Toddler joint pain?

[Allgirlmom]

My dd age 3 has been having frequent joint pains for 1 year now! All Drs (even pediatric rheumatologist) have all said it’s just growing pains. Even with bloodwork showing some off numbers they aren’t concerned it’s autoimmune. She gets pains usually 2-3 times a week. She sometimes goes longer but then it starts right back up again. I don’t get how they can say it’s normal for a toddler to have pains in her knees, ankles, tops of her feet this often for a year straight and not think it’s something more. I’ve taken her to 5 Drs. The pains usually are only at bedtime. No red or swollen joints. She is active and fine during the day. So they say this is proof enough it’s nothing to worry about.

Has Hypermobility / Ehlers Danos syndrome been considered?

I have Hypermobility and it has caused me some joint pain over the years, particularly if I have been very active. My DS(8) gets leg and ankle pains, particularly after being active or walking a lot, and an NHS physiotherapist assessed him and he has weak hips and so he has exercises to do to strengthen the muscles.

My DS had this, constantly, the poor bugger, from about the age of 2. He was eventually noted to be hypermobile by a physio, and so has had on and off physio for many years, just to manage the muscle tightness and weaknesses that hypermobile people are prone to, which then causes the joint pain.

Sorry to say, he's only just starting to get relief from it in the last year or so, and he is almost 16.

She does have hypermobile knees. I noticed them even before she started having joint pains. But I’m just concerned that her Ana was positive yet they aren’t concerned. Said it was not a high positive and even then it could be a false positive. Just frustrating.

Darn, that’s a long time. Do his visibly bow out? My dd’s legs do but I was told it was normal at her age.

With a positive ana then honestly I'd be saving to see a private pediatric rheumatologist. Surely if they were claiming that it was a false blood result they would have retested. The likes of Eds and hypermobility do not show in the bloods at all.

Both of mine have hyper mobility. Both suffer growing pains which do only occur at night. We use the better you magnesium junior sleep cream and both of them do have relief so could be worth trying if you haven’t.

It was private. I’m in the USA and that’s the only option here. Took 5 months to get in to see her and we were just brushed off and told the positive bloodwork doesn’t mean much? So odd. But I’ve heard this from others as well. My daughters friends mom was telling me how her son had leg pains and food intolerances/diarrhea starting at age 2 as well and she was brushed off. Even with positive blood work. My daughter also has food sensitivities/allergies. No diarrhea or stomachs issues really though. She mostly gets itchy. Or the joint pains.

^^ This. I have hypermobile joints and still get 'growing pains' every now and then. Worth looking into.

My very hypermobile dd was suffering from joint pain. I put it down to teenage growth spurt, hypermobility, whatever.

I asked the gp to check her vitamin d levels (her brother has had low levels previously) and it turned out that she had crazy low levels of vit d.

She's now under paeds for physio and on a super high dose of vit d (with 6 weekly blood tests to check her levels)

What is considered a super high dose of vitamin d? She is on vitamin d but I’m wondering if it’s not enough. I’d need to get hers checked before upping it. Has the vitamin d helped your dd? Or the physio?