So my 11 month old has 3 bottles in a day. But at night he just proper demands for a bottle, he'll constantly keep shuffling and turning, moaning and screaming the house down. This is happening every single night. He's on the bigger side Aswell 99th percentile, and this just can't go on anymore.
I mean me and he's dad takes turns seeing our daughter in hospital who's been in hospital over a year due to her lung disease uses a vent and oxygen etc, it's a lot to get into, she is Down syndrome and has a severe terminal lung disease. So for example I'll go Monday morning come back home around 11 when she goes to sleep, dad will go the next day, then me the day after, days im not with my daughter im with my son.
So when im just trying to get at least just a little bit of sleep I can't because he's just screaming down the house and shuffling and turning?
He's not fully led weaned, like he's not feeding himself it's me feeding him, he just doesn't want to ever try feed himself? He does sometimes with baby biscuits, toast, but the pastas and veg and things he won't, he won't eat proper pasta either he wants it sort of puréed but a thick purée if that makes sense? In the night I offer water first for a while, then baby juice but he just won't have any of it, im out of ideas honestly feel like such a failure
Mentally Im not ok, we received the news my daughter's condition is getting worse, we don't really know how long we have left with her wether it be months or a year, it's hard to say. She's two years old, I can't bear to imagine my life without her. We always knew my daughter's condition has no cure, because she also has two holes in her heart which can't be repaired because of the lung condition and pulmonary hypertension, she's also tube fed she can't eat actual food. She uses a ventilator and oxygen, she has good days and bad days, she hasn't been home for a long time as they're trying to figure out how to make the most stable health plan to get her home permanently, her health conditions are really really complex, im fully trained for all the medical cares. But it's the travelling to hospital, hospitals aren't such a nice place either but I love being with my daughter so it's okay, but it's just been hard lately with my son and he's bottles because he can't keep going on like this, he's going to be one soon, the bottles really need to be reduced to at least 2-3 bottles, no night bottles, start on more solid foods, I could really use some advice