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Does anyone have a child similar to this and what was the outcome?

3 replies

OvertiredAndUnderwhelmed · 20/01/2024 14:31

My DS is 20 months and our first child. I have had concerns about his development for around 4 months and have spoke to both the HV and GP who have said they will not look into anything until he is 2.
He started nursery a couple of months ago (nursery are wonderful and he is very happy there) and yesterday I was spoken to on pick up as they too have some concerns although they have given him time to settle in before speaking to me.

Concerns are:

  • Delayed speech - he has approximately 10 words which he does use correctly to label things e.g ball
  • Sensory seeking behaviours - particularly with textures
  • Repetitive ‘play’ - a lot of his play is moving/ throwing things onto the floor e.g off a shelf or table. He does have a few toys he plays ‘properly’ with which are mainly cause and effect toys
  • Hand flapping - we see this when he is excited at home but nursery have said he does it there for sensory seeking too. He also bounces on the spot when excited.
  • He does not point except for very occasionally and to very specific things e.g a star on his changing mat - he does however follow your point most of the time
  • He has not waved ever but will give high fives and shake hands and can clap
  • His eye contact is ‘okay’ at home but more fleeting at nursery
  • His receptive language isn’t great and he doesn’t really understand any instructions however he does understand actions so for example he wouldn’t fetch you his shoes if asked but gives you his feet when he sees them as he understands where they go
  • Quite a strong fascination with hands (both his own and other peoples)

He is a very good eater and sleeper and always has been. He’s also very affectionate and will put his arms up for cuddles and will give kisses if asked for them. He does actions for some songs and will respond to his name about 60% of the time but a lot of this depends on what he’s doing and if he wants to. He does have quite a good awareness of danger e.g will manoeuvre himself carefully down the stairs and hold on and definitely understands ‘no’ although he doesn’t always like being told it!

I appreciate he’s still quite little and that some of these things may change but I’ve had a feeling for a while that there may be something a bit different about him which of course does not change our view of him as the most perfect boy in the world.

I was just hoping people with children who presented similarly at his age but are older now could tell me how their child went on to develop and any suggestions based on experience for supporting him. Thanks!

OP posts:
Are your children’s vaccines up to date?
SearchingForSolitude · 20/01/2024 15:58

In some areas you can self refer, have you checked if you can? If you can’t self refer, ask the nursery to write a letter then speak to the HV and GP again.

If the nursery needs support on how to support DS they can ask the Area SENCO for advice.

If you have portage in your area (and they see DC attending nursery - some areas don’t any more) it is worth looking at a referral to them.

This booklet is quite a good resource.

DawnMumsnet · 22/01/2024 12:01

We're moving this thread to our Parenting topic for the OP and giving it a bump.

Superscientist · 22/01/2024 14:17

My daughter was delayed at 4 months. She scored really poorly on her 4 month assessment. She didn't respond to sounds or smile nor could she be put down for a few seconds without crying
I took out dairy and soya and she was put on high dose reflux treatment and she improved and scored an ok score in her 5 month assessment

At 10 months she started with a few words she gained a few more but between 18 and 20 months she started dropping words and went down to 3 active words and whenever she learnt a new word she lost an old word. She scored ok on the 12-18 month assessment but 0 on the 18 -24 months assessment. We got some activities to try from the HV and she stopped loosing words and started to pick up new words. She had 13 weeks without regular nursery due to various circumstances. She restarted nursery at 2 with about 15-20 words but communicated mostly by pointing by 26 months she was speaking in 2 and 3 word sentences and communicated mostly with words not pointing

She 3.5 now and we have no concerns with her development. She's a summer born and at 2 we thought we would have up delay her entry at school but we have just done the application with no concerns that she can't manage

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