It’s absolutely true. I only got a PIP award in the end because I read the criteria after my second refusal and took it to tribunal. The PIP assessors were both absolutely obsessed with the fact I was in work. They clearly thought it was a “gotcha” issue. Two different geographical areas, several years apart.
So many claimants report similarly, so it’s quite obvious why PIP continues to disproportionately go to those who are out of work. Most disabled people who are in work, don’t have time or energy left over to pursue tribunal cases. I only attempted it when I had the flexibility of freelancing.
Even then, my main driver in pursuing it was my fury that they were ignoring their own criteria and all the evidence I gave them of the adjustments and additional expense it takes to keep me in work.
I’m by far (multiples) the higher earner in my marriage but I wouldn’t have got to my current level without throwing a lot of extra money at the issues that have cropped up over the years. I probably would have done PT and coasted. Not everyone has the funds spare to back themselves, and disability costs are high.