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Parenting

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Parents of children/babies with disabilities/higher needs?

3 replies

Picklesjar20 · 18/07/2024 01:17

Did you know your baby/child had something wrong from birth?

Did your subsequent children also have any disabilities or needs?

When did you get the awnsers to what was wrong or final diagnosis?

I am overwhelmed and having a moment blaming myself and feeling out of my depth.

My toddler has been hardcore from birth. (Premature, allergies, most awful eczma you've ever seen) she hasn't met milestones, doesn't communicate (very happy though) and they are waiting for her to turn two to do a referral I think for Autism.

My 8 week old has already been admitted to hospital and we are now being referred back to paeds and he may need an operation. He's currently diagnosed with GERD and Sandifers syndrome but they now suspect it is something not working with his stomach and intestines.

I feel battered and wondering how mums cope? Also just want to know how you feel felt?
I don't know if I'm over panicking or overthinking, I haven't slept much for over a year, so my perspective is currently awful and I don't know if this seems a bigger thing to me then to others. So I apologise if I sound dramatic.

Just want to know your journey? if what they thought things were initially was right? Or if as they got older more things came to the surface?

OP posts:
ContentSolitude · 18/07/2024 04:03

I have two diagnosed with medical conditions in early/later teens. Looking back there were hints but nothing that pushed diagnosis till later.

auntpanty · 18/07/2024 05:49

My first met all milestones no issues,

Mysecond was delayed speech but otherwise no issues. Quite a full on child but no concerns. We now believe second one has adhd.

Third child, lots of issues from birth - reflux, dairy allergy , eczema. Delayed speech, huge meltdowns . Lack of expression/connection. Diagnosed with asd at three.

CCLCECSC · 18/07/2024 06:24

Unwell at birth; knew within a week life changing but formal diagnosis months later.

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