Any experiences with floppy larynx?

[Nat888]

Took my 4 week old to the gp with wheezy squeaky breathing and tummy pain. They said he has a floppy larynx and it's not immediately anything to worry about and usually goes away after about a year.

It's terrifying. The wheezy breathing is scary enough but the squeaks randomly when he's sleeping and coughing when he feeds are scary. We are already doing everything the GP suggested in terms of upright feeding, wind often etc etc but feel so helpless otherwise to help him :(

Just wondering if anyones little one has had this and how/when/if it went away

Oh thats the nickname for it. The medical full term the GP couldn't quite remember

My DS had this, grew out of it when he was about 10months. Laryngomalacia

The only time they will treat it is if it is causing major problems with feeding/weight gain

The full name for it is laryngomalacia 😊 I don't have a child with it but I have cared for babies with it and would say the same as your GP did, to use the feeding advice and take him back to the gp if tge wheeziness gets worse.
Was he referred to the hospital or did the GP diagnose him?

Thanks all. GP diagnosed it from symptoms (she did listen to his chest but no further examination) he still feeds ok just occasionally chokes so lots of stopping and starting. He was last weighed at 2 weeks and had regained birth weight and a bit more. He seems to be in bigger clothes now (he was in tiny baby as was small) so I feel he is gaining weight. He isn't sick - just the choking during feeds

No personal experience OP although I have cared for many babies with laryngomalacia in my professional life. I agree with everything said above, but personally would also ask to be referred to ENT and also SALT (speech and language therapists) to rule out any kind of aspiration going on with feeds as the choking you describe and wheeziness could be a sign of this. You havent said how you are feeding him, but if bottle feeding make sure you are using a slow flow teat if possible. If breastfeeding, it would be useful to seek advice from a lactation consultant as they will have lots of tips for optimal position etc to help in this scenario.

My ds was born with it but he grew out of it over the next few months and it never caused any issues with feeding/weaning or speech etc. I think it sounds worse than it is but remember, it's not wheezing, the noise comes as they breath out so they are not struggling to get air in.

I've been told my baby has the floppy larynx thing too when I took my baby to docs about the same thing, I didn't know the choking thing was linked!! I've been to breastfeeding classes about it as suggested by midwives and doctor. Anyway the choking of ant very often now, I was upright feeding for a long while but found it very uncomfortable, so changed back to horizontal type feeding and seems loads better? God knows what happened. We don't have the high pitched breathing thing that much really.

My baby was diagnosed 24 hours after birth by a camera put up his nose. Your GP should of referred you to ENT as they need regular check ups. My baby takes ages to feed but is putting on weight.

Def needs ENT and likely SLT - regular coughing and spluttering when feeding should always be investigated as it can be very detrimental to health.

My son has it , he is 6 now and still a very loud breather in his sleep, or if he has a cold

But because he thrived he was discharged from respiratory care at the hospital at 3.5 years old.

It never seemed to bother him