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Parenting

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5 year old, possible ADHD, really struggling

24 replies

CasperTheSecond · 02/06/2022 13:49

I am really really struggling with my 5 year old (almost 6) DS as of late and I don't know what to do. I have tried everything, and now I just find myself going straight to shouting all the time, because nothing seems to work anyway and I am so so frustrated. I know I shouldn't shout and I hate myself after. I am constantly telling him off or telling him no and it's really getting me down.

DH has undiagnosed ADHD and has been waiting for an appointment for a while to get a formal diagnosis and we think DS may have it too. DS's Teacher was surprised when we suggested it at the beginning of the school year, but in recent conversations we have had, she seems to be seeing certain behaviours that we see at home that she hadn't previously seen. She has absolutely zero concerns academically though, he is doing very well in that sense and he is well ahead of where expected. He's amazing at reading, writing, loves art and crafts, he's always drawing or making something. He also likes role play.

So I know some of his behaviour could just be normal 5 year old behaviour but I feel like it's getting worse, not better and I thought he'd have grown out of a lot of it by now. He's not necessarily badly behaved, doing things on purpose, or "naughty" for want of a better word, he's just...annoying/irritating/frustrating if you know what I mean? You will see if you read on.

The number 1 issue for us is the not listening. I am repeating myself 100 times a day and I'm really not exaggerating. I will ask him to stop doing something and within 1 minute he's doing it again. Rinse and repeat. I am sick of the sound of my own voice, don't do this, stop doing that, no etc. I've tried explaining why I don't want him to do something i.e he/someone could get hurt, could damage something etc, I have tried distraction, time out for not listening to me, giving warnings, other consequences for not listening, even simple natural consequences, literally nothing works at all. And it's the same things I'm telling him about over and over, day in day out. If we question why hes doing something he's already been asked not to, all we get is "I don't know". I even resorted to asking him "do you understand" or getting him to repeat what I'd said back to me to confirm he'd heard and understood what I'd said and even that doesn't work. I've threatened to take him for a hearing test because he must not be able to hear me telling him to stop doing something since he's doing it again. I've tried explaining that if I tell him not to do X now, that also means I don't want him to it in 5 minutes, or an hour, or tomorrow or the next day. Says ok but still does it again. I feel sometimes he knows, as he will look over at me before doing it or even whilst he's doing it, and immediately stop if he sees I have noticed. Is this an attention thing?

He doesn't have any friends to be honest, and I'm wondering if he just struggles with forming relationships. He gets invited to all the kids parties in his class and runs around the playground at pick up times with kids from his class etc, but he doesn't seem to have any close friends in particular. Other parents think he is funny/sweet, and a nice boy. His teacher said he seems to flit from one person to another a lot. He sometimes gravitates towards the not so well behaved children in his class, that are rough (playing wise) and not very nice shall we say. One child bit him on the face (maliciously) and he still tries to play with him even though we've told him not to, as friends don't bite each other on the face. But he just doesn't get it. He also seems to be a bit of a tell tale, and will tell the teacher of other kids bad behaviour, which might be affecting him making actual friends. He also goes up to other parents at pick up time and will tell them what their kid has done or said that day or if they've been in trouble. It's a bit embarrassing really as he just comes across as a busy body.

The rough play has started to transfer to home as he is so rough with his little brother, and he keeps hurting him. It's not malicious tbh but it's so frustrating that he's not understanding he cannot play with his brother the way that he does. He will drag him by the neck of his clothes, or his arm and then swing him around and let go, so he goes flying, which inevitably ends in tears. Or it can be as little as he gets too carried away pushing him on something, so DS2 falls off and hurts himself, even though literally minutes before we've asked him to calm down/go slow. He is not careful and doesn't think about how his actions could hurt someone else. He also cannot share, and is always taking things off DS2 and when he's clearly frustrated because he wants it back, DS1 will have a tantrum about giving it back.

The next issue is the constant questions. I've started to sound like my own mother, trotting out "because I said so" or "I don't need a reason" because I am so exhausted with all the questions. Why is his favourite question. He knows the answer why, because when I respond by saying why do you think, he tells me the correct answer. He does sometimes have a bit of a meltdown if you won't engage in a conversation with him though which we are finding is happening more and more lately. He's started to make statements instead of asking an outright question lately too, so for example, he will ask if it's lunchtime yet and I've said no not yet. And instead of asking me again (because I've said don't ask me again) he will say "I guess it's not lunchtime yet" and wait to see if I say something. Or he will know I will say no before asking, so he will say "I was going to ask for chocolate but you will say no won't you", but he's saying it because he really he's asking for chocolate?

The next issue, is always needing to know what is going on which ties in with the constant questions in a way. Is it lunch time, is it time to do this, when is daddy home, what road is daddy on, is it brothers nap time yet. If we say no, not time yet, he cannot stop asking. He cannot tell the time, but asks what time is X happening. If we tell him the plan for the day in advance, or say we might do X later, he does not shut up about it. He will nag and nag so much, that we end up getting cross and not wanting to do the nice thing we said we might do. He can't handle "later" "maybe" "might" "not yet" "in a bit" "soon" answers. But on the other hand, also cannot handle a simple no either. Even telling him "please don't ask me again" results in being asked again 5 minutes later. I have had to tell DH to stop telling him he will do things with him, because if he says I will take you out on your bike later, as soon as DH steps through the door from work, DS is asking are we going out yet, and he will not accept DH wants to sit down for half an hour as he's just got in from work. I've started setting an alarm on his watch for certain things I know he will nag me about all day if I don't. Doesn't work. What time is it, what time is the alarm going off, how long till the alarm goes off.

He will constantly interrupt conversations, either if I'm on the phone or if DH and I are talking. He will butt in and say things that he has no clue about, and has no idea what we're even talking about, just has to get involved for the sake of it. Say DH and I are talking about something, he will hear one word and say "I want X" even though he doesn't know what X even is. "I want to go to Y" but doesn't even know what or where Y is. He just always has to be involved. If we're watching something or talking about something, he has to know, he has to ask questions, has to make a comment (that often makes no sense) he cannot not be involved. Again, this ties in with what I said about him being a bit of a busy body/know it all. You can't do anything or say anything without him knowing.

I've rambled on for ages now, I'm sure you get the picture. But does anyone have any advice/strategies for managing these types of behaviours? Does this sound like ADHD? DH says even if we get DS diagnosed, he doesn't want him on medication or anything. I just know I can't cope with it any more, it's wearing me down. I love him so much, he is so funny and clever, but just so so draining with his constant need to talk/need for attention.

OP posts:
Triffid1 · 02/06/2022 13:55

Does sound like it could be ADHD or a sensory processing issue. Can you see a Gp and ask for a referral for assessment? Surely that's the first step?

CasperTheSecond · 02/06/2022 14:02

Triffid1 · 02/06/2022 13:55

Does sound like it could be ADHD or a sensory processing issue. Can you see a Gp and ask for a referral for assessment? Surely that's the first step?

Sorry I did forget to mention I have already tried speaking to the GP about 6 months ago and was told pretty much that he's too young, it's normal behaviour, he will grow out of it.

OP posts:
ForestFae · 02/06/2022 14:03

Go private if you can afford it. I have ADHD and DS1 does as well, hes 7. He was diagnosed at 4, we went private. He’s on a low dose of medication and it’s made a huge difference.

Interested in this thread?

Then you might like threads about these subjects:

ForestFae · 02/06/2022 14:05

I know you said your husband isn’t keen on meds by the way but it’s worth not ruling anything out until you try it - if you try it and it doesn’t work for your Ds, you can stop it. It’s not like they’re permanent or cause any lasting issues.

CasperTheSecond · 02/06/2022 14:11

ForestFae · 02/06/2022 14:03

Go private if you can afford it. I have ADHD and DS1 does as well, hes 7. He was diagnosed at 4, we went private. He’s on a low dose of medication and it’s made a huge difference.

I'd definitely go private if we can afford it, how much would something like that cost? Sorry, I'm a bit clueless about that sort of stuff.

I am open to trying medication and think we should try it if it could possibly help. DH is just against all types of medication tbh, will moan and moan about pain rather than just take some paracetamol. I think he could be convinced if it comes from a professional though.

OP posts:
ForestFae · 02/06/2022 14:14

CasperTheSecond · 02/06/2022 14:11

I'd definitely go private if we can afford it, how much would something like that cost? Sorry, I'm a bit clueless about that sort of stuff.

I am open to trying medication and think we should try it if it could possibly help. DH is just against all types of medication tbh, will moan and moan about pain rather than just take some paracetamol. I think he could be convinced if it comes from a professional though.

It costs us about £1000, I think some are cheaper but we went to someone who works at The Maudsley as they’re specialists in autism and adhd (DS1 has both). The doors it opened for him are wonderful - he gets DLA now, which we can use for sensory equipment. He gets disability passes when we go to large venues which means he doesn’t have to wait in queues and noisy environments. He’s entitled to support in mainstream school (I pulled him out but that’s another issue, mainstream school didn’t work at all for DS1 but that might not be the case for your DS). Other than a house deposit it’s the best money I’ve ever spent. Highly recommend.

PiffleWiffleWoozle · 02/06/2022 14:17

Sounds like an intelligent 6 year old looking for stimulation/something to do to me. Different children have different temperaments, so could it just be this?

TeaandHobnobs · 02/06/2022 14:26

Obviously I am not remotely qualified to judge, and am only going on what you are posting, but I would say they majority of what you are describing fits my DS’ ASD characteristics - the not understanding social norms, always talking over you / not understanding the “give and take” of conversation. ADHD and ASD are very common co-morbidities, and if your DH has ADHD, it wouldn’t be surprising for your DS to have inherited it.

We haven’t put our son on medication for his ADHD - my DH is really quite against it; I don’t love the idea but would prepared to give it a go if it were the thing that makes life easier for DS… we may end up trialling it once he is at secondary school if he is really struggling to cope.
I have a friend who has two children with ADHD who are on medication (age 11 and 8), and they (the children or the parents) just would not be coping without it - it has made a huge positive difference to them. One of the parents has also just being diagnosed with ADHD and has started meds themselves.

Getting a diagnosis isn’t just about accessing medication - you should get a detailed report with lots of advice on how to support your DS and help him navigate life / school. I’ve found since learning more about ADHD and ASD, and how they manifest in my DS specifically, that life is a lot calmer and more manageable.

Our route was private EdPsych assessment (c £800), followed by private ADHD and ASD assessment (c. £2.5k). He has also had a occupational therapy assessment via the NHS (he was on the waiting list for 3 years for this).

CasperTheSecond · 02/06/2022 14:26

ForestFae · 02/06/2022 14:14

It costs us about £1000, I think some are cheaper but we went to someone who works at The Maudsley as they’re specialists in autism and adhd (DS1 has both). The doors it opened for him are wonderful - he gets DLA now, which we can use for sensory equipment. He gets disability passes when we go to large venues which means he doesn’t have to wait in queues and noisy environments. He’s entitled to support in mainstream school (I pulled him out but that’s another issue, mainstream school didn’t work at all for DS1 but that might not be the case for your DS). Other than a house deposit it’s the best money I’ve ever spent. Highly recommend.

That's a bit more than I was expecting actually, but can afford it for the sake of DS. I know I only moaned about how it affects me but I do know it's about him.

Did you go private because you didn't get anywhere with your GP? That's great that he has so many resources to help as a result.

Out of curiosity, did you yourself get diagnosed as an adult or a child? Just wondering if it's worth going private for DH too since he's been waiting so long.

OP posts:
Beseen22 · 02/06/2022 14:27

I pretty much have the same son to be honest. And a 2 yo boy who doesn't exhibit the same behaviours which suggests to me that my eldest probably isn't quite neurotypical. The main difference is that he gets it from me so I possibly have a little more understanding that he's not being malicious, his head is just so busy. Another difference is that my son doesn't have any issues with friendship, he has friends though I do recognise that if he keeps going on about harry potter (which he is pretty hyperfocussed on) some of his friends get annoyed.

Alexa is quite useful for us. Audio books can help him focus (works for me too) and help calm the busy side of his brain so he can get to sleep. He can set alarms on Alexa to give him more comprehension of time. Lists that he can check off are really helpful.

Essentially a lot of his unfocused behaviour is helped by me being present and redirecting him. Which is of course frustrating as I should be able to leave him to get his shoes on and he is perfectly able to get his shoes on but I know he will need redirected at least 4 times. I also give him a lot of time around the house to do the activities he enjoys and flirt around with activities as he stumbles across them. Our biggest argument is keeping his playroom tidy. Nothing works to focus his mind except me sitting in the room/tidying along with him.

His p1 report was good but not listening was a major theme. His teacher had him sit beside her a lot of the year so he got his jobs done. I'm thankful he has a small class size to support him in that. She said it's frustrating because she knows that he can do the questions instantly but he will muck about all day rather than get it done.

For the interrupting I found a tip on a blog years ago to have him hold his hand around my wrist is I'm talking and he wants to tell me something. When I'm finished my conversation he can tell me.

If we do pursue diagnosis in the future it will be for support during exams above anything else. Also be aware of the type of learner he is. I found school very easy so never learned how to study so failed spectacularly at uni. On my second uni attempt I discovered I'm a kinesthetic learner so I will either learn on the job or if I iron while listen to recorded lectures. My friend was the same...she used to knit in lectures and it totally works.

ForestFae · 02/06/2022 14:34

CasperTheSecond · 02/06/2022 14:26

That's a bit more than I was expecting actually, but can afford it for the sake of DS. I know I only moaned about how it affects me but I do know it's about him.

Did you go private because you didn't get anywhere with your GP? That's great that he has so many resources to help as a result.

Out of curiosity, did you yourself get diagnosed as an adult or a child? Just wondering if it's worth going private for DH too since he's been waiting so long.

Yeah. They wanted me to wait for ages and try all these pointless things like courses first, but I already knew I had ADHD (I had been diagnosed about a year before I requested DS getting assessed) and I knew what I was looking at as they were the same difficulties I had. DS was also struggling at this time and so I didn’t want to put him through more trauma and stress.

An adult, in my early twenties. I was identified as dyslexic as a teenager but nothing else was picked up, found out I have adhd and dyspraxia when I was about 22.

CasperTheSecond · 02/06/2022 14:42

TeaandHobnobs · 02/06/2022 14:26

Obviously I am not remotely qualified to judge, and am only going on what you are posting, but I would say they majority of what you are describing fits my DS’ ASD characteristics - the not understanding social norms, always talking over you / not understanding the “give and take” of conversation. ADHD and ASD are very common co-morbidities, and if your DH has ADHD, it wouldn’t be surprising for your DS to have inherited it.

We haven’t put our son on medication for his ADHD - my DH is really quite against it; I don’t love the idea but would prepared to give it a go if it were the thing that makes life easier for DS… we may end up trialling it once he is at secondary school if he is really struggling to cope.
I have a friend who has two children with ADHD who are on medication (age 11 and 8), and they (the children or the parents) just would not be coping without it - it has made a huge positive difference to them. One of the parents has also just being diagnosed with ADHD and has started meds themselves.

Getting a diagnosis isn’t just about accessing medication - you should get a detailed report with lots of advice on how to support your DS and help him navigate life / school. I’ve found since learning more about ADHD and ASD, and how they manifest in my DS specifically, that life is a lot calmer and more manageable.

Our route was private EdPsych assessment (c £800), followed by private ADHD and ASD assessment (c. £2.5k). He has also had a occupational therapy assessment via the NHS (he was on the waiting list for 3 years for this).

That's interesting that you say that about ASD, as that has come up before when I've been doing some research and I had wondered if some of the things could be linked.

That is all I want tbh, for all our lives to be a bit calmer and more manageable. If that's with medication then so be it, if it's just a case of me needing a bit of education on the subject, and that helps, then that's great too.

OP posts:
Nocutenamesleft · 02/06/2022 15:00

Oh god

i could of written this thread. I suspect I have ADHD. A friend of mine recently got diagnosed and I did the text she had done as a bit of a joke (I’ve suspected my child of adhd for years now!!) I scored so high that it’s almost impossible she reckons for me not to be diagnosed.

I’ve spent years trying to get my child diagnosed. They’ll do things like mum can I have this toy and I’ll say no. A min later she’ll ask the same question. Can I have this toy. I’ll say I just told you no. This goes on for days!!!!!! I know you’ve said no. But can I do…..

her teacher also thought she didn’t have it. Oh. The list goes on. Not listening. Highly strung. Highly emotional. Spends money like it’s burning a hole.

im trying to get her privately diagnosed.

CasperTheSecond · 02/06/2022 15:16

Beseen22 · 02/06/2022 14:27

I pretty much have the same son to be honest. And a 2 yo boy who doesn't exhibit the same behaviours which suggests to me that my eldest probably isn't quite neurotypical. The main difference is that he gets it from me so I possibly have a little more understanding that he's not being malicious, his head is just so busy. Another difference is that my son doesn't have any issues with friendship, he has friends though I do recognise that if he keeps going on about harry potter (which he is pretty hyperfocussed on) some of his friends get annoyed.

Alexa is quite useful for us. Audio books can help him focus (works for me too) and help calm the busy side of his brain so he can get to sleep. He can set alarms on Alexa to give him more comprehension of time. Lists that he can check off are really helpful.

Essentially a lot of his unfocused behaviour is helped by me being present and redirecting him. Which is of course frustrating as I should be able to leave him to get his shoes on and he is perfectly able to get his shoes on but I know he will need redirected at least 4 times. I also give him a lot of time around the house to do the activities he enjoys and flirt around with activities as he stumbles across them. Our biggest argument is keeping his playroom tidy. Nothing works to focus his mind except me sitting in the room/tidying along with him.

His p1 report was good but not listening was a major theme. His teacher had him sit beside her a lot of the year so he got his jobs done. I'm thankful he has a small class size to support him in that. She said it's frustrating because she knows that he can do the questions instantly but he will muck about all day rather than get it done.

For the interrupting I found a tip on a blog years ago to have him hold his hand around my wrist is I'm talking and he wants to tell me something. When I'm finished my conversation he can tell me.

If we do pursue diagnosis in the future it will be for support during exams above anything else. Also be aware of the type of learner he is. I found school very easy so never learned how to study so failed spectacularly at uni. On my second uni attempt I discovered I'm a kinesthetic learner so I will either learn on the job or if I iron while listen to recorded lectures. My friend was the same...she used to knit in lectures and it totally works.

Yes that is also what made us take a bit more notice of his behaviours, having a 2 year old that is the complete opposite. That could just be he's a different temperament but they're polar opposites.

He loves Alexa and will talk to her for ages and ask her lots of questions (rather her than me 🤣) and the kid loves a list too! He often needs to take himself off to his room, sit under a blanket and watch his tablet, almost as if he needs to decompress alone away from everyone.

Mornings before school can be so difficult, I feel like I'm constantly telling him to eat his breakfast, as he just sits there otherwise.

His teacher said he does well in school, doesn't struggle or just not do the work. He seems to be eager to impress and show what he's capable of and his teacher said he could have gone straight to YR1 and skipped reception all together (though he is the oldest in his year). But is a bit of a know it all/ shouts out/has to be the first to do something/ tells other children they are wrong when they're not because he wants to be right/ gets upset if he is wrong/can't do something/someone else gets there first.

OP posts:
CasperTheSecond · 02/06/2022 15:27

Nocutenamesleft · 02/06/2022 15:00

Oh god

i could of written this thread. I suspect I have ADHD. A friend of mine recently got diagnosed and I did the text she had done as a bit of a joke (I’ve suspected my child of adhd for years now!!) I scored so high that it’s almost impossible she reckons for me not to be diagnosed.

I’ve spent years trying to get my child diagnosed. They’ll do things like mum can I have this toy and I’ll say no. A min later she’ll ask the same question. Can I have this toy. I’ll say I just told you no. This goes on for days!!!!!! I know you’ve said no. But can I do…..

her teacher also thought she didn’t have it. Oh. The list goes on. Not listening. Highly strung. Highly emotional. Spends money like it’s burning a hole.

im trying to get her privately diagnosed.

Yes DS will do exactly that! And if I tell him he's already asked me and I've already answered, it's like he's completely forgotten. Or he'll go oh yeah...so can I then?

He can be very emotional, and I think anxious too, I didn't touch on this part too much but he does tantrum a fair bit, what you'd expect from a 3 year old tbh. He seemed to improve a bit, then regress again. He has really bad anxiety regarding DH, and it only seems to come out when he's been off work for a bit or if DS is off school (I think because it's a disruption to the normal routine iyswim?) And he will either not go to bed, or will get up at the crack of dawn when he hears DH getting ready for work (he leaves at like 4/5am). Despite knowing DH can't just not go to work, he gets so worked up and almost has a panic attack about it. It happened the other morning because of it being half term, and he said his brain won't switch off and let him go back to bed. He fell down the stairs running after DH.

OP posts:
CasperTheSecond · 02/06/2022 15:52

Another thing is he gets very fixated on certain things. When he was in pre school they learnt all about the Chinese New year, and the Chinese Dragon dance, he would ask to watch videos about it, he would dance around pretending to be the head of the dragon, he was coming home every day from pre school with pictures of dragons he'd drawn or got then to print off so he could colour in, he was utterly obsessed for months and months. It eventually stopped but when they celebrated it in school this year he started to get obsessed again. Thankfully it stopped much quicker this time.

He was obsessed with Prince Phillip when he died last year and then the war in Ukraine when that all kicked off after hearing it on the radio in the car, now the Jubilee is the most recent thing. He also plays the same songs on repeat, had to get him headphones when he started doing that.

OP posts:
ForestFae · 02/06/2022 15:54

CasperTheSecond · 02/06/2022 15:52

Another thing is he gets very fixated on certain things. When he was in pre school they learnt all about the Chinese New year, and the Chinese Dragon dance, he would ask to watch videos about it, he would dance around pretending to be the head of the dragon, he was coming home every day from pre school with pictures of dragons he'd drawn or got then to print off so he could colour in, he was utterly obsessed for months and months. It eventually stopped but when they celebrated it in school this year he started to get obsessed again. Thankfully it stopped much quicker this time.

He was obsessed with Prince Phillip when he died last year and then the war in Ukraine when that all kicked off after hearing it on the radio in the car, now the Jubilee is the most recent thing. He also plays the same songs on repeat, had to get him headphones when he started doing that.

Sounds like autism as well as ADHD - really common to have both together, my son does. My son can watch the same movie back to back for weeks on end.

CasperTheSecond · 02/06/2022 15:57

Yes I've watched the Grinch more times than I care the count, watched it every day for months when it wasn't even Christmas.

OP posts:
greyinganddecaying · 02/06/2022 16:21

OP - I could have written almost exactly this about my son who's about a year older.

It's so frustrating not knowing how to help.

We're waiting for an ADHD diagnosis (it's a long wait here) and have just had a sensory assessment. He has an EHCP for other issues, but it's not making the process any easier.

Glitterbomb123 · 26/10/2023 21:12

Did you ever get a diagnosis or did it get better?

Helpsleepds · 26/10/2023 21:24

Wow, this is ridiculously similar to my 5 year old DS. We are also going to pursue the ADHD diagnosis privately, but I sympathise as it is incredibly exhausting. Feel free to DM me if you want to chat.

Kirstylvsya · 26/10/2023 21:29

I have a 9 year old diagnosed ADHD and sounds familiar to your child. Things I have found that worked-

A visual clock timer, it shows how much time is left -

https://www.amazon.co.uk/Temple-Management-Timer-Multipurpose-Practical-TLVT03/dp/B09WRCZGM2/ref=ascdff_B09WRCZGM2/?tag=googshopuk-21&linkCode=df0&hvadid=606850633808&hvpos=&hvnetw=g&hvrand=7279654541030665310&hvpone=&hvptwo=&hvqmt=&hvdev=m&hvdvcmdl=&hvlocint=&hvlocphy=1007321&hvtargid=pla-1718326642022&psc=1

Visual boards for now/next/ daily routine boards so child can see what's coming or happening.

Don't bother with the maybe/might/sometime. Stick to a strict yes or no. No's that cause meltdowns get easier the more they are used to hearing no.

I found it's being consistent that works, every time they interrupt correct them, when they say this or that for attention ignore them. Sounds harsh and is hard work but it gets better.

Sandrine1982 · 26/10/2023 21:39

Following

Rockbottomkeepsdropping · 26/10/2023 21:49

ForestFae · 02/06/2022 14:05

I know you said your husband isn’t keen on meds by the way but it’s worth not ruling anything out until you try it - if you try it and it doesn’t work for your Ds, you can stop it. It’s not like they’re permanent or cause any lasting issues.

If they get privately diagnosed can the diagnosis and any prescription then be ported over to the NHS when the appointment comes up there. I can possibly afford to get DD privately diagnosed and pay for medication for the year or 2 until the NHS appointment comes up but couldn’t afford it privately forever.

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