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Life's difficulties and working

5 replies

MaverickSnoopy · 20/02/2024 14:51

Not too sure where to put this.

DH works two jobs. I haven't worked for a couple of years while I dealt with some health problems as well as depression and severe anxiety. I have been a sahp, 3 children. We've had a small amount of tax credits to help.

I'm doing a lot better and desperate to get back to work so we can get our life back. However, I'm worried about the logistics.

DC1. Diagnosed dyspraxia and undiagnosed adhd, severe anxiety and suicidal thoughts (been on waiting list for camhs for 1 year+). Is having serious problems with her periods that are interfering with her schooling and pushing for a gyne referal. I often have to walk her into school as she will refuse to go due to anxiety and ongoing difficulties. Sometimes, I have to meet with pastoral support during school hours to support her. She has occasional hospital appointments for her hearing too.

DC2. Has recurring hospital appointments once every 3 months, sometimes more.

DC3. Appears to have some kind of low immunity. Nothing imparticular and has had formal testing to no avail but picks up every single bug going. Has had 5 pretty bad illnesses back to back since the end of December, including a hospital admission. Their whole life has been like this but "nothing formal" to explain why. Has recurring hospital appointments in addition every 4 months.

Aside from all of this, I have various medical appointments, and the DC all have optician appointments and all 3 have a fair amount of illness. They get it from me - I have been relentlessly unwell for a month now and its been a struggle. Everyone takes vitamins and has a good diet and plenty of sleep. We're just very unlucky. My average week, I am run ragged between illness, various hospital appointments, meetings with school and trying to keep DC1 on an even keel. I have very little time at home without there being an ill child - when I do have a moment I am job hunting.

None of the above came to light until after DC3 was born. Up until now, I have covered everything. DH works in an industry whereby he cannot work from home, to do a different job he would need to retrain and would take a significant pay drop. When he has covered child illness in the past (when I was working and we shared the load) his employer bradford scored his time off for dependents because it was so high. In the end, he found a more understanding employer, but equally that coincided with me being around to pick up everything.

I'm becoming more and more concerned about how we will manage all of this with me working. I do aim to work from home, but even so, I know I need to be realistic. Our support network is minimal. My parents have just been diagnosed with life limiting conditions, are extremely clinically vulnerable and cannot look after our children when ill (they helped before). SIL previously helped but has just started uni. So it's just the two of us to manage this huge amount which feels to us like a full-time job in itself.

We are due to switch to universal credit shortly and they want me to spend 30 hours a week job hunting. I'm already job hunting but i don't physically have this time, so I'm a bit worried about that too. Aside giving up sleep, but I know I need the sleep to keep my depression and anxiety at bay.

I'm hoping I find something suitable soon. My main concern is that I don't have the "time" to work. Last week alone I spent 15 hours at the hospital and 3 hours in other appointments. It's a fairly normal week for us. I just don't know how we're going to manage it but we can't survive without more than my husbands income (as I say, at the moment tax credits is plugging the gap, although quality of life isn't great). I just need a bit of advice on how to navigate this change. I'm so very desperate to start earning again and better our life, it just feels so impossible with how things are for us.

OP posts:
Dotdashdottinghell · 20/02/2024 15:19

Can you work evenings and weekends opposite to your DH?

Fivebyfive2 · 20/02/2024 15:21

I'll be honest op I think you'd really struggle with anything more than minimal part time, from home, by the sounds of things.

Could you call citizens advice and see if there's anything you'd be entitled to in order to help plug the gap? I'm thinking dla, carers allowance type of thing, although I'm no expert. Home Start sometimes have volunteers who can help with things like filling out the forms for such things.

Hopefully someone will be on soon with some more concrete advice xx

Octavia64 · 20/02/2024 15:23

There's a lot going on there.

Most I can't offer advice for, but the GP should be able to help with the painful periods.

There are a number of things they can prescribe, painkillers obviously, but also the pill or other contraception can be helpful, my DD ran packets together so she had half the number of periods, and then got the implant so she has no periods at all now.

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Octavia64 · 20/02/2024 15:27

If you have some health related issues plus depression and anxiety I'd consider trying to get assessed for the Limited Capability for work group when you transition onto universal credit.

You could also consider applying for PIP which is a benefit where it doesn't matter whether you are in work or not. It is hard to get.

Also consider a DLA application for your daughter as with gynae issues and anxiety that might be helpful. If successful, you would also be considered her carer.

MaverickSnoopy · 22/02/2024 06:44

Thank you all. I will contact Citizens Advice and see what they say.

The thing is, I really am desperate to get back to work. I have so many dreams for the future and so many things that have been put on hold. I used to have a thriving career and have done project management, HR and all sorts. I miss all of that. My worry is also that universal credit will push me into any old job that will both stop me from furthering my career, but then by being in "any" job, also remove any possible time to look for the "right" job. If I'm pushed into a 30 hour a week job out of the house then I know I'll quickly loose it due to caring responsibilities.

I do agree that at least for now something part time, flexible from home is my best option, but it can be a bit of a unicorn and I'm worried again, that universal credit won't let me look for that unicorn and will make me take any job. I'm definitely not work shy and I don't expect the govt to pay me for years until I find the perfect job, but given how our life is, i know I need to find something feasible that I won't loose due to our chaotic life.

I'm not sure if we'd qualify for dla on any of the accounts - alone these things aren't enough I don't think (although I'll find out) but it's adding everything together that makes our life so overwhelming and that's not a recognised thing with dla. I'll look into the capability to work thing, but my depression is under control now and my anxiety to a degree. It's not something that stops me from working, it's something that consumes me when our chaotic stuff happens.

Re the periods, the doctor has tried everything. She's been put on the pill (and she is very young) and it's helped with her emotions to a degree but she bleeds constantly and painfully. It's been very life limiting for her. I think a gyne referal will be the next step.

Your comments have been very helpful.

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