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Parenting

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Autistic PDA child vs grandma - wwyd?

55 replies

QueryAutism · 04/04/2024 18:24

For context, my 4 year old is undiagnosed, very likely autistic with a demand avoidant profile. Since we realised this we have been following the guidelines for parenting a child with autistic Pathological Demand Avoidance. The most relevant aspect for this situation is that we try to pick our battles - we have some non-negotiable boundaries which we uphold firmly with regards to health and safety, but try to keep rules to a minimum and don’t argue over what we are as the ‘small stuff’. His grandparents (who see him every couple of months) question whether he is autistic because he’s very verbal and makes good eye contact, but his school also feel that he’s autistic.

We were at our own house, grandma visiting. Son was jumping on one of those small trampolines for toddlers with a handlebar to hold onto, holding a toy car in his hand (one aspect of his autism is that he likes carrying small objects around all the time). He was holding onto the bar with one hand and holding the car in the other. This isn’t something that personally I felt was very dangerous. Bouncing and holding objects are both things he does to regulate himself and we bought the trampoline for this purpose.

Grandma asked son to stop bouncing with a car in his hand because it’s dangerous. She expected him to put the car down or get off the trampoline. Son said no and started to get anxious/angry. After a short back and forth argument I came into the room and both looked to me to settle the situation, so I became the middle man (although this was fair enough as his parent).

I wasn’t really sure what to do as grandma felt he was being rude by refusing and I should back her up and make him comply. But I didn’t actually agree that what he was doing was dangerous and saw his point.

Wwyd? Back up grandma because she’s the adult and she’d asked him to stop? Or explain that you didn’t agree with the boundary she was trying to set?

OP posts:
Soontobe60 · 06/04/2024 18:44

Shopper727 · 05/04/2024 09:28

I don’t think older people really understand pda my mum doesn’t and my son has been called manipulative, controlling etc she doesn’t understand the way I communicate with him it’s tough but perhaps a chat with her without you son there would help. I’ve had the questioning re autism etc too it’s bloody draining when you’re constantly trying to manage things and not put demands on them. I don’t leave my mum alone with my son ever. She just doesn’t get it and it’s not fair on my son.

just explain you parent in a specific way and he does this to regulate himself etc I think parents like ours - mine was very similar by sounds of it are never going to catch on to the low demand parenting etc it would be lovely if they could but I always feel judged and that she’s seething that I let him do certain things as I said above I’m sure she thinks it’s manipulation etc

Here we go with the ageist tropes!

brocollilover · 06/04/2024 18:49

@Soontobe60 i think you need to bother rereading what the op wrote here about diagnosis

PaperBauble · 06/04/2024 18:53

I’m not sure age has anything to do with understanding and accepting difference. My PDA’ers GP’s are in their 80”s now and have made every effort. They have been amazing actually. Although the journey hasn’t always been easy, it was never because they didn’t want to earn and understand. That’s all you can ask really.

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iamwhatiam23 · 06/04/2024 19:13

I have a ASD son who is also PDA and my dm was an absolute nightmare with him when he was little! She just couldn't get her head around the fact that he wouldn't just do as he was told and was not " just being naughty". She used to really annoy me going on about how " naughty" he was!

LittleWeed2 · 07/04/2024 07:41

I think it was mentioned above but give DGM all the books, websites that you have used - if she thinks things through I'm sure she will recognise traits in other family members or DGF.

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