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Meningitis-- when mums right and docs are wrong( long story)

55 replies

cantseemyfeet · 09/01/2008 01:06

I have just endured 5 days of hell and I am going to explain why in the hope it might urge other parents to use their gut feeling rather than rely on doctors advice.

On Thursday morning my 3 yr old son became unwell with a high temperature, I assumed it was just a bug going round and gave him Calpol and let him sleep.
When his temp hit 39 I took him to my GP who checked him over and told me he seemed ok but had swollen glands, he adviced me to keep him cool and gave me Brufen to bring his temp down.
By Thursday night he had developed a blotchy looking rash and his temp wasnt going down so I rang the emergency out of hours surgery, explained that he had seen a doctor already and that he was still very poorly with a rash now.I asked the doctor if he would come to my home to see him as I was getting worried.
The doctor told me I would have to bring my son to him if I wanted him to be seen and despite the fact I argued that I had a 5 month old son asleep and no way to get there as I was on my own (the surgery is 5 miles away)I was then forced to haul friends and family out of bed to look after my other children and then drag my son out into the cold to see the doctor.

Once there the doctor briefly checked him over and told me it was probably chickenpox. I said I was worried it was Meningitis and was told that it certainly WAS NOT Meningitis. The rash he had was multiplying by the minute which I questioned, as chickenpox tends to have spots that appear over a couple of days but I was assuered it was just a viral rash and was told to go home and let him rest.

The next morning I expected to find him covered in blisters, I even got some calamine lotion for him but, the spots were the same, not dark but blotchy and his temp was still high. Deep down I knew something was wrong but you put your trust in the doctors dont you and I didnt think they could be wrong.

I really began to panic when he started vomiting and although he was sleeping alot I found myself constantly checking him. I desperatly wanted to call the doctor again but when 2 of them have told you he is ok you dont want to become hysterical and tell them they are wrong. Then I saw it....that one spot. The one you dread ever finding but KNOW EXACTLY what it is. It was dark red and as soon as I saw it I rang the medical emergency number. It took 45 minutes for a doctor to arrive but the minute he saw him he told me he was going to inject him with peniccilin and call an ambulance.

The next half an hour was the scariest of my life. The ambulance was there within minutes but my son was going downhill fast, he was so sleepy, he was grey and spent most of the ambulance journey vomiting or being kept awake by the paramedics, who I have to say were fantastic.
By the time he got to hospital his hands and feet were so cold they couldnt find a vein to put a drip in but thankfully once treatment started he began to make a recovery. Hewas very poorly for the first couple of days but thanks to the wonderful nurses and doctors at the hospital he was allowed home with me today. He still has to have IV antibiotics every day but it was the best feeling in the world bringing him home.
Sorry this story is so long but I appeal to all parents, if your child is sick and you dont think your doctor is right PLEASE PLEASE take them to A&E. The consultant couldnt believe that I was told it was chickenpox as the first rash he got was a sign of Meningitis, along with the cold feet and hands. She told me I should of just brought him to A&E on Thursday night but praised me for going with my insticts and constantly checking him because if I had let him "sleep it off" I would now be arranging my sons funeral.
I can forgive my GP for not realising because he had no real symptoms at start but the out of hours surgery was a disgrace and I am going to kick up such a fuss about it.
I am so grateful that my son is alive and making a recovery but it is only because I know him and I knew something wasnt right. If you feel the same when your child is very unwell then I urge you to do the same!

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tulip27 · 20/01/2008 02:57

Sending your son get well wishes. You poor thing to have gone throught somting so terrible. I am a nurse and Work in general practice, I am going to pront out your story and distribute a copy to them all so that they don't make the same mis diagnosis.

cantseemyfeet · 20/01/2008 03:14

Tulip,
Thank you for your post, yes it was pretty scary time but thankfully he is back to being a handful.
Glad story is going to be used as example, I know Docs arnt all like the one I had and I know it is difficult to spot in the early stages but if the doctor I saw spent an extra 5 minutes with my son and checked him properly she would of probably realised something was wrong and he would not have had the unnecessary suffering he went through the next day.
It is a battle of time when it comes to Meningitis which is why Doctors need to listen AND look if a child comes in with any symptoms, I know in most cases it will be a simple virus but they should treat all cases as potential Men cases until it has been ruled out, not treat it as a virus untill hysterical parent rings again begging for help.
mmsai; Sounds like you have as much faith in docs as I have at the moment,and I certainly wouldnt be happy if a doc laughed at me when I was making suggestions!!
Hope your son is ok and getting the right treatment.

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FoghornLeghorn · 20/01/2008 07:45

I first noticed this thread a few weeks ago when you first posted CSMF but I was actually a bit scared to look at it. the thought of meningitis terrifies me and I think that the rash being one of the last symptoms makes the whole thing 100x more scary for me as the symptoms prior to that are so hard to distinguish between and pretty standard infection or the horrific meningitis.
I have proved my GP wrong on 3 occassions since July, only for small things like a chest infection or an ear infection but I have no faith whatsoever !

I am so glad your DS has made a good recovery, and yours too Lisalisa
Forty - how horrendous. I think that's what is so terrifying, once meningitis takes hold it's proven to be deadly within hours

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PetitFilou1 · 21/01/2008 16:17

cantseemyfeet sorry to hear about your horrendous experience but glad you seem to have got through it. If you are still wondering how to complain - write to your practice manager and copy in the local Primary Care Trust to which your GP practice belongs. If you are struggling to find out who exactly to write to, ask for details of the Patient Advice and Liaison Service (PALS) that your practice uses. They can advise you or help you through the process. Good luck.

cantseemyfeet · 22/01/2008 22:57

Thanks a lot petifilou, I have found address to write to for out of hours and have written complaint to them but was wanting to highlight the fact it took 45 minutes to get a doctor to me, without having to ask at my surgery so your post has helped.
My step father was talking to a paramedic the other night who said that these out of hours doctors get unbelievable amount of money for doing these shifts. When his son was ill he asked for a doctor to come out, when the doctor told him he would have to be brought to the surgery(as they did to me) He warned them that he was a paramedic, he needed a doctor and if he didnt come out to him he would cause a LOT of problems.Result.....doctor was on the doorstep within 15 minutes, just goes to show that if your in the know these doctors will come to you rather than dragging sick children out in the middle of the night. Its just a pity they have to be threatened to do it.

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