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Parenting

For free parenting resources please check out the Early Years Alliance's Family Corner.

How did your child's dyspraxia get diagnosed?

11 replies

YukoandHiro · 18/01/2023 10:55

I'm querying my 5yo daughter. She's always been delayed on anything gross motor related.
At school she seems fine with writing, so nothing has been picked up by the teacher. But as home we're still really struggling with physical aptitudes.

  • Can't do up or sometimes even undo buttons
  • can't do up a zip
-Still struggles to dress herself without help if it's anything other than just joggers and a t shirt
  • Can't ride a bike at all, and not interested in trying hard to work it out
  • Loves swimming lessons but isn't really making any progress, struggles with the coordination necessary

I've really noticed the difference with my toddler who already had loads of control and command of her body - eg can already undress entirely by herself (she's just turned 2) and v confident climber etc.

I'm wondering what I should do to query dyspraxia? Should I ask her teacher to monitor her? The GP?

She's in year one but an august birthday so very young in her year.

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CurlsLDN · 18/01/2023 11:10

Hi, my son is in year 4.
from early on school noticed a couple of things - very wriggly, sensory seeking etc, spoke to me and put things in place such as sitting him on a wobble cushion.

as he’s gone through year 1,2,3 his writing difficulties have become more and more apparent. During lockdown it was especially hard as he struggled with everything sent home being worksheet based. I spoke to school then as he was getting very upset, but little they could do at that time.

once back in school, yr 3, I’ve had regular contact with his teachers, who have put extra support in place such as sometimes using a laptop and giving him typing practice. In year 3 the school suggested they refer him for further assessment.
they filled in initial forms, gave me some forms to fill in, and then they sent the referral.

it wasn’t until recently in year 4 that the appointment has come through. He has gone, with me, to a specialist centre and been assessed by OTs for fine motor skills in one session and gross motor skills in another. They’ve looked at him writing, watched him cut up food, tie shoelaces, get dressed, jump and skip, throw and catch and lots more.
as a result he has been given daily physio exercises to do to strengthen certain muscles and improve balance, and been given writing exercises. They have recommended certain pens etc to use in school and put him on a short handwriting focus course with a physio.
they said when he’s 9 he can do the dyspraxia assessment and also a handwriting assessment, which would give him a formal diagnosis.

for us, I don’t care that he doesn’t run fast or doesn’t like to go on zip wires or takes longer to get dressed, who cares? None of that matters one bit.
the focus for us is the writing, as his brain is fast but his hand is not capable so it is a physical block to progressing in education. The rest of it is just his quirks, nobodies perfect at everything

AmySma1 · 18/01/2023 11:17

Hi, My girl has just turned 4, and it affects her gross motor skills. The symptom or trigger for diagnosis was that she can't feel or understand potty training. We went 2 months before she turned 4 and the doctor put the dots together to refer for an assessment with some catch and jumping activities etc. It took until December (4 months) but then we had a confirmed diagnosis and currently we are working on exercises to improve her motor skills.

It doesn't affect her fine motor skills as much and I wonder if it was the other way round at that age it would be harder to spot.

AmySma1 · 18/01/2023 11:21

Just to add she matches a lot of the traits you've mentioned. She can't dress herself properly to the point she evens struggles to pull her pull ups up and down. She can put a t-shirt on but it affects her worse when bending down. She has to be dressed into her coat and boots at nursery

She also loves swimming but it's more just being in the water and splashing about and hasn't learnt any technique.

I'd try visiting the GP and bring a complete list

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YukoandHiro · 18/01/2023 11:24

Thanks - we also have some sensory issues (eg she's a very picky eater and literally gags on some textures) but I don't have any adhd or autism queries as yet as she's extremely comfortable socially and also is able to concentrate on tasks.

With her it's all gross motor delays. She was late to potty train successfully (3.5 before fully dry) and is still in pull ups at 5.5. She was late to jump. But she can now jump... so I'm not sure if I'm looking for problems where there aren't any really?

Last night at her swimming lesson it was really obvious that she's just really struggling with the coordination necessary to actually do it.

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YukoandHiro · 18/01/2023 11:26

Thanks @AmySma1 - I think I will mention it to her teacher and the GP

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YukoandHiro · 18/01/2023 11:28

Sorry I should say she is still in NIGHT pull ups. She's dry and clean in the day and has been since before 4.

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Brendabigbaps · 18/01/2023 11:29

In my local area you can refer your child to an occupational therapist yourself. Check your local nhs trusts website, or have a look for local Facebook support groups that cover neuro diversities (may be titled adhd or asd but a lot of the kids will also have dyspraxia) and they will be able to point you in the right direction.
You should be able to go through your gp too but that’s often a struggle.

AmySma1 · 18/01/2023 11:33

Bless her, yeah it affects some differently. Happy to PM if you're after other support or have questions!

Twilightstarbright · 18/01/2023 14:01

My 5yo DS has suspected dyspraxia (too young to diagnose) but a good OT has really
supported him, especially with the jump to yr1. He’s a July born and has always struggled with motor skills. We’re on a watch and wait for a diagnosis but the OT thinks dyspraxia is likely.

YukoandHiro · 18/01/2023 19:44

@Twilightstarbright how did you get the OT? Are you paying privately? Or did you get a referral?

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Twilightstarbright · 18/01/2023 19:45

Currently private. We did receive a block of NHS OT when he was 3 but we moved areas and are still on the waiting list for NHS two years on.

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