my 34 month can't stand on her own still

[kmom2]

tests after tests, MRI's, genetics test, physical therapy for over a year and half, orthotics almost a year and a half, pediatric walker about 6 months now which is the only way she can walk or stand, so that's the improvement. No answers of the cause, we've been waiting over a year just for the wait list to even open to see a Neuromuscular at Childrens ( now I was told end of Nov. they should be able to add to the waitlist, that seems crazy to me by then it'll have been a 2 years wait for help my child, Neurologists have no answers I just need to hear or fond others that had a smilier issue please...

How is she otherwise OP, i.e. her fine motor control, speech/language, cognitive function? Just thinking it might help paint a picture for others whose DC might be similar. Sorry you're having such a long wait for help, it's awful.

She is pretty much fine everywhere else. Speech therapy was just added recently but just to help her frustration and speak louder and clearer. Her fine motor has been amazing, she can even play soccer but by scooting and some now while standing with her walker. So many things have been ruled out because standing and Walking are her only struggle and has left the neurologist happy but still no answers. MRI brain and spinal were normal, multiple blood tests ruled out a lot of concerns and we even did a full on genetics tests and nothing abnormal. She can play soccer while on her butt using her arm to scoot she has feeling and muscles in her legs everything’s been X-rays answers everything lines up nothing uneven

Oh OP I'm sorry that sounds really worrying, I have no proper advice only an anecdote about a friend (now nearly 40) who didn't walk until they were 2 and a half and there was no reason - they have no issues and live a very 'normal' life

What is their hearing like?

My DSIS was a similar age and wasn't walking. It was later discovered that she is deaf.

How is her tone? My daughter didn’t walk until 2 and she was diagnosed with mild benign hypotonia. Same tests etc and nothing wrong found. If the low tone had been more severe I’d imagine she’d have walked even later.

Does she attend nursery? I've worked with a child who sounds similar. He was held back from moving from the baby room to toddlers as he wasn't walking. But developmentally he was ready to be with his peers.
He did move rooms and was bottom shuffling for the majority of his time there. But towards the end of the year he started to pull himself up, especially when in the garden.
I think the change in environment and the challenges of moving around along with seeing his peers climbing and running may have spurred him on.
His parents took him for multiple tests but no cause was found.
He's now walking, he has a wide gait and is wobbly but can get around.

I have been hoping and waiting for her to be just a late walker but she turns 3 in a couple weeks so she’s so behind on many mile stones because of this ;(

That does sound like her. In the past 6 months she has mastered this walker and pulls her self on it perfectly. Shes done weekly classes at kindering a little longer then a year and a half with other kids. She started 2 days a week at the early learning center at the school I attend in september and turned full time in January. She walks good with the walker and sometimes tries with holding your hands. How old was the boy when he finally was ready?

Her hearing hasn’t been checked in awhile but she can hear an airplane from a state away and a specific crunch you make when sneaking a food lol
that hypotonia word sounds familiar for some reason I’m gonna go look at some papers