Help end medical misogyny. Sign our petition.

Help end medical misogyny.
Sign our petition.

Sign the petition

Please or to access all these features

Parenting

For free parenting resources please check out the Early Years Alliance's Family Corner.

SEN advice needed

4 replies

TNL · 02/07/2026 18:46

My 3 year old daughter is currently being looked at for possible autism and is under a portage team . She’s abit of a conundrum as there is many aspects of her presentation which don’t fit under the conventional symptoms of autism
I’m looking for any parents who’s children presented a-bit like my daughter and tell me what their children are like now , did things improve ? How much support did they end up needing and did they go on to achieve positive things ? I’m new to this so apologies if I have not phrased anything well .
my daughters presentation is this

  • speech and language delay ( getting better everyday and now is beginning to say 2 work sentences ) , can gesture , hand lead and point to make her needs known .
  • socialy she struggles , while she loves adults and plays well with adults she’s got not interest in her peers . She will join in with a group activity if she finds it interesting but will play along side rather than with . At gatherings she would be happy being alone doing her own thing
  • she is incredibly observant and ‘ switched on’ , she’s very good at problem solving and often takes things apart to put them back togeather . She finds anything more than simple instructions diffecult .
  • is not sensitive to sounds , lights etc , can get overwhelmed but have not witnessed her having a traditional meltdown in the true meaning of the word. She if anything is a sensory seeker , loves sensory input and often puts things in her mouth
  • isn’t restricted to routines or ritualistic behaviours , she’s able to go with the flow and has no issues with eating etc .
  • she loves the outdoors , anything messy / sensory based , loves music , lives arts and crafts and is incredibly affectionate. Very soft natured
  • on paper she’s about 15 months behind on her speech , language and social skills
Any insight into what people whom have had similar difficulties are like now would be very much appreciated, also did they do okay in mainstream / resource centre ? thank you in advance! X
OP posts:
handmademitlove · 02/07/2026 19:04

I have two autistic dds. One is a "typical" autistic girl, sensory avoider, socially awkward, anxious. The other is completely the opposite. Has no social skills but doesn't care, a sensory seeker, always on the move, doesn't care what others think, lives in her own world and eats everything including non food items! ASD really is a spectrum where different children find different things challenging. Both attend mainstream schools, one has an ehcp.

hotSunnnyWeather · 02/07/2026 19:16

My dd was diagnosed ASD at a young age but it wasn’t the full story as she didn’t fully fit the more usual profile. Aged 14 she got a adhd diagnosis and it’s made more sense the combined diagnosis plus adhd meds have made a big difference to her coping with life plus not being in MS school.
I would focus on what are her needs now and work out how best to support those as she develops.

hotSunnnyWeather · 02/07/2026 19:18

To answer your school question, ks1 primary she just about coped. KS2 become more challenging and needed more adjustments in place but it all fell apart in year 7, secondary and she left in year 8. We now home Ed to meet her needs.

Interested in this thread?

Then you might like threads about these subjects:

TNL · 02/07/2026 19:35

handmademitlove · 02/07/2026 19:04

I have two autistic dds. One is a "typical" autistic girl, sensory avoider, socially awkward, anxious. The other is completely the opposite. Has no social skills but doesn't care, a sensory seeker, always on the move, doesn't care what others think, lives in her own world and eats everything including non food items! ASD really is a spectrum where different children find different things challenging. Both attend mainstream schools, one has an ehcp.

This is super helpful , if you don’t mind me asking . Your second daughter , does she cope well in mainstream ? Has she made any friends at all and has she taken any intrest in school itself ? I suppose I’m looking for a bit of hope for my dd

we are exploring an EHCP if she will be given one , waiting and seeing

OP posts:
New posts on this thread. Refresh page