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Baby crying only during feeding - health visitor and GP confused

29 replies

michgross · 25/01/2024 19:08

Our 3.5 month old baby (corrected - 5 weeks premature) is really happy most of the time but over the last few weeks during feeding he cries a lot and seems very uncomfortable and due to this he hasn't eaten much. This is the same if he is breast or formula fed. We have to keep offering him the milk until he's had enough and stops crying and as soon as he stops eating he's very happy again. He was born low birth weight due to preeclampsia and has been growing well since then but he has barely put on any weight over the last few weeks.

Common problems have been mentioned by both our GP and health visitor like silent reflux, colic and allergies but they expected him to show symptoms outside of just feeding time for example when lying flat but he doesn't. We always burp him and he seems to burp well but hard to know if he still has wind. He starts crying as soon as he starts eating, not just once he's finished which makes me feel like it's the feeding process that's the problem and not something inside him like wind. But it's so hard to know.

I was wondering if anyone has experienced anything similar or can suggest what the problem is?

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Superscientist · 26/01/2024 10:00

You can't buy dairy free formula in supermarkets as soya formula is not an appropriate substitute. You can buy it on Amazon or online pharmacies but it is expensive
You would usually start with something like pepti or nutramigen which are £30 for 800g but these contain partially broken down dairy. If these don't help you might need a completely dairy free formula like neocate or alfamino which are £30 for a 400g tin.

For some of my friends slow weight gain has been enough for a trial of dairy free formula and then later other symptoms have emerged. The dairy free formulas are not very nice taste so for older babies it can be harder to get them to accept it which can be a downside to delaying trials. On the other hand they are thin and if reflux is in the mix they can make this worse if not used with a thickener or other reflux treatment.

The only way to rule cmpa in or out is trialling no dairy. The GPs and even the paediatrician didn't particularly think my daughter had cmpa but the paediatrician said "it doesn't hurt to try" and I'm so grateful for that as she was allergic to diary and 19 other foods! Even if it wasn't cmpa I at least felt like we were trying something and not just waiting and hoping for something to change.

sandberry · 26/01/2024 10:17

Bottle aversion? Tends to get misdiagnosed as allergy or reflux, is actually about the pressure babies feel to feed. I worked with a baby recently who had gone round and round for months with reflux and tongue tie and allergy with no improvement, did an aversion programme was eating more within 2 weeks
Often gets worse around three months as eating becomes voluntary rather than reflexive. Rowena Bennett’s bottle feeding aversion book is brilliant

michgross · 26/01/2024 10:41

One thing I haven't mentioned is that often he'll calm down and drink the milk fine but he only has around 60ml and then seems full and happy. Could there be a reason why he gets full up more quickly than he used to?

Also recently he takes longer between pooing, sometimes a week but we've been told he's not constipated because once it does come out it looks normal.

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mydogwantsabone · 26/01/2024 18:20

IBCLCs are infant feeding specialists, not just for breastfeeding. I would try contacting one, in your shoes x

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