Hi all,
New to mumsnet so apologises as I don’t know the lingo.
I have a beautiful 6 month old who was born a month early. Since 5 weeks she has had horrendous reflux, huge projectile vomits 20 plus times a day. She does show discomfort with the majority of them and soaks through her own clothes as well as mine.
She has been formula fed since 6 weeks due to poor GP advice who told me to stop and move onto the thickened formula (C&G anti reflux). This did help a minimal amount until about 14 weeks old where there was little discomfort (from what we could see) but she was still sick. We managed this until recently.
She has started having spasms/seizures. We rushed her to hospital where she was diagnosed with Sandifur syndrome. It’s essentially that her oesophagus hasn’t formed fully and causes a lot of pain and sick. She also screams loudly pretty much all day, not crying but actual screeching. She seems to be getting worse is just generally not my happy smiley girlie that she once was.
We are now giving her 10ml of omeprazole a day which is a total nightmare to give but we’re managing. We’ve been weaning since 5 months (actual not adjusted) and still on the reflux formula. The GP has referred her but not until late November.
My family haven’t been particularly supportive in any of this and just say she’s a “sicky baby”. I know medically this isn’t normal or comfortable for her which naturally makes me worry sick. They have accused me of medicating her when it’s not necessary and that I’m not being a sufficient mother because I always “want something to be wrong with her”. This totally breaks my heart.
Does anyone have any advice on anything we can do to cope with this reflux? Does it ever get better?! We assumed weaning would but she’s just throwing up food now!
How can I explain to my family that I am not “losing the plot” and that it really does have to be treated. My beautiful baby is just struggling and I feel it’s ok to be sad about it but I’m being made out to be a shit mum and tbh, I’m beginning to believe it.
Thanks so much x