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Parenting

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Autism enquiry

33 replies

Vittoria123 · 11/07/2024 14:14

My daughter is 17 months and I have been suspecting autism for a while now . This are the things she can do :
she can walk independently since 12 months
she has 50 words , plus can link two sentences together
3 ) sleeps through the night since 14 months
she can point , wave and clap
4 ) smiles at us and people
does pretend play and kick a ball
7 ) she responds to her name if not doing other things, like watching tv or making silly face in front of the mirror . Is it normal ??
8 ) she can follow our point
9 ) she follows simple commands: like “ go and get teddy or “stop “ when I tell her to .
no tantrums or if they occurs they last less than a 1 minute
loves animals and but not good with other kids . She look at kids and people and then run away .

plays appropriately with toys
can point at body parts

things she can’t do
can’t climb down the stairs but can go up alone with her feet ( if I try and teach to go down she cries )
she goes stiff when excited and comes out of the bath
not a brilliant feeder ( gag on lumpy food like mashed potatoes, rice and noddles )
she crosses her fingers when tired
she can’t throw a ball or stack up wooden cubes . But can scribble and turn book pages and use a fork .
BIGGEST ONE :
tip toes 50% of the time she learned at 12 months and since the last couple of months she has been tiptoeing when barefoot

I tried to speak to the GP , health visitor till I was blue in the face ( the HV came to see her and said no concerns at all ) , I went private for a ped and nothing .

any advice would be massively appreciated

OP posts:
MistyFrequencies · 12/07/2024 10:09

user1471538275 · 11/07/2024 20:51

You sound extremely anxious and this appears to be transferred onto your child 'analyse her every day'

This is not healthy for you and it is harmful for her.

Please get help from your GP for your anxiety.

This. Get help for your anxiety. Get a physio referral for toe walking.

Morph22010 · 13/07/2024 08:44

I think some of the posters are being a little unfair. Parents of autistic children often have a gut feel. My son is 14 now and was diagnosed age 6, however looking back I knew very early on before age 2 although I never went as far as discussing with a health professional. He met his milestones for speaking, walking etc, no issues raised at 2 year check. The first play school he went to did raise some concerns but the health visitor put it down to him being a very bright boy who wasn’t being stimulated enough at that play school and we moved him to another nursery at her sugggestion where he got on well. Things came to a head when he was in year one and he was diagnosed age 6. As he’s got older it is much more obvious.

However the reality is op if your daughter is autistic she is autistic and no amount of analysing is going to change that, a diagnosis or not having a diagnosis won’t change anything either if she is progressing well. In most areas once a child is diagnosed with autism you are discharged from services and left to carry on by yourself, there is no aftercare or follow up appointments, or anything you get to help just becuase your child is autistic. In view of this if your daughter does turn out to be autistic you are not missing anything that would potentially help her by not having an early disagnosis. I know it’s easier said than done but try not to worry, what will be will be, just enjoy her as she is now if she is autistic at some point it will become apparent and you can’t change that anyway.

Vittoria123 · 13/07/2024 11:50

Morph22010 · 13/07/2024 08:44

I think some of the posters are being a little unfair. Parents of autistic children often have a gut feel. My son is 14 now and was diagnosed age 6, however looking back I knew very early on before age 2 although I never went as far as discussing with a health professional. He met his milestones for speaking, walking etc, no issues raised at 2 year check. The first play school he went to did raise some concerns but the health visitor put it down to him being a very bright boy who wasn’t being stimulated enough at that play school and we moved him to another nursery at her sugggestion where he got on well. Things came to a head when he was in year one and he was diagnosed age 6. As he’s got older it is much more obvious.

However the reality is op if your daughter is autistic she is autistic and no amount of analysing is going to change that, a diagnosis or not having a diagnosis won’t change anything either if she is progressing well. In most areas once a child is diagnosed with autism you are discharged from services and left to carry on by yourself, there is no aftercare or follow up appointments, or anything you get to help just becuase your child is autistic. In view of this if your daughter does turn out to be autistic you are not missing anything that would potentially help her by not having an early disagnosis. I know it’s easier said than done but try not to worry, what will be will be, just enjoy her as she is now if she is autistic at some point it will become apparent and you can’t change that anyway.

Many many thanks for your reply . I hope your son is doing well now and enjoying life ☺️ may I ask what sort of behaviour prompted the diagnosis ? ❤️

OP posts:

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Hugesunflower · 13/07/2024 13:54

I suspect my oldest children has autism (referal rejected by CAHMS) and at the moment I have learnt ways of parenting and have taught her skills to manage life (ground, breathing, recognising when she is overwhelmed ect) but I would do this if she had a diagnosis or not. A diagnosis would not change the way I parent because I parent the child in front of me. I am continue to observe and seek appropriate referals and we may go down private diagnosis later.

I would also suggest you see the GP and ask for a referal to audiology for a hearing test. At any one time 40% of under 5s with have glue ear. Glue ear causes temporary fluctiating hearing loss. Most children ‘outgrow’ it, for some it is worse or they don’t and they have a very short operation to fix the problem.

RainbowZebraWarrior · 13/07/2024 13:58

Morph22010 · 13/07/2024 08:44

I think some of the posters are being a little unfair. Parents of autistic children often have a gut feel. My son is 14 now and was diagnosed age 6, however looking back I knew very early on before age 2 although I never went as far as discussing with a health professional. He met his milestones for speaking, walking etc, no issues raised at 2 year check. The first play school he went to did raise some concerns but the health visitor put it down to him being a very bright boy who wasn’t being stimulated enough at that play school and we moved him to another nursery at her sugggestion where he got on well. Things came to a head when he was in year one and he was diagnosed age 6. As he’s got older it is much more obvious.

However the reality is op if your daughter is autistic she is autistic and no amount of analysing is going to change that, a diagnosis or not having a diagnosis won’t change anything either if she is progressing well. In most areas once a child is diagnosed with autism you are discharged from services and left to carry on by yourself, there is no aftercare or follow up appointments, or anything you get to help just becuase your child is autistic. In view of this if your daughter does turn out to be autistic you are not missing anything that would potentially help her by not having an early disagnosis. I know it’s easier said than done but try not to worry, what will be will be, just enjoy her as she is now if she is autistic at some point it will become apparent and you can’t change that anyway.

Great post, and as an Autistic woman with an Autistic daughter I completely agree.

Best of luck, OP. You sound like a really caring and wonderful Mum.

Justbecause19 · 13/07/2024 14:06

My DS is autistic, he presented fairly typically with speech delay and lack of gestures etc. nothing has changed since he was diagnosed in terms of support and it's literally 1 line in his EHCP. I don't think my DS2 is autistic, but he has real issues with emotional regulation and some sensory stuff. Because he's not delayed in anything it's just a case of watching and waiting for now. It's good to be vigilant but my advice is to try and relax. If your DD doesn't have any developmental delays she won't get any support yet. Keep an eye on her and write everything down, it's crazy how fast you forget everything and they get older. If she goes to nursery talk to them about your concerns so they can also keep an eye on her. Girls are very good at masking so can make it a bit more challenging.

Alice4417 · 10/01/2025 19:22

@Vittoria123 do you have any updates ? X

coxesorangepippin · 10/01/2025 20:59

Stop searching for a diagnosis

Ffs

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