Worried about daughters health

[Familyiness]

She's 16, she's had frequent bouts of tummy issues.
Gp sent off stool sample and bloods done, no bacteria, but stools tested positive for blood and bloods positive for infection markers, she did have tonsillitis the same week she had her bloods.
We are waiting for an appointment for specialist, she also has mouth ulcers, and painful joints, her knees lock up a lot.
I'm concerned because my grandad had crohns, and died of bowel cancer so did my nan.
Should I be worried?

Has she been tested for coeliac disease? Because my big symptoms before I was diagnosed was mouth ulcers and joint pain - I'd always had a 'sensitive tummy' as a child and it was only once I was gluten free I realised how abnormal it had been

I was just about to type the same thing. Sounds more like this to me.

@CMOTDibbler yes it was one of several tests they did with her bloods.
Came back normal for coeliac disease, that's also on her dads side.
Checked thyroid too, as have hypothyroidism, as do many members of my family.

Did the GP order a faecal calprotectin test on the stool sample? It indicates whether there is inflammation in the bowel and is usually a first step in diagnosing Chrohns or Ulcerative Colitis.

The antibody test for coeliac can come back negative even if you have it, she needs a genetic test and duodenal biopsies to properly rule it out

I'd agree that with a family history of coeliac that an endoscopy would be a good idea and then they could look at other possibilities at the same time

Also wondering if they did a calprotectin test. How high were the inflammation markers? CRP? Crohns can affect anywhere from the mouth to the end of the digestive tract, but my daughter (who doesn't have Crohns) got mouth ulcers when her ferritin was low. It's gone away with an iron infusion. When another child was diagnosed with Crohns, I just 'knew' something was very off. Exhaustion, tummy pain in a particular spot, underweight, muscle pain.

@lifeinthehills They didn't really give me too much info. She has learning difficulties and is awaiting assessments for high functioning autism, struggles on the phone, I usually have to take over, she either doesn't know what to ask or struggles to understand what they are telling her.
I do think an endoscopy will be needed to find out where the bleeding is coming from to start with. She's been unable to make it into college for ages, either too tired or she's on the loo for hours and can't risk the bus journey.

@Familyiness My child with Crohns is also autistic. Your last sentence does sound a lot like potential Crohns. It can take time to find the right treatment but my child is able to work and is doing so much better with treatment. I hope you can get endoscopy and an answer soon, so you can begin turning things around.