2 year old with no speech or understanding

[lucylucyapplejuicy]

Hi,

My little boy is 2, he's the apple of my eye I adore the little chap but it's becoming increasingly obvious to be that we are going to face some challenges along the way for him.

He has no speech, no mama/dada etc just kind of random noises and a long drawn out groan he does for hour on repeat or when tired/upset. Now it's not the speech that worries me too much it's more the fact he has no understanding. No sit down, come here etc he really does live in his own little world. If he wants anything he will hand lead us to it. No pointing and limited eye contact.

He doesn't really enjoy playing with other children or his siblings, he will occasionally chase them or all bring a ball to me to throw. He also likes to line up his toys.

He is such a gorgeous little fella and I adore him but I really do think he's a little bit different. Health visitors just referred us to a toddler talk group which I can't say is helpful. I've mentioned it to GP who of course at this age says not to worry but you know what us mums are like! That's our job to worry

Can anyone relate or have any similar experiences? I don't care if he's autistic, has learning difficulties etc he's my boy and that's that, I just feel like I'm being fobbed off constantly and not sure how best to help him as he seems to be getting more frustrated by the day.

Couple of other traits he has...

-terrible diet (only around 10 foods he will eat and trust me I have tried!)

-runs away as soon as he isn't strapped in or on reins which scares the life out of me.

-not overly affectionate

-doesn't respond to name

Anyway, sorry for waffling on, not sure what I'm hoping to achieve but some company or stories from mums who have been through this would be really helpful!

Thank you
Xx

Hi my toddler sounds the same. He doesnt respond to his name or anything. He is 2.
I'm worried . I Google alot but cant find much help. Hv has referred but I havent heard anything. I'm worried that he may never understand. Heis happy and growing well. Did anyone child start understanding after 2? How is everyone's children doing now. Please respond

Hi @lucylucyapplejuicy are you still around? Just checking in for an update pn your little one as experiencing something similar.

Hi @Emerald237 little man is doing great & almost 3 now! He is still non verbal and little comprehension, he communicates mostly by hand leading us to whatever he wants at that time as still no pointing etc. He's a quirky little guy makes us laugh a lot he's happy and that's what matters he seems oblivious to all our worrying 🤣 his running away in public and no sense of danger scare me the most he really fast and just runs so trips to the park are always fun (not sure how I've not lost weight haha) he has become much more affectionate and will cuddle and kiss now with people who is very familiar with (me and dad) but only on his terms, we take whatever we can get 😊 he is on the MAAT pathway now and we are all (gp, hv, salt) quite sure a autism diagnosis will follow but that's fine, he's started to see SALT and we are doing the 'more than words' course which is informative. Other than that we are taking each day as it comes, his meltdowns are becoming harder as he gets older and he is very strong but we are adjusting. Hope you and your little one are well. Any other questions let me know, sorry for waffling x

I have sent you a PM 😊

Hi @lucylucyapplejuicy any updates now he’s 3? Going through the same with my 2 year old and looking for hope that one day he will understand. Comforting to know that there are other mums in the same boat, feel like I’m the only one most of the time!

Hi @Alice0
Little man is 3 now and still has no speach he is however trying a little more and making more sounds. Still hand leading for all his needs etc but we are trying PECS now. Understanding has still not developed which I won't lie makes life quite challenging some time, little fella is super strong and wearing age 4-5 clothes but we still heavily rely on the pram when out and about to keep him safe. He is on the MAAT pathway now for Autism now. Feel free to message me if you want a chat xx

.

Hi, I hope you're doing well. How's your little one? We're in a similar situation right now, I would love to hear about your experience if you're open to sharing. Thanks so much!

I would echo this. He needs a proper assessment.

@LittleMonkeyJumping

Hi! Ahh hope your doing well & little one is too.

DS is 4 now and as gorgeous and cheeky as ever! He's still non verbal but is under SALT and is having 1-2-1 sessions and is starting to use communication cards, not always but is getting to grips with it. We've kind of found our own way to communicate and while it's super hard and challenging we do muddle through. He still hand leads but does occasionally point.

He is super cuddly now a days which was a really welcome surprise but only really interacts with myself, his dad and his pre school teacher. He still doesn't give direct eye contact and is a very fussy eater. Some aspect have got harder as he still runs away a lot and is a lot faster and stronger but we have ways of dealing with this.

He is now on the pathway to diagnosis for autism, he has a section 23 and we recieve high rate care DLA (still in nappies, doesn't sleep, has to be supervised all the time)

It's been a tough few years but I wouldn't change him for the world he's my boy and I'm so proud of him, it's much different than with my first now we celebrate the little wins like sitting at the table to eat, trying to communicate etc.

If you have any other questions feel free to message me
Xxx

Thank you for your quick response, and bless your gorgeous and cheeky boy! Even though my little one keeps me awake many nights instead of sleeping like other children her age, she fills me with energy when I come home exhausted from work. I've been reading that glue ear is common in children aged 1 to 8, which can cause temporary hearing loss for a few months or even years if not treated with grommets. I've come across this information repeatedly. I took out health insurance for her at £17 a month, just in case she needs grommets, as I've heard that private treatment can cost between £3,000 and £4,000, which I can't afford. The NHS waiting lists also seem long, or maybe I'm just being overly worried. Regardless, I love my little girl, and she's the best thing that ever happened to us. Thank you again for your prompt reply, and I wish you all the best!

Lovely to hear this update xx hope you don’t mind me asking but food wise how is he ? ☺️

Hello any update on your little boy @lucylucyapplejuicy . I have similar concerns with my daughter