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Parenting

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Were you wrong?

9 replies

Losinmymind · 29/05/2022 19:04

I'm in an awful place, I feel like my DS may have ASD but those around me are telling me it's to early to say (he's just turned one) and that I'm probably imagining/exaggerating symptoms. I am the one who spends day in and day out with him so feel I'm best to judge but I do agree I need to sit on it a little longer. But the wait is going to kill me. I'm just wondering, did anyone feel like their child may have ASD but they turned out to be wrong? Clutching at straws here

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INeedtobealone · 29/05/2022 19:18

Yes me.

We had a number for concerns about DS and his development from 18 months. He was referred for asd assessment at 2.5 and finally had the assessment at 5.5 years. No diagnosis which I believe is the right decision.

He does still have a speech and language delay and goes to a mainstream school with a speech and language resource unit due to an EHCP. All good though and we're a million miles from where we were 3/4 years ago.

Our story shouldn't mens if you're worried speak to someone, HV, GP, self refer to speech and language if you can.

INeedtobealone · 29/05/2022 19:19

*mean

Ducksurprise · 29/05/2022 19:22

I didn't, but relatives did. One of mine was , and still is, very ordered. He lined up everything, he is very particular, he got annoyed with mess and couldn't do free play or games without rules. I guess he isn't atypical but he leads a successful life and has never been diagnosed.

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Losinmymind · 29/05/2022 19:38

Thank you for your replies, I really appreciate it. With him being so young is there a good way to go about getting the ball rolling? He's not in nursery and we had the 1 year HV check already - and why I'm panicking is because I think in hindsight I was too generous with my answers on the questionnaire, I don't know what I was thinking

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urrrgh46 · 29/05/2022 19:49

I have several children likely with autism but only one has a formal dx. We went for dx when she was 11 & I now get high rate DLA for her and carers allowance. Knew she had autism for years before we went for dx - it doesn't change anything about who she is.

MolliciousIntent · 29/05/2022 19:55

Yup! Thought DD was for sure on the spectrum, turns out she's completely NT and I had pretty severe undiagnosed postpartum anxiety.

StressyMcStressFace · 29/05/2022 20:23

If you have concerns about her development/behaviours take her to the GP who should refer her to a paediatrician. They will not formally diagnose ASD until 3 years but support and interventions can be offered as needed. Hope you get the help you need

StressyMcStressFace · 29/05/2022 20:24

Sorry didn't read properly- you obviously have a son not a daughter 😉

Losinmymind · 29/05/2022 23:30

Thanks everyone. I think he's a bit slower than his peers but I don't know whether I'm being overly anxious or not about this. Might be best a visit to the drs. X

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