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Parents of adult children

Wondering how to stop worrying about your grown child? Speak to others in our Parents of Adult Children forum.

anyone else with an adult child with severe mental health problems?

17 replies

FlyMeToMars · 11/04/2022 15:12

I have name changed as a lot of our family is on here

I wasn't quite sure whether to post this under Mental Health/SN but as he's an adult, I figured this was the best place!

Ds is 21 this year. As he has got older, his 'differences' have become more pronounced. He has an official diagnosis of major depression with psychosis and takes both anti depressants and anti psychotics. He used to self harm a lot and the medication has largely dealt with this. There is a long family history of bipolar disorder and we suspect at some point, maybe when he's a bit older, that this is where his diagnosis may sit. For now, we are just pleased his symptoms are being managed.

He is a very bright boy which is part of the problem because he constantly has ludicrously high expectations of himself which he can't always meet. He went for the hardest university to get into with his grades and got in and now has to work incredibly hard just to manage to keep up with the course. We tried to persuade him to take a slightly easier option but he was having none of it.

He has spent 2 years living in residence and now needs to find somewhere outside but he has no real life friends as his first year was the lockdown year so he had no fresher's week and he's not outgoing. He also comes across as 'different'. I don't mean that in a nasty way but if you met him, you'd immediately know there was something wrong with him. He doesn't engage properly, if he doesn't want to talk to you, he won't. He came home this weekend and had a big family lunch with us all but refused to look up from the table and when I asked him not to be on his phone (we have a no phones at the table rule), he snarled at me and just carried on.

It might sound like he's rude but it's almost as though as he's got older, he's got worse at fitting in. At school, there were expectations of him and I think the stress of making himself fit in is one of the things that caused the self harming. He is now happy with this introverted life where he has little contact with others.

My big problem is what he is going to do about work. At school they had a work experience thing but nowhere would accept him so eventually he came to my work. He lasted 2 days and never came back. He got so wound up he almost ended in crisis mode. He's never had a job since then and I have no idea how he will get one. There is no way he could even interview - the stress of it would tip him over the edge and then if he didn't get something when he really wanted to, it would cause a major problem.

He refuses to get assessed. The university disability team did an assessment because they realised he had issues but of course, I'm not allowed to know what they said. What I do know is he is now marked down as disabled and has the option of one to one support, which he refuses to access. I am the emergency contact with his psychiatrist - I saw him a few months ago and they tell me how delighted they are with his progress (that's all they can say). I think from their perspective, he's not in hospital, he's getting on with his life, he's had no major crises for a while and the medication appears to be controlling the worst of his symptoms and in their eyes that's a win. And they are right but I am still financially supporting him and I don't know what the next step for him would be because I don't think he would be able to step out into an independent life.

I'm just wondering if anyone else has an adult child with severe mental health problems and how they are coping.

OP posts:
GaryTheCat · 12/04/2022 21:12

Ah, OP, I’m sorry I don’t have experience of this as such. I just wanted to not read and run. It sounds so tough and the thought of what next must be very daunting. I can imagine that progress will be very slow in whstever form it takes. Does he ever show any insight into his difficulty? I hope someone more knowledgeable comes along.

flowertoday · 12/04/2022 21:26

No comparable experience either, but I do have an older teenage son, and a 21 year old. Parenting young adults is challenging even without any additional health problems.
Your son sounds as though he struggles with the emotional/ social side of things. Autism springs to mind and I wonder if that has been considered ?
You are clearly an amazing mum, and I have no doubt that your sons achievements and progress are down to you ( that will be what the mental health team know too). What are his hopes for the future ? He sounds very determined in his own way.
It sounds really tough, but you are doing everything you can . Hope some other folks will be along to offer some ideas too.

Wallywobbles · 12/04/2022 21:48

What degree is he doing? There are quite a lot more careers options now. Have you talked to him about where, how and what he imagines his future might look like?

SpaceshiptoMars · 13/04/2022 07:16

Some experience here, but with autism not psychosis. There are some similarities, especially the deep introversion.

If he's going to work, you might have to lower expectations to something with few interactions with others (postie? delivery driver?). Or you go the other route and find that one special thing that gets him out of bed in the morning, that he can do from a home office/bedroom.

You can get over the interview fear by lots (lots!) of pre-work and practice interviews with professional friends. But, if you can get him to talk to you, try and drill down to find out where happiness lies for him, and if there are things he wants to achieve. He'll need a vast store of self-motivation to push past his aversions, so concentrate on finding out what he really, really wants.

FlyMeToMars · 14/04/2022 07:00

Thanks to all that responded - apologies I missed them as I thought no one had bothered!

He's doing a science degree and I suspect some of other boys on the course are not massively dissimilar.

Good idea on the practising. Maybe I can convince him to try this. At the moment, he says he wants to be an academic but I think this is because he sees it as an easy way out (it isn't) and means he doesn't have to (I imagine in his mind) face the world of work. Means he just keeps going as long as there is funding for him to do so but me and his dad had already agreed that we will help fund his main degree and after that he needs to sort himself out so I am concerned that when that time comes, he will have to sort something out. I guess a lot can change in a few years so fingers crossed!

OP posts:
likemindedarseholes · 14/04/2022 07:12

I'm not at all saying that this will be the case for your son but sometimes paid work will never be an option. I have a relative with similar attributes and his mum has made peace with the fact that he might never be right for a workplace, he frequently has bad days where he can't talk to people at all, and on these days the slightest thing will make him shut down completely.
Your son probably knows he has ASD. Most adults have some suspicion if they are neurodiverse. My ASD friend works nights in a supermarket when there are no customers. She can have her headphones in, listen to podcasts, read on her break. The managers are aware and don't ask her to do overtime or put her on the spot with questions about holiday requests. It's perfect for minimal interaction. Yes it's fucking depressing that people with brilliant minds like my friend and your son might not use them in paid employment but they can keep doing their hobbies and other studies. Unfortunately the whole world is set up for NT extroverts who love to spend time with others and can bullshit. Tech and science might be slightly different.

FlyMeToMars · 14/04/2022 07:25

That's my fear @likemindedarseholes

I actually wouldn't mind if I thought it would make him happy but I fear he will want something he will never be able to get because either no one will employ him or even if they did, he wouldn't cope

You're right, it is a sad world we live in :(

OP posts:
lljkk · 14/04/2022 08:27

DD has a hidden severe mental illness. She presents as perfectly competent but is actually dangerously ill. She says a lot of deluded things when you know the full picture. She isn't diagnosed or being treated, but she did get seen by GP for consequence-problem of her illness, so should now be on NHS radar since a physical exam reveals her illness -- too bad NHS is completely short on resources.

I've some bipolar relatives, they get on ok. It can be manageable. I suppose you're on the "One day at a time" path, OP. I can see how frustrating that is. I'd be wanting to help him build up life skills. Would your son considering tutoring other kids, maybe that's a way for him to get into work world.

FlyMeToMars · 15/04/2022 17:33

That's a good idea llijk. I will speak to him and see what he thinks.

OP posts:
FlyMeToMars · 15/04/2022 17:34

And sorry to hear about your daughter. I understand how dangerous conditions like that are so I feel for you!

OP posts:
lljkk · 16/04/2022 15:10

glad i had an idea that seems useful. Hang in there !

cansu · 16/04/2022 19:44

I have a son with severe asd who will never work or be independent. I think at some point you just have to make peace with the fact that you can't fix everything for them. I am very involved with him and help with whatever I can but I simply can't fix his problems.

badspella · 17/04/2022 13:55

Hello,

Thank you for this thread. My eldest son (nearly 23) has ASD (which he rejects as a diagnosis) and SMI (psychosis). He spent three years in residential accommodation for people 'recovering' from mental illness ('recovering' in this sense refers to the Recovery approach), and he has lived for a year in supported accommodation provided by the same care company. He is intelligent, but he has problems with respect to battling with auditory hallucinations and anxiety.

He loves cats, and we are waiting to hear from a cat rescue centre about some voluntary opportunities there. I am sure he can live a happy and fulfilling life, but simultaneously, I worry about his future.

My youngest son (nearly 21) lives at home. He has profound anxiety issues and an eating disorder (bulimia nervosa). He was referred for assessment for ASD, but declined the assessment.

Neither of my sons completed formal education (due to SMI) and both were quite let down by the systems (my eldest less so than my youngest). However (this is going to sound like a horror story) I had SMI as a teenager and young woman and I was in and out (mostly in) the psychiatric hospitals of the 1970s and 80s (not nice places). I had a profound eating disorder and other problems (probably undiagnosed ASD). Yet, by my early thirties, my life got back on track, and I ended up returning to education, getting a decent job and getting married and having children.
I know everyone is different, but my own experience, harrowing though it was at the time, gives me real hope for my sons.

I know they are in their twenties, but neurologically, they are taking a slightly different path. They may 'mature' and find their way ahead slightly later than their neurotypical peers. They may not be able to meet the demands of some types of paid employment, but to be honest, in some ways, giving love and care to abandoned animals may be far more rewarding in many ways that having a well paid career. My youngest may go down the self employed route, once he is more in control of his MH.

What I am doing now is remaining positive and supporting my sons, but I must admit, it is hard.

OP, my youngest meets all the criterial for PDA (but he will not consider assessment). He also could not last more than a day or so at his employment. It might be worth taking a look at strategies from the PDA Society UK, particularly the PANDA approach.

Yespresh · 17/04/2022 19:54

Our son is 27. He dropped out of basically everything and has no real life friends. He lives at home with us. He has been on antidepressants for some years which made no difference at all. I posted on here that he made a ridiculous bet (£1000 to win £100 and lost). Someone who I think saved his life by posting on here said could he have ADHD? We paid £700 in December for a private assessment and since then he has been taking ADHD meds as indeed he has the most severe type of ADHD. He feels so much better now he has a diagnosis. It is something that was never picked up as a child but as he has got older he has got worse and worse.

mumsys · 26/04/2022 16:41

This reply has been withdrawn

This has been withdrawn at the poster's request.

SapatSea · 19/06/2022 22:58

@badspella wow you are amazing. You've been through so much.

ConnieSaks · 25/06/2022 08:44

I’d just like to say thank you to @FlyMeToMars and to everyone who has posted in reply. My D.C. was considered ‘ODD’ in his teenage years but did do a college course and we thought all was well. However his social anxiety (and eczema) means he can’t work at the moment. DH also is convinced he has ADHD (which was mentioned as a possibility in his teens but dismissed at the time). I’m still trying to fully make my peace but coming across this post has helped me feel more positive 💐

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