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Parenting

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Massively struggling with potentially ADHD four year old

7 replies

Spookybat5 · 17/12/2024 11:40

I have ADHD & autism, I was late diagnosed a few years ago after the birth of my now 4 year old son and becoming a single mum and my life just crumbled, admittedly I had absolutely no idea what ADHD really was until I was diagnosed but had suspected the autism since being a teen.

As my son has got older, I am absolutely convinced he has ADHD too (lots of the younger generation of my family are being diagnosed as adhd and autistic, and looking at it now my parents and grandparents also most likely are undiagnosed). I’m just really really struggling.

As a single mum I do all of the parenting and I’m so burnt out and overwhelmed. My sons behaviour can be extreme and he has meltdowns sometimes lasting hours where he screams and shouts, tells me he hates me, and will kick and hit me until I end up shouting at him to just stop because I’m so fed up with being hurt, and then I feel guilty for not being able to regulate myself. How can I teach him when I can’t do it either and I’m 30 😩

It doesn’t matter how many times I say no, you do not hit people, you can be angry but you do not hurt me, when he’s in the moment there’s literally nothing that seems to diffuse the situation except time, but after hours of screaming I am so flustered and stressed that I’m completely disregulated myself.

Hes a completely different child at school, and I see so many similarities between myself and him. I masked at school and then came home and was completely deregulated and overwhelmed and would have meltdowns.

I just don’t know where to start, I have taken him to the doctor for various things but not really got anywhere, and his dad doesn’t believe what he’s like with me and says I’m trying to force a label on him, which I’m not. I just want him to get the support I feel he needs. He doesn’t see his dad often and doesn’t act this way around him either, I know it’s probably because he feels safe with me but I wish people could see what it was like.

I know he is very young so it’s hard to comment on whether it is normal behaviour, but things I’ve noticed are:

He cannot sit still, he cannot sit and eat a meal at a table he will jump and run around relentlessly. He doesn’t play with one toy for long he plays with lots of toys all at once fleeting between them, he struggles to just sit still and will fidget and move around and daydream during school. At his nativity last week he was stood on stage spinning in circles and looking at the pictures on the wall, jumping up and down on the spot when everyone else was still.

He fights sleep like I don’t know what, he has never slept through the night. He has night terrors due to being over tired, not wanting to go to bed, wakes up wanting to get up and play multiple times a night, and wakes early every morning no matter how little sleep he has had.

Extremely limited diet, he is very fussy, lots of sensory issues around food, won’t eat anything ‘wet’ or that has sauce on. Food has to be made a certain way or he won’t eat it.

Sensory issues in general, doesn’t like to be too hot, I have to cut tags out of clothes, gets very upset by loud noise or bright light.

He struggles massively with a change in routine. He gets very anxious and this causes meltdowns and tears when something doesn’t go the way he expects it to or we do something new.

Where do I go from here? Is there anything the GP can do based on his age? I feel like going through the school won’t work as his extreme behaviours are much less at school. He does fidget and struggle to stay still and concentrate at school still, but from speaking to his teacher it seems to a lesser degree than at home and he’s still only in reception so it is still very play based learning.

At what age may the school intervene and point out if they notice any behaviours that look like they could be adhd?

All advice would be massively appreciated

OP posts:
FiveWhatByFiveWhat · 17/12/2024 17:06

I'm not usually one to armchair diagnose @Spookybat5 especially at a young age, but from what you've written here about his behaviour and the family history I'd say there's a good chance there's some ND going on.

My son turned 5 last week and although his referral for an autism assessment was accepted in the spring, it could be another 2 years before he's assessed. We started on "the pathway" following his 2.5 year HV check, so it's a looooong process in our area!

Ultimately, although a diagnosis will help long term, it's practical "Now" support you need. Talk to everyone you can, knock on every door and hopefully by law of averages, someone will help. That's what we had to do. I'm talking -

GP - they can do referrals for assessments, not just for a diagnosis but for things like cahms, occupational therapy, paediatrition, dietitian, community prescribers etc.

Home start - a charity that helps families with all sorts, from Sen/behaviour etc to filling out forms, finding out what support you're entitled to, what groups there are in your area.

School - keep talking to them, be reasonable and approachable but don't be fobbed off. You can self referring for an echp to help your son in school - most are refused automatically but also many are quickly overturned if appealed correctly.

Facebook groups/the mn Sen board - lots of parents with years of experience who will be very willing to advise you.

What's his routine like? My son struggles to sleep but it's so much better now. We still have days where he'll sleep 9pm till 2am then (happily) go to school and not sleep until 10pm that night. I'm often up and down with him or with him for almost 2 hours trying to help him sleep. But! Other nights he'll now sleep 10 hours straight after just half hour of stories etc. Find what works even if it's unconventional. For months a year or so ago we read on the sofa until he nodded off because "going to bed" worked him up so much. He now happily goes up to bed. Longer stories, especially fact type books, work well as I just keep going rather than "one more book please" etc.

Time outside. Not structured or anything, just running around, digging in the garden etc. We can now do evening baths but until recently we only did daytime ones as they hyped him up. He prefers a cold bath too 😬

Get ear defenders and take them everywhere. Take him to the shop and let him feel the clothes or try the shoes on. Saves time overall.

What toys does he like? If he's struggling to "play" you might need to support this a bit for a while - lots of floor time with him if you can. My son loves small world play but he "directs" and it's so so rigid and repetitive. If I need a break I redirect to stuff he can build like Lego or magna tiles as he can now mostly crack on with those with me just doing it alongside or even sitting back a bit and leaving him to it.

FiveWhatByFiveWhat · 17/12/2024 17:10

I'm basically a narrator for my son. Outline what we're doing now and next. All. The. Time.

Timers, warnings (in terms he understands, so not 5 minutes but "three more slides" before we leave playground then get food etc)

Visual cues could work, you can download and print social stories to use for free.

Leave time for stuff. Be organised.It kind of becomes second nature after a while.

EvangelicalAboutButteredToast · 17/12/2024 17:17

Can you list everything he is eating as a starting point.

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Redlocks28 · 17/12/2024 17:18

At what age may the school intervene and point out if they notice any behaviours that look like they could be adhd?

When you say ‘intervene’, what do you mean exactly? I’m sure the teachers at the school will tell you what they see in class.

The processes for referrals vary by local authority. Where I live, schools can refer for an ADHD assessment when the child is 6, but not before. If they are spotting signs before that, they will be monitored and discussed with you, but it sounds like there are no particular issues at the moment and his needs can be managed within the ordinarily available provision in the class.

AnOldCynic · 17/12/2024 17:22

Approach your GP to see if they'll refer you to a parenting course. You might be able to self refer. I went on one when my son was older but there are age appropriate ones.

It was just a space where I was able to meet other struggling parents, and learn some parenting approaches. I knew most of it, it's not rocket science but when you are all over the place yourself it's good to have a focus.

Things that have stuck with me, 'dos work better than don'ts' and 'strike whilst the iron is cold' (dealing with things once the meltdown has passed)

FiveWhatByFiveWhat · 17/12/2024 17:56

@Spookybat5 I agree with the parenting course too, I did Triple P recently and it was very helpful. Like @AnOldCynic says, you probably know most of it but just having a dedicated time/space to focus on trouble shooting etc can really help make things clear when you're trying to spin alllll the plates!

Hummusandcrisps · 01/07/2025 18:30

@Spookybat5 I just wondered how things were now? I could have written your post and stumbled across it. My son is also 4, diagnosed with ASD at 3, copes in mainstream but life feels impossible/unsustainable at home and noone is coping. Is there anything that has worked for you?

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