Sorry to hear the news about the local litte boy.
I just wanted to add that suffering is really hard to understand in most faiths. From a Christian perspective I believe it was not part of the plan, pain and death were consequences of the fall (man deciding not to follow God) and the bible says there will be no more tears or sickness in heaven.
We all have to die at some point. We feel it's tragic when someone young dies, but actually it's also tragic (but less so) when anyone dies. If someone was very sick we can say it's best their suffering has ended, but if you could chose to end the suffering without them having to die that would surely be better?
Part of why God allows suffering is because he allows our free choice, so if I chose to hit you that causes you pain. God can either allow your pain and my free will or allow neither. So much suffering is man made, whether it's emotional hurt, violence, famine, selfishness leading to community or family breakdown etc.
But none of the theological arguments are satisfying really, especially in the case of a young person who is sick through no fault of anyone's.
If you want to understand more about the Christian point of view on this then CS Lewis (of Narnia fame) wrote a book after his wife died called "a grief observed". The Alpha course also has a week on this topic, which I think you can get in book format or DVD from holy trinity bromptons website or bookshop.
When my son was critically ill I found it a huge help to have a "sure and certain hope" that one day I would see him again in heaven. It was a time of raw grief and shock too, but without that belief I think I would have crumbled. Luckily he eventually pulled through, but I will never forget that time and how helpful it was when a few nurses realised we were Christian and said they were praying for us.
I do agree it should be something led by the family in the situation, and it is not the time for prolytising by someone with different beliefs. If the family do profess a faith then friends and medical staff who share those beliefs can be a great comfort.