are faced with the prospect of an organ transplant or blood transfusion.

OP posts:
azul1 · 21/04/2010 20:57

I guess you have answered your own question. Why don't you check with the LibDems about their policy stance on this issue.

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