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Inconsolable crying at 13 weeks

4 replies

SSDRI67 · 30/06/2024 19:21

Hey guys - new to this so sorry if I get the lingo wrong...
I just need some help. My daughter is 13 weeks old - and I am not exaggerating when I say she has cried excessively since she was born. I work with kids, have loads of kids in my family and both me and her dad have grown up around babies - we are used to crying babies. But my daughter cries so so much - we've been back and forth to doctors and they currently think it might be CMPA as she's tried so many formulas etc...
She's on Aptamil Pepti1 ATM but if anything she seems to have got worse.. she will cry for hours and hours a day, and can only be soothed for brief periods before back to full on screaming. Not whinging. Screaming.
She can't just be held, or sit on your lap, it's constant crying all day every day. It just doesn't seem normal to me but the doctors think I'm overreacting...
I'm around my friends with babies and they are all relaxed and happy babies and mine will just scream the entire time we are with them meaning I eventually leave.
I've tried infacol, gripe water, colief, baby gaviscon, multiple formulas, everything... I'm at a loss here. I just want my baby to be happy and comfortable.
Anyone have ANY ideas or suggestions?
Also just to add she is regularly constipated, full of wind which is often extremely smelly and appears painful for her to pass, she screams during and after a feed, she projectile vomits after feeds and has awful reflux which is painful as well for her and will result in lots of squirming and crying...
Her whole body is tense and rigid 99% of the time and we can usually not even get her to bend her legs. If we touch her tummy she SCREAMS blue murder as well...

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Superscientist · 30/06/2024 19:46

My daughter was like this too and she had multiple food allergies and severe silent reflux.

Pepti still contains dairy which might be why you are still seeing symptoms. Have you tried an amino acid formula? They are completely dairy free. The common ones are alfamino and neocate.

My daughter needed the highest dose of omperazole, as much gaviscon as I could get in her, lactulose for the constipation from gaviscon and me removing her allergens from my diet when breastfeeding to get her to start to improve. In the ended we also added domperidone and moved her on to alfamino.

She is 4 and still very much has reflux and it causes us more problems than her food allergies.

Have you tried a ppi for the reflux - these reduce the amount of acid produce but can cause reflux to increase in the short term as the body tries to reverse the effect of the medication by increasing acid. The common ones in infants are omperazole or lansoprazole.

imy · 30/06/2024 20:57

Bless you, this sounds so so hard. I just first want to say that this WILL get better. I had a friend who had a baby who screamed all the time and now she's a happy 1 year old. Things really start to turn around once they're out of the newborn phase.

My daughter had severe reflux too. She had to have gaviscon in every feed as well as omeprozole and then we gave her a sachet of movicol every day too for the constipation caused by gaviscon. With this, she would do one large vomit a week (which was horrible but obviously much better than every feed!!). I don't think things like infacol/colief etc do a think for babies like this. I tried them all too and just think it added stress. She'd often throw them back up anyway.

With my daughter it was caused by a heart condition (you'd know by now if this is the case for you as they'd have listened to her heart at her 8 week check which is when we found out - we also had gone down the allergy route before this).

Again I am so sorry you're going through this. It really affected me and so I am sending you loads of love and support.

Original poster
SSDRI67 · 30/06/2024 22:30

Superscientist · 30/06/2024 19:46

My daughter was like this too and she had multiple food allergies and severe silent reflux.

Pepti still contains dairy which might be why you are still seeing symptoms. Have you tried an amino acid formula? They are completely dairy free. The common ones are alfamino and neocate.

My daughter needed the highest dose of omperazole, as much gaviscon as I could get in her, lactulose for the constipation from gaviscon and me removing her allergens from my diet when breastfeeding to get her to start to improve. In the ended we also added domperidone and moved her on to alfamino.

She is 4 and still very much has reflux and it causes us more problems than her food allergies.

Have you tried a ppi for the reflux - these reduce the amount of acid produce but can cause reflux to increase in the short term as the body tries to reverse the effect of the medication by increasing acid. The common ones in infants are omperazole or lansoprazole.

Thankyou for this - I am going back to doctors tomorrow because I want to just go on to Neocate - I've heard from SOOO many people now that Pepti did nothing and I'm sure it's made my daughter worse if anything. I'll have a chat about reflux meds too 🤞

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Original poster
SSDRI67 · 30/06/2024 22:32

imy · 30/06/2024 20:57

Bless you, this sounds so so hard. I just first want to say that this WILL get better. I had a friend who had a baby who screamed all the time and now she's a happy 1 year old. Things really start to turn around once they're out of the newborn phase.

My daughter had severe reflux too. She had to have gaviscon in every feed as well as omeprozole and then we gave her a sachet of movicol every day too for the constipation caused by gaviscon. With this, she would do one large vomit a week (which was horrible but obviously much better than every feed!!). I don't think things like infacol/colief etc do a think for babies like this. I tried them all too and just think it added stress. She'd often throw them back up anyway.

With my daughter it was caused by a heart condition (you'd know by now if this is the case for you as they'd have listened to her heart at her 8 week check which is when we found out - we also had gone down the allergy route before this).

Again I am so sorry you're going through this. It really affected me and so I am sending you loads of love and support.

Thankyou so much. This is just so far from what I envisioned motherhood to be - and I just want my baby to be settled and happy. It's so hard watching other people with settled babies, and to know mine is uncomfortable and as her mother I cannot fix it.
So sorry to hear about your little ones heart condition but seems like you're managing it super well :) back to doctors tomorrow and I'm hoping and praying we have some resolution... She just simply cannot go on like this bless her 💞

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