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Original poster

The NHS fails disabled people.

16 replies

Notthefullshilling · 26/04/2012 10:53

I enclose a link to a FB page that gives the story of a little boy, an award winning little boy who is being denied an education as a result of lack of care that should be provided by the local health board. That though is not the sole point of my posting, we have now got evidence of a nhs board already not fulfilling it's duty to a minority community, how much worse will it be in England where Lansly's reforms kick in and budgets are spent on those who shout loudest.

Mental health, community services, specialists services will all be lost and it is coming to a surgery near you soon!

www.facebook.com/groups/331776460219176/

OP posts:
2shoes · 26/04/2012 10:55

can you explain a bit please

Original poster
Notthefullshilling · 26/04/2012 11:11

Explain what 2shoes?

OP posts:
2shoes · 26/04/2012 11:15

sorry I looked at tha fb page, but it didn't seem to explain why he can't go to school

thisisyesterday · 26/04/2012 11:17

2shoes, at the top where it says

"Let Adam Go To School highlights the failure of NHS Lothian to meet its legal duty to provide a nurse to enable 12 year ...See more"

click on the see more for the full story

Original poster
Notthefullshilling · 26/04/2012 11:21

Thanks THIS, what do you think of the story?

OP posts:
CogitoErgoSometimes · 26/04/2012 14:00

Thought Mr Salmond was keeping his version of the NHS valiantly unchanged and lavishly funded? Hmm

madwomanintheattic · 26/04/2012 14:10

I think I'm more surprised that the LA have actually to fund and have handed over the cash, than I am that the nurses keep cancelling tbh.

It is v sad.

Unfortunately, many children with disabilities are unable to attend school due to the fact that the schools take soooooooo long to employ 1-1 staff for them (and have no back up for that 1-1 on short or long term sickness) so it is by no means an isolated problem, and by no means limited to the NHS.

V sad all round.

madwomanintheattic · 26/04/2012 14:15

Sorry, have agreed. Missed a word out. Am not surprised they have to. Just they they agreed to it.

Has he been receiving the education not at school tuition in lieu of attendance?

2shoes · 26/04/2012 15:09

thanks, didn't realise I had to click on that bit (blush) have read it now.
very sad and wrong, but not that unusual., would have to know more about the school before really judging, wonder if it is more than a nurse that is needed to support him in ms.

madwomanintheattic · 26/04/2012 15:18

And sadly, not the only way the NHS fails children with disabilities. Have lost count of the number of children that require, for example, stability shoes and orthotics to be able to stand and walk, and due to the waiting time between measurement and fitting, have outgrown shoes they have never worn, and then get another several months wait.

Or the children who have surgical procedures to lengthen tendons, but no physio follow up, so the tendon heals short again.

Or... Actually, I won't go on. There are thousands of ways that limited staffing and money is letting down NHS patients with disabilities.

This story is v sad, but by no means limited, and unfortunately doesn't give enough information to be able to make a sensible judgement other than he is clearly being let down by someone.

Original poster
Notthefullshilling · 26/04/2012 23:47

what further information would you find helpfull Madwoman? A link on the fb page to a previouse newspaper article exists. The mother posts updates most days, the bare facts are to hand on the FB page. But ultimatly no one is asking for sympathy nor any one elses judgment, it is a private issue made public to highlight how disabled people are having services taken away.

I would suggest the things you describe ar not unrelated in terms of the origin of the problem, or how it effects the life experience of those you have knowledge of and this little boy, in the end it comes down to disabled people being seen more of an expence than humans.

OP posts:
madwomanintheattic · 27/04/2012 00:41

not disagreeing.

but as i said before, if the nhs aren't able to provide a nurse, does he then receive a tutor from the LA, or they are equally culpable? is it possible for a care plan to be put in place so that a member of the school staff can be trained to provide whatever health support that adam needs? (difficult to know without knowing what his illness/ health concern is, and why he needs 8 hours a day of nursing coverage.)

couldn't see the link to a newspaper article tbh. but sadly most people unless they have personal links have become anaesthetised to these fb pages.

if you weren't posting for judgement or sympathy, and just to state a fact, then ok. yes.

the nhs does fail people with disabilities (nb - not 'disabled people' as in the title.)
so does the education system.
so does society.

job done.

does the fact that he is award winning make him more deserving, btw? Grin isn't that falling into the same trap? Grin

incidentally, i don't think you are right and this NOT a cost issue. the LA have agrred to pay the nhs. the issue is solely of the nhs getting off their sorry backside and allocating a nurse, or team of nurses, that will actually turn up. the money is not the point, it had alsready been agreed and is on the plate. so in this one instance, the nhs aren't refusing to provide a service because they won't fund it - they HAVE the funding. the issue os one of petty bureaucracy and deserves to be shamed in the local press.

2shoes · 27/04/2012 10:50

sadly people with disabilities are being failed all round.
as I said before I do wonder if this is more than the ;ack of a nurse, even with a nurse she would need back up.
there are young people at my dd's school that need that level of care and they are all in school,.but the school has the back up of doctors and nurse on site.
Like the other poster I can't quite get why the bright and award winning stuff is in it, does that make him more in need?
I should imagine finding a nurse that can commit ot working every day with no sickness or holiday it impossible.

WetAugust · 27/04/2012 23:38

It's the Scottish Government that are letting down disbaled children in Scotland.

In England there are Statements of Edicational Needs that are legally enforceable. These don't exist in Scotland. Until they do disbaled children in Scotland will contine to be let down.

On the SEN boards we constantly see parents of disabled children who live in Scotland having very few avenues open to them in the absence of Statements.

2shoes · 27/04/2012 23:49

I would still like to know more. there is nothing on the FB page that really gives an insight to
why is MS the best place for him? I live in the sn world. and have to say often MS cannot deal with complex needs.

WetAugust · 27/04/2012 23:54

Why single out the NHS anyway?

As the mother of a son with SNs he's been let down by: NHS, Local Authority, Police, ........

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