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Parents of adult children

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Adult son with autism - struggling with life

83 replies

MargoLivebetter · 23/10/2023 16:25

It's been a while since I posted but I could do with some MN wisdom or thoughts.

DS is 24 and back at home after graduating two summers ago. He was diagnosed with Autism when he was 7 and back then it was described as "High functioning". I know that all the definitions have changed but basically on a superficial level DS can cope with every day life. He can interact in a fairly neurotypical way for short periods of time, sufficiently so that on first meeting him you wouldn't necessarily know he was Autistic. If you spent more than 30 minutes with him, you probably would.

Behind the scenes, so to speak, he struggles with anxiety, decision making, executive functions and basically cannot cope with more than one issue at a time. He is severely dyslexic and has a long list of specific learning difficulties, all of which mean that he finds the day to day admin stuff of life really challenging.

He is bright and got a good degree and had all sorts of plans about going travelling. He was going to do some temporary jobs and go travelling, but that is getting kicked down the line and he got very down and depressed doing a grueling seasonal job working really long hours in customer facing roles that he struggles with. He has got himself another "temporary" job doing bar work and the travel plans are again kicked down the road. We are now talking or February next year.

He also has a complicated gastric issue, that has been diagnosed but that he is very bad at taking the medication for. He gives me reasons why he doesn't like it and prefers to self-medicate with weed. He has discussed this with his consultant and has a medical dispensation card for this. He also self-medicates by drinking too much. He drinks pretty much every day. I think he uses both to calm the constant stress and anxiety he feels. I hate both, the alcohol almost more than the weed.

Is there any help out there for autistic adults? I know my own anxieties for his future are an issue here too. I think it would be helpful if he could talk to a careers advisor for autistic people or a counsellor who could understand some of his autistic problems, who isn't me. I'm worried that I'm becoming more of a hindrance than help and I'm starting to worry myself into a ball of stress about him and that isn't good for either of us.

OP posts:
HalloumiGeller · 19/01/2024 20:22

I'm sorry to hear that your son is struggling so much, its so hard to deal with as a parent as we worry what their future holds 😔. Its great though that he has a degree and passed his driving test, 2 big achievements IMO.

The alcohol bothers me more than the weed, so that would be something I'd want to work on first, as I find potheads much nicer people to be around than pissheads, plus I think alcohol is more damaging.

HalloumiGeller · 19/01/2024 20:24

MargoLivebetter · 13/11/2023 15:13

A follow up question. DS is very reluctant to tell employers that he is Autistic. I understand this but think it is possibly a mistake. What do your adult children do?

My partner has this same dilemma. We are almost certain he has ADHD, but he is always reluctant to disclose this to his employers through fear of being treated differently or having it used against him. However, his last employer were actually amazingly understanding about it and made adjustments for him, which was fab.

longpathtohappiness · 21/01/2024 14:45

Having a pants day, DD is autistic and DH and I. DH is of course can strug it off but I take her outbursts to heart

Rarewaxwing · 21/01/2024 17:58

@longpathtohappiness - sorry you've had a tough day ⚘️. Do something kind for yourself this evening - watch a favourite TV show, soak in a bubbly bath, eat chocolate. I hope tomorrow is a better day.

Namechange4976 · 12/02/2024 21:39

My situation is my adult son who is in his thirties has changed a lot in recent years. He moved out a year ago, and now hardly has any contact with me. When I see him he lambasts me for one thing or another, is unkind and upsets me. He hardly ever visits. I am absolutely at my wits end about what to do. I worry a lot about him and feel he is struggling a lot but I just cannot connect with him any longer and it makes me so sad. He is his own worst enemy.

stomachameleon · 12/02/2024 21:49

@Namechange4976 if he is rude to you and lambasts you then put some distance between you and cold shoulder him. That's what I do. Just because they are autistic doesn't mean they can't be told they are upsetting you.
Let him make some effort with you. Why are you chasing him?

Namechange4976 · 12/02/2024 21:50

I'm not really. I haven't seen him for weeks and haven't been chasing him at all. His brother is visiting for a few days and I wanted to know if he wants to come over. He has severe depression, not just on the spectrum so its more complicated.

stomachameleon · 12/02/2024 21:56

Sorry have you name changed again?

I wasn't getting at you. I understand completely and I am guilty of doing the same. Could your other son not message him and ask if he wants to come over? Remove the need for you to do it.

He has to want to help himself. You can always be available but personal responsibility is key. (In my opinion)

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