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DS22 with chronic ME - financial support

7 replies

DesertIslandDreams · 26/02/2024 11:48

DS (23) was diagnosed with ME 2 years ago. He's hoping to graduate this summer. University has been a struggle, but he was determined to get through and has been a part-time student since his diagnosis. We're very proud of him for getting through it. There have been lots of times when he's been so ill we've thought he'd have to stop.

He spends most of his time in his student flat. He has no strength to walk anywhere and is wiped out by the odd trips he does manage on buses or by taxi. He can work on his computer about half time, but not in any regular way as he doesn't know how well he will be from one day to the next. He has next to no social life outside the flat, but luckily has good supportive flatmates.

So next year it will all change. He desperately wants to work and feel he's doing something, and could manage something that is part time and online. He's already in receipt of PIP and we're now investigating whether he'll be eligible for universal credit. He has a lot of hospital appointments for an unrelated health condition and it makes sense for him to stay where he is and where his few friends are staying on next year. Where we live is very remote and he'd be totally isolated if he comes home. We've helped to support him financially through university but aren't in a position to keep this up indefinitely.

Has anyone else been in this position? Would he be likely to be awarded UC if he's able to get some part-time work? He has almost no savings now but did in the past (which have been used up through university). What do you have to show in terms of bank record to show your financial status? Or does UC just have access to see your bank account?

Any advice/experience really appreciated. Thank you.

OP posts:
MeMyCatsAndMyBooks · 26/02/2024 11:59

UC for a single person isn't much, so it depends how much he earns to if it wipes it out.
Also he'd only be entitled to one bed rate of that LHA area.

But yes he would be entitled long as it doesn't wipe out his entitlement, maybe look into LWRCA but that requires sick notes & an assessment.

DesertIslandDreams · 26/02/2024 13:55

Thank you @MeMyCatsAndMyBooks - that's helpful. My understanding of LWRCA is that it's for people who genuinely are unable to work. DS wants to work, but can't work full time (and has medical notes to back that up). Seems like he falls into hole between people who can't work and have support that recognises this, and those who are well enough to work enough hours to fully support themselves.

Does anyone else have experience of this?

OP posts:
Octavia64 · 26/02/2024 13:58

My DD is in a similar position.

She will graduate in the summer and will then be looking for work, almost certainly wfh and probably something computer related.

No ideas, sorry but following with interest.

What is his degree in?

DesertIslandDreams · 26/02/2024 20:05

@Octavia64 Sorry to hear about your DD. It's so hard for them. DS is studying psychology and is hoping to find something research/data based.

OP posts:
seedsandseeds · 27/02/2024 05:18

MeMyCatsAndMyBooks · 26/02/2024 11:59

UC for a single person isn't much, so it depends how much he earns to if it wipes it out.
Also he'd only be entitled to one bed rate of that LHA area.

But yes he would be entitled long as it doesn't wipe out his entitlement, maybe look into LWRCA but that requires sick notes & an assessment.

He wouldn't be entitled to one bed rate but shared house rate due to his age. At least that was how it was a few years back.

seedsandseeds · 27/02/2024 05:19

OP will he be able to work part time or is it more of a wish? He may be entitled to different elements if not.

TheLadyIsAVamp · 27/02/2024 05:36

You can receive LCWRA whilst working as long as the reasons you're claiming don't contradict why you're receiving LCWRA if that makes sense? He would need to inform them of his health condition when he applies for UC, provide a fit note and wait for an assessment. It is usually 3 months before you can be awarded the LCWRA I believe. It is around an extra £390 pm on top of the standard single persons rate of UC which for under 25s is around £290pm. Support for housing varies on area, in my area it's £110 a week for a single person under 25 privately renting but can be more if in a housing association property.

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