My baby was also diagnosed with an enecephalocele at 16 weeks. We had our 18 week scan two weeks ago, and while it of course was still there, there was very little actual brain matter in the encephalocele.
I assume you want advice on whether to terminate. That, I don't think, is advice anybody can give you - it's a personal decision that you and your partner will have to make, because you will be the ones who will have to live with it.
I can tell you my and my husband's thoughts, though. We recognize the severity of the situation, and the range of possible outcomes - from death in utero, shortly after birth, or a lifetime of disabilities. But terminating isn't an option to us, simply because we would always wonder "what if?" We would always wonder if perhaps her disabilities wouldn't have been so bad, and that would have been something we could not bear. We recognize that we may have to care for her the rest of our lives, but it is something we feel ready to do, both financially and emotionally (it also helps, I admit, that part of my work involves Medicaid planning, so I know the types of resources that are available to severely disabled and how to access them).
I should also say that, I am pregnant with triplets, so any procedure to terminate would put my other daughters at risk. And so our decision is a bit easier - we don't have the luxury even contemplating termination, because it is something we could do only as a last resort, if her condition is threatening the lives of our other daughters.
Feel free to e-mail me if you wish - [email protected]