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Original poster

Thought baby rash was cmpa but now not so sure

22 replies

massivecringe · 11/12/2022 09:36

So just to clarify baby does have cmpa, she has the mucus poos, constant sneezing, reflux etc.

At the beginning of November a rash appeared, this was when I started thinking could it be cmpa, along with the other symptoms it all fit. By the time we got a gp appaointment the rash was better but still there and still felt rough. At this sort of time ds was ooorly with a virus, bad throat and cough but no fever or anything, I also caught it, felt a bit rough but not bad and had a dry throat and a little cough that cleared quickly. Dp then caught it and had white spots and a sore throat (this isn't unusual for him he always seems to get white spots on his tonsils if poorly)

Changed her milk with the gp to aptamil pepti 1 and the rash started to fade completely. What didn't and hasn't changed though is her mucus poos, they've got worse now. So think we need to try the amino acid milk, think that's what it is ?

Anyways my point is, could this rash have actually been scarlet fever and we just didn't realise it at the time ? I know I'm grasping but the rash did feel rough like sandpaper and along with us all having some kind of virus and the fact that the rash is now gone but the mucus in babies poo remains I can't help but wonder ?

Attaching a pic of the rash

OP posts:

Original poster

massivecringe · 11/12/2022 10:29

Anyone have any thoughts? Would the mucus pops have disappeared with the rash or is it possible for one symptom to go away while others stay ?

OP posts:

quietnightmare · 11/12/2022 10:45

No idea

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HiKelsey · 11/12/2022 10:51

Has the rash totally gone now? Or does it still feel rough?

Has babies reflux settled or is that still remained along with the poos?

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romdowa · 11/12/2022 11:00

Pepti 1 isn't actually a dairy free formula. It's just had the proteins broken down. This is probably why the mucus is still there. I'd go back and ask for an amino acid based formula which is 100% dairy free. The rash cleared up because of the broken down proteins .

Original poster

massivecringe · 11/12/2022 11:42

The rash has completely gone, it cleared up within a couple of days of starting the milk.
She still has reflux, still coughing when feeding, still sneezing loads.

Her poos initially got thicker and much better when starting the pepti 1, but then she had her jabs, she went off her milk, and her poo became mucusy. I blamed this on the jabs, but it's been nearly 3 weeks since those jabs and she still doesn't take much milk anymore and the poos have got bad again. She is also staring to become dusty in the bottle, wants it but won't take it without crying out.

She was like a difffent baby at first, really happy and content but she's back to being uncomfortable and miserable again now

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Original poster

massivecringe · 11/12/2022 12:09

Also the hiccups are still bad. Just feel for her, this would be the 4th milk we've tried since birth, she's ten weeks.

Can anyone tell me about the dairy free stuff?

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TunaJacket · 11/12/2022 12:10

Mucus poos are the last things to clear with CMPA as the gut takes a long time to heal.

Youre talking probably 6 weeks if not more

Original poster

massivecringe · 11/12/2022 12:29

TunaJacket · 11/12/2022 12:10

Mucus poos are the last things to clear with CMPA as the gut takes a long time to heal.

Youre talking probably 6 weeks if not more

Really? That long ? The doctor has only put us on a 2 week trial, it's been 3 weeks now

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Pizzaandsushi · 11/12/2022 13:15

We were in your position. Rash, explosive nappies, hiccups constantly, terrible reflux, lots of wind and generally a very very miserable baby.
He has cmpa. We started on a hydrolysed formula similar to Pepti called nutramigen. At first it worked brilliantly and rash went away in a matter of days. However, after a couple of weeks symptoms started coming back.
It’s because the hydrolysed formulas are still milk just broken down so he was still reacting.
eventually moved onto a amino acid formula Neocate. Lab made. No dairy at all and things sorted themselves out. There’s three amino acid formulas Neocate, Alfamino and Puramino.
Neocate is like the original allergy formula.
It is still incredibly thin so our baby still had reflux but it didn’t hurt him so we just accepted the sick. As soon as we started weaning and he could sit up unaided all the reflux disappeared.
I know it seems like a lot of change in formula so young but it’s good it’s being treated so early and these allergy formulas are unpalatable compared to standard so the sooner a baby gets on them the better so they don’t refuse them

HiKelsey · 11/12/2022 14:59

massivecringe · 11/12/2022 12:09

Also the hiccups are still bad. Just feel for her, this would be the 4th milk we've tried since birth, she's ten weeks.

Can anyone tell me about the dairy free stuff?

That's actually quite a lot of milks. Youu should give each milk 6 weeks to let the old milk leave her system. If you got a amino acid one like neocate which is totally dairy free it'll likely flare her reflux worse so will need a thickener too

Original poster

massivecringe · 11/12/2022 16:13

Honestly just don't know what to do now ? I said to the doctor I don't like having to change her milk and she said it's not an issue but the health visitor said it's too many changes. She just isn't happy on any of them !! She was happiest on hipp I'd say but the mucus and nappy rash was awful...
she's been happier on this kill but as I've said still lots of mucus poos, nappy rash is back, and also explosive poos starting again.

Should I leave her on the pepti 1 for a few more weeks and see if the mucus clears ??

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Pizzaandsushi · 11/12/2022 16:32

@massivecringe I would ask your doctor for a referral to an Infant Feeding Team. You need to speak to people who really specialise in this sort of thing.
we probably went through just as many formulas as you in less than 3 months and only saw improvement from going from standard to hydrolysed to amino acid.
we also started on Hipp and in fact used it as part of the challenge to confirm his milk allergy (all under the guidance of Alder Heys Infant Feeding Team).
whilst I agree it’s not great to keep changing formulas. To keep them on a formula they are having an allergic reaction to is not good either.
We were told we should notice a real change after 2-3 weeks of a hydrolysed formula. We were put on a trial for two weeks as well and then had our first Infant Feeding Team appointment an extra week after that so 3 in total on Nutramigen and they had no problem after seeing how he reacted during and after feeds to switch his formula to an amino acid one straight away.

HiKelsey · 11/12/2022 18:23

massivecringe · 11/12/2022 16:13

Should I leave her on the pepti 1 for a few more weeks and see if the mucus clears ??

Other than the explosive poos and rash is she OK in herself? If she's not screaming 24/7 I'd try give her a couple more weeks. But if you're gut says she's not right ask for a amino acid formula like neocate, then a thickener like carobel (which is similar to soya so she could potentially react too) or gaviscon. Is she having medication for her reflux?

HiKelsey · 11/12/2022 18:25

Ask for you HV or GP to send a referral to the dieticians as it may take a while for you to get a appointment so you'll need them for weaning.

Join a group on Facebook called main CMPA group, it's so good. So many parents like myself who can support you, give you advice on milk, medication and weaning tips for cmpa and multiple allergy children x

Original poster

massivecringe · 11/12/2022 20:34

Thank you so much for the advice ladies, this is all new to me as ds didn't have this issue.
So she is on gaviscon and has been from two weeks old, she only had the 1 sachet a day but it seems to help. But I know the hiccups are because of the reflux so maybe I should go the dose? I know they can have 6 sachets a day but I don't want her to go the other way and the become constipated...

She does seem a lot better in herself to be honest , she was on aptamil from birth and just so uncomfortable all the time, we switched to kendamil and her poos were constantly explosive and she cried every time she tried to do one, then the mucus began. This is also when the rash started to appear. We switched her to hipp and she became a lot better in herself, her poo initially thickened up and got alot better, then it was mucus galore ! But she wasn't struggling when she needed to go, at this point I went to the doctor who said the rash, mucus poo and reflux was enough to suspect cmpa and started her on the trial of pepti 1, and that brings us to now.
She was better on this at first but now she doesn't seem to drink much of her bottles, the mucus has got worse and she has nappy rash again. But as I said, she seems a lot happier.

I'm just worried about starting her on yet another milk, she's only got an immature digestive system being young and also with the allergies it's extra delicate. It's so hard to know what to do for the best

The doctor did say we would be put in touch with a dietician for weaning

OP posts:

Original poster

massivecringe · 11/12/2022 20:35

Another thing I was combi feeding for 6 weeks, every time she had breastmilk she would really struggle and I was like, but it's natural ?! But thinking about it it was probably the dairy I was eating too wasn't it

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StressedOutMama7808 · 11/12/2022 23:26

I could've written this post.

DD2 had exact same symptoms, the only thing that cleared after I went dairy free was her rash.

She was a much happier baby, but poos still very mucousy and still had reflux.

I posted a thread on peanut and a mum suggested soy allergy. I stopped eating all soy and after 3 weeks her spitting up has almost disappeared and her poos are almost back to normal.

GP is hesitant about an allergy so they've taken a stool sample to rule out infection. I'm just waiting on that to come back before they refer DD2 to paeds. My instincts are the soy allergy though. She's been so much better once I stopped it.

We tried nutramegin and aptamil pepti but she simply refuses formula.

HiKelsey · 12/12/2022 00:50

If it helps DD was 4 months before she was diagnosed and 5 months before she finally was put onto neocate with gaviscon and omeprozole to help with her reflux. When we started weaning we found out she had some more allergies so she's allergic to soya, dairy, egg and wheat but at 3 years old she's growing perfectly. Small in height like me but putting weight on. Her reflux is still uncontrolled and any type of bug flares it and sometimes if flares then she gets sick with ear infections but she's getting investigated for her reflux. Weaning and sitting unaided did really help settle her tummy during the day.

If your daughter is having really bad nappy rash I'd be inclined to change her milk and stick with the amino acid formula for 6 weeks minimum. Is her nappy rash a rash or like she's been burnt? Dd used to have burns because of the acid coming down instead of up.

Original poster

massivecringe · 12/12/2022 06:03

Interesting both your dcs also have allergies to soya too.

Her happy rash is red raw, definitely like a burn rather than a rash. It looks so sore and I've used Vaseline as a barrier, sudocreme and also now metanium is it ? None of it clears it up.

The odd bottle she will drain and seem fine drinking, but some of them she pulls away and squirms but then cries as she does want it. She also coughs loads when feeding and always has done

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HiKelsey · 12/12/2022 09:21

I had to get a barrier cream from the GP in the end for her nappy rash. I'd change to a amino acid, her bum will be really sore and DD would cry when she weed it was that sore.
Soya protein is very similar to animal protein, I think it's a even 50/50 split if you have cmpa hat you're allergic to soya

StressedOutMama7808 · 12/12/2022 13:42

@HiKelsey thanks for sharing about your DD. Do you know if she'll ever grow out of her allergies?

DD1 had CMPA, no soy, but grew out of it by about 18 months. She can drink pure cows milk now with no symptoms.

I really hope DD2 will grow out of her allergies.

HiKelsey · 12/12/2022 19:33

StressedOutMama7808 · 12/12/2022 13:42

@HiKelsey thanks for sharing about your DD. Do you know if she'll ever grow out of her allergies?

DD1 had CMPA, no soy, but grew out of it by about 18 months. She can drink pure cows milk now with no symptoms.

I really hope DD2 will grow out of her allergies.

DD is 3 and she's my only child. She hasn't outgrown any of hers as of yet but we start the wheat ladder in the new year hopefully.

I have seen a lot of children out grow theirs by 1, 2 year old but unfortunately we haven't as of yet

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