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Parenting

Worried about preemies development

12 replies

Notlong2go · 19/03/2023 16:12

DS was born at 26+3 and was born without a heartbeat, they had to work on him for 17 minutes before getting a pulse.
He is going to be 1 the beginning of April but is currently 8 months corrected.

He still can't sit up unaided and when he does sit up he ends up slouching to the side. If I put him in a pram he just ends up leaning to one side. I know that he was born very early so he's not like term babies but I can't help but worry.

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IneedanewTV · 19/03/2023 16:15

Oh please don’t worry. He is only 8 months in reality so many many babies do not sit up at that age. My son was early. I’m just so grateful he is here and well. He is now 20. Please enjoy your baby it goes so quickly.

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Notlong2go · 19/03/2023 16:20

@IneedanewTV thank you for replying. I know I shouldn't compare to other babies but I just see so many doing things already that he isn't. All my others were doing so much more at this age. Weaning has also been a nightmare

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Thisisthedawningoftheageofaquarius · 19/03/2023 16:23

I have two born at 33+1 and were slower in their development than their corrected age. They are now 12 &10 and in perfect health. If the doctor and public health nurses are happy then I’d let that reassure you. It gets easier! X

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Bunnyhascovidnoteggs · 19/03/2023 16:30

My friend's 28 weeker is nearly 34! She has 6 dc and no health issues at all.
Back then 28 weeks was the abortion cut off!

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Notlong2go · 19/03/2023 16:50

@Thisisthedawningoftheageofaquarius i get conflicted advice and opinions. Will have another appointment in the coming months with his consultant so hopefully he will have come on a lot more by then.

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Notlong2go · 19/03/2023 16:52

Also, when he was born the doctors were adamant he was going to be severely disabled as he was starved of oxygen for so long. Of course and thankfully he isn't but I also know it's better to be aware of any developmental delays as if he did have any problems then we could get help sooner for example seeing a physio.

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AfterGlow87 · 19/03/2023 18:06

My little boy was born at 32 weeks and didn’t start to sit indecently until 9 months corrected. He was actually delayed with some of his gross skills and just started walking last month at 21 months corrected. When is his next developmental check OP? I was referred to physio at 8 months corrected when he was late to roll also and it really did us the world of good! I would push for a referral if you’re worried at all, even just to have him assessed. He has time to catch up as he’s only 8 months corrected.

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gogohmm · 19/03/2023 18:13

My friends son (26 weeks and a twin) needed support to sit when I knew them 20 years ago, he was 3, he was in a buggy still, crawling or walking, then switched to a wheelchair - imagine my surprise when (having lost touch) we reconnected through a friend when the kids reached 18 - he walks really well, mild cerebral palsy but not significant to affect day to day life, got top grades and went to a top university, he's now a lawyer in disability rights.

Try not to worry, extreme preemies do take their time but the vast majority do really well, even if they aren't going to be Olympians, perhaps Paralympians!

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Notlong2go · 19/03/2023 18:14

Hi @AfterGlow87, we had a follow up just last month so won't be for a couple of months I don't think. He has rolled over but not often and just falls to one side whenever I try and sit him up whether that be in the high chair or pram.

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enidblythe · 19/03/2023 18:20

I would get him checked out and get him some physio to bring him on that way you can be reassured.
Did your unit have a follow up clinic with developmental resources - maybe links with some of
Those

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newtb · 19/03/2023 18:47

DD was born at 40 weeks, didn't sit until 9 months or walk until nearly 15. At 2 she wasn't speaking. Now bilingual.

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Notlong2go · 19/03/2023 20:12

Thanks everyone for the replies. @gogohmm that's great, definitely reassuring. @enidblythe yes he had a follow up I think it was January, seemed ok then, should be having another follow up in the upcoming months. He is also on home oxygen still. Recently had to go back up to 0.4 which was what he left hospital in so that was a bummer.
When nurses or HV see him though they put on so much pressure with his weight even though I try and feed him all the time. I feel like they blame me! Then with his oxygen, they basically blame me for having sisters over because he could be catching colds from them.