My son is 4 and just started Reception at school. It's going okay, given the circumstances but it's just made it even more obvious the gap between him and his peers at school and I feel so alone.
I think my husband it's also dealing with the same feelings but I just don't think I can talk to him about it because he will usually say something along the lines of "but we'll never even remember when he goes to university, gets married, gets his first job", whilst I feel like all of those milestones are slipping away because I'm worrying about him even being able to live independently.
He is non verbal (a few words that come and go) and understands some single words and phrases. Most of his understanding comes from routine or situation. He can't sit down for the lesson, or at lunch time as he doesn't understand that there is an expectation to. Obviously he has very little understanding of toileting. He lashes out when he feels like he is not understood, but he's not mean or malicious - he can be really kind to the other children in his class.
I wish I could say that I'm fighting for an EHCP for him but the Local Authority are apathetic at best - I applied in September 2024 and have since discovered that there is a 90 week wait in my area for EHCP assessments. School are just putting 1:1 in place for him but we've been asked to meet on Wednesday to review how he is getting on and I just don't even want to go. He's been under paediatrician, SLT since birth because of his health conditions and has been diagnosed with GDD
He's always been delayed and had other health and medical problems since birth. He is happy, healthy, gorgeous and honestly takes everything in his stride. But this is the absolute worst that I've felt, I feel like I'm at rock bottom and have no idea what to do. I just want to cry and stay in bed all day.