Help- routine needed

[IndigoLight]

I have an almost 5 m old and I'm struggling so much. She has reflux and cmpa so it has just been such a battle at this point.
She has no sort of routine at all, we are all over the place. She can't handle big feeds so I'm feeding her every 4 hours day and night, it's killing me. My dh is very hands on but he works really long hours, has sleep apnea and another serious health condition. We have FT help during the day but even with both of us we struggle, what are we doing wrong?
This is what our day/night looks like some days

7:30 wake up and has omeprazole.
7:30-8:30 she is carried because she is so fussy and will not be put down.
8:30 feed and carried until nap
9:30 -11 Nap: she will wake about 5 times to burp, cry and carried.
11:30-1 : Feed and I try to do playtime. She just doesn't want to be put down. I have bought 3 different bouncers, a few playmates, toys. She will only engage if she's carried.
1-3: Nap. This nap is hell she refuses but is so overtired. She will ONLY eventually sleep on the bed with me observing her. So I just sit there for 2 hours watching her.
3-6: feed, crying, mostly carrying her and bathtime.
6pm : she is exhausted but will only sleep on me. This means my other dc needs to wait to be given supper etc until dh gets home.
6- the rest of the night: utter hell. Waking up constantly, fussing, wanting to be carried.

Please help, I'm so tired and feel at breaking point. She refuses a sling, it sets her off hysterically. I'm physically in pain from carrying her so much. What are other parents routines like?
I never take her out because she's always either throwing up, overtired from disturbed sleeping and just fussing.

I had this with my older ds and it was horrible, I can't believe it's happening again. Please any advice?

Sounds to me like she’s in pain. Is she BF or FF? If FF what formula is she on for the CMPA? Is her omeprazole dosage correct for her weight?

I'm so sorry, I don't have a huge amount of advice to offer but also had the omeprazole and cmpa battle so just wanted to ask a couple things:

What milk is she on?
When did she start the Omeprazole?
Has the dose been increased at all since starting and is it weight based?

Sending all of the sympathy, it really is bloody awful. I had a similar experience for a while but the correct dose of omeprazole and a different milk honest to god gave me a new child!

Hi thanks for the replies. She is on Neocate and 10mg Omeprazole for around 3 weeks. She doesn't seem to be in pain much just extremely fussy about being put down. I'm worried that she doesn't do any tummy time and pretty much is carried a lot. This morning she went to sleep in her cot and woke up after 10min. I placed her on my bed with a pillow under her neck and she has been snoring without waking for the last hour. We have tried making her cot comfy while trying to be safe. Last night I gave up about 3am and placed her on my bed and lay next to her. We got about 2 hours of sleep. She just wants to be on my bed for naps, I won't co sleep as I'm a deep sleeper and take medication at times.

Oh bless her! I know that some littles don't tolerate Neocate but if you're not feeling she's in pain then it could just be that she's used to it in a way. I know with mine it seemed like she'd attributed laying down or tummy time as when she'd be uncomfortable, even when I was certain she wasn't anymore. She did eventually realise it really was okay!

Totally fair to not co-sleep. Could you perhaps pop a mattress in her room and relax on that while she has her naps, just to get her used to the cot while you're still in with her?

I can't see your routine again as my app seems to be glitching, but are you following wake windows at all? That was a game changer for us.

Sadly I think the only way is slow and steady until things settle. Always try and start/resettle in the cot and hopefully she'll start going a little longer in there.

Things WILL settle though!

I agree it sounds like she isn’t on the right milk. The CMPA Facebook page is amazing.

I would also use a ‘floor bed’ for her afternoon nap so when she is old enough you can leave her to sleep alone.