Cerebral Palsy

[MumofHennHals]

Hiya, are there any mums with babies / children who have cerebral palsy?

I am looking for some insight into if your babies had any symptoms from as early as 7 weeks and if anything i.e traumatic birth caused it?

My little boy was premature and had respiratory distress, he’s now 7 weeks old and seems to be thriving in most ways. He has issues with swallowing and breathing at the same time and sometimes pulsates his leg ( I explain it like thumper- it’s not regular.. ) - as far as I’m aware he was never starved of oxygen, just required pressure - he also had a brain ultrasound in NICU which they didn’t tell us about, so I’m assuming it was clear?

Just want to have some awareness so I know if I need to advocate for my son to give him the best start.

( sorry if this is worded wrong, a mummy who is feeling anxious )

I had a friend when my daughter was a baby and she and twins and one ended up with a cerebral palsy diagnosis. I think it was around 6 months that there was a very clear difference between the two twins and they had the diagnosis around 1 year. I moved when they were all 2 so I don't know how he is doing now but I was making really good progress at 2.

It's never too early to raise concerns if nothing else it sets a clock for review. We had concerns about my daughter at 8 weeks as she didn't respond to noises. At 17 weeks she was referred for a hearing test. Having raised it as an issue it was one of the things the HV checked when she saw us and once she was outside of the normal development window a referral was made. For her there was absolutely nothing wrong with her hearing and it was undertreated reflux and undiagnosed food allergies causing her to be too distressed to interact with the world. She also wasn't smiling at 17 weeks. By 5 months after 3-4 weeks of a dairy and soya free diet and high dose reflux treatment she was scored a perfectly average score.