ME /CFS and struggling

[Lcw29]

I have had chronic fatigue syndrome since I was a teenager. I'm now 31. I have a 3yr old and a 1yr old and have struggled over the past year with depression and anxiety. But this past week I'm so exhausted I feel like I'm relapsing and need a day in bed to sleep and do nothing but my hubby is working so I'm battling on. My youngest is waking at around 4am which doesn't help. I'm so tired I don't know how to get through the day. Then I feel guilty because I feel I'm not doing enough with my boys.

Does anyone have advice or a similar experience?

Hi Lcw. Only just joined and found your post. Don’t know if it’s still relevant or not but I’d say first of all is to not feel guilty. I have been told by my CFS specialist this so many times! Do you have anyone else apart from husband to help around the house/with kids? My advice would be rest whenever you can, don’t stress about the housework/cooking and put yourself first sometimes.

Hi Lcw. Sorry you’re struggling.

I’ve suggested to Mumsnet that we set up a Disability board so threads like yours get seen by others who can help. If you think that’s a good idea do go over to the thread and say so. It’s here: www.mumsnet.com/Talk/site_stuff/4231947-Could-we-have-a-disability-board

I don’t have CFS but I have a nearly 5 year old and a nearly 2 year old and I’m permanently exhausted. I really don’t know how you are managing so well. Be kinder to yourself and get rest where you can.

My sil has CFS and struggles with one child so I am in awe that you chose to have two - she really struggles with day to day stuff and the unpredictability that the condition brings. I have no advice for you but just sending sympathy x