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Parenting

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Selective mutism in toddlers

19 replies

Rosebud1302 · 31/01/2021 08:15

Hi all,

Worried mummy looking for advice please.

I suspect my toddler may have selective mutism. He is nearly 2.5. He has always been what could be classed as a "shy" child (I know that isn't a good word but it's the easiest to describe what I mean). From very young he hated children making loud noises. Be it crying laughing etc. It sent him into absolute meltdown. This stopped maybe around a year but even now nursery say he gets upset when other children cry or get upset. Just mentioning this as it says on the nhs site that children with selective mutism can be afraid by very loud noises.

He has never particularly enjoyed the company of children. Gets by just fine at nursery. Shares, is fine playing alongside them but doesn't seek it out. But do they generally at this age?! Don't know.

The main thing is. He is silent at nursery. He has been going since he was a year old. I think he's probably said a handful of words there. Ever. Sometimes he will talk to himself if playing alone and they secretly watch but nothing like he does at home. If they look or he notices them he will stop. He did get a little better when I picked him up at the end of the day for a time and would say "bye (name of staff) and wave but that has stopped since probably halfway through last year at a guess. He will nod and shake his head. Sometimes he won't even do his please and thank you signs which used to be one thing he would do if unable to speak.

At home he is for the most part incredibly chatty. This starts from the second he reaches the car in the car park at nursery. Before anyone asks - the staff tell me he is very happy and smiley during the day. He will laugh, play with toys, bring staff books to read and want to engage with them. He just won't speak. I don't have any concerns he is hating it there. He looks forward to going the night before.

Sometimes at home he will also suddenly go silent. Will again shake and nod his head but will have periods of time (minutes as opposed to hours) where he won't speak. This seems to come out of nowhere but I think is sometimes linked to when I ask him to say something - again such as please before food is given. 95% of the time there is zero issue at home.

He will also go silent often on calls to grandparents. He hasn't seen them a lot in person obviously due to lockdowns etc. He will be chatting to me excited to see them but goes silent as soon as they appear on the screen. Again is perfectly happy, showing toys to them, playing but often won't speak. Sometimes he will, sometimes he won't. He is better with grandparents than nursery definitely. In person some days he would be chatting, the next day he would be silent with them. There doesn't seem to be any way to predict it.

Does anyone have any experience or advice? If he does have selective mutism I obviously want to help him however I can and don't want him to be left known as "the shy kid" (no one says that but I guess they think it). Maybe I need to speak to nursery about it and see what they think?

I will say as well he has always been very clingy, especially to me. Although he is fine in the morning before nursery, he really struggles with drop off. Always has done (got better just before lockdown and then right back to square one). He gets upset, clings to me etc. Is this because he doesn't like the idea of talking there? Because I know as soon as he walks in he is fine and eating/playing etc.

Sorry for the really long post. Any advice greatly welcome!

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Bobbybobbins · 31/01/2021 08:28

No direct experience but my niece has selective mutism. She is very chatty at home and with her friends but will not speak much at school or to other adults etc. She is now 8 and just started at a new school who are much better than her infants. Key ideas the school are using: direct questions are very difficult as they put lots of pressure on the child so not too many of them, playing alongside or with to encourage speech, using activities she enjoys, not making a big fuss if she does speak.

Maybemay123 · 31/01/2021 08:50

One of my dc has this following a traumatic event aged 5 (so a bit older).
School got support from a psychologist and speach therapist. Who dc wouldn't talk to!
The best advice was don't make a big deal of it and no direct questions. Also at first providing a way to answer without speaking (eg point to what they want for lunch). There was a lot of building confidence, praise and open questions. As dc got older we were encouraged to slowly push the boundaries. So our aim would be dc buys some sweets from the shop first we'd go to the shop several times, then dc chose some sweets and I'd buy them demonstrating good communication then finally dc would pay and say thank you (took place over several weeks). We then progressed to a cafe (as you don't leave immediately after speaking).
Dc is now in secondary school and is doing great 95% of the time and even speaks in class. Anything upsetting sets dc back but now it's a blip.
I think you probably need to get a speach therapy assessment (nursery may have one linked if not hv can often refer).
Also it helped for us to have recordings of speach so we could show what dc was capable of.

IdesMarchof · 31/01/2021 09:07

I would go for a speech therapy assessment - I have two dc with different speech difficulties and the sooner you go the better the outcomes usually. This is a really good age to seek help and I think you are doing absolutely the right thing in raising it.

A lot of speech therapists are doing assessment online at the moment so if you ring some local to you they will be able to give you your options. I would go private because it will be much quicker and better if you can possibly afford it. Assessment will be very gentle - playing games etc.

Unfortunately nhs slt budgets have been really cut back and that has meant the advice from nhs slt is often watch and wait even where dc would really benefit from speech therapy. I know parents with children with significant speech delays who have been given really minimal help. I would definitely go private if you can afford it.

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Rosebud1302 · 31/01/2021 09:11

Thank you everyone for your views and advice so far. I am taking it all on board.

I guess my question is - when is it "just" shyness and when is it more? How do you tell?! Both DP and I were stereotypical "shy" children but did not have mutism. But we did go quiet in social settings and preferred to stand back and watch rather than engage in a group. We both did fine at school but I do have vivid memories of hating drop off and pre school and primary just as my son does. I guess I don't want to make a deal about something that is just his character but I also don't want to ignore it!

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Labobo · 31/01/2021 09:16

I wonder if it's to do with processing at that age. DS1 was very talkative but developed a really bad stammer. We had it checked out and they said it was because his thoughts were ahead of his mouth, so he couln't speak as fast as he could think. It could be a similar thing with your DC where the act of processing the information and finding the right words causes a delay that stops him actually speaking them.

I'm interested that professionals suggest no direct questions. I'd heard the opposite, that you casually, with your back to a child ask 'milk or juice?' so they have to answer because you can't see where they are pointing.

Rosebud1302 · 31/01/2021 09:18

@Labobo I would be inclined to agree with you if he struggled at home too? I feel nursery if anything don't force him to engage because they know he struggles and therefore I'm not sure (in my son's case) that is the reasoning. But I totally get what you mean yes. No sign of stammer at home but will obviously keep an eye on it!

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Squashpocket · 31/01/2021 09:40

Probably an unpopular opinion, but if this were my dc I would assume that they were finding nursery terribly stressful and do everything I could to find an alternative. He might do better with the 1:1 environment of a childminder for example, if him staying home with you is not an option.

Rosebud1302 · 31/01/2021 12:08

Thanks @Squashpocket the thought has crossed my mind. It's so hard because I see photos and videos of him dancing and smiling. All the activities he engages in (just without words!). He eats brilliantly. Sleeps well. He stops crying the moment I leave and has breakfast. I love the nursery and they are very supportive to helping him settle. He doesn't deal with change to routine brilliantly (hence lockdown and then Christmas have set us back with drop off) so I really am so reluctant to change what he knows :( I could be wrong. Who knows what the right answer is. I just have a gut feeling that changing the setting isn't the best option for us. But I absolutely understand your point and have considered it hard.

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IdesMarchof · 31/01/2021 15:18

@Rosebud1302 I have known two lovely kids with selective mutism and in both cases in later nursery/early primary years it was social interactions that suffered. I think you are absolutely right to take this seriously and speak to an slt

IdesMarchof · 31/01/2021 15:19

Will send you a pm with a name in case you live in my part of the world! Long shot I know

Labobo · 31/01/2021 16:27

@Rosebud, I meant that maybe nursery is hyper-stimulating, so with the processing of everything else going on, trying to articulate what to say and how to say it could be overwhelm, whereas home is more familiar and less full on, so he might feel more relaxed and not have to think about it, just let himself babble on. But just guessing.

Rosebud1302 · 31/01/2021 16:40

@Labobo oh I see what you mean apologies. Yes you could well be right. I do wish he was at an age where he could tell me more what it is. I will definitely have a big chat with nursery and gauge what he is like as of course I get a snapshot.

@IdesMarchof oh thank you I've replied! ☺️

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IdesMarchof · 31/01/2021 20:10

Brilliant @Rosebud1302

If you look at the website of the first slt I mentioned in my pm there is actually a whole page on selective mutism - see Who is this therapy for, go down the page and click ‘reluctance to speak’ looks like some very helpful info!

OllietheOwl · 31/01/2021 20:17

I was astounded when the nursery teachers told me me super-confident, boisterous toddler hardly ever spoke at nursery! She was a complete chatterbox at home so I was amazed when they said “oh XXX it’s nice to hear you talk!” one day when I picked her up.
She’s now 3.5 and talks all the time, in and out of the home.

Rosebud1302 · 31/01/2021 21:37

@IdesMarchof thank you so much I will take a look!!

@OllietheOwl did you find doing anything in particular helped? Or did she just improve with time?

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MogsBestestFurball · 06/03/2022 01:21

@Rosebud1302 how did things turn out with your daughter's speech? Am in a similar position now.

SuperSleepyBaby · 06/03/2022 04:06

I had selective mutism as a child and a teenager. I got no help for it - my dad is overbearing and pushed me to be more sociable, and was obviously disappointed i was not a different personality!

It gradually faded away - and i am 40 now and happily married with children and a job i like. I am well able to chat away to most people now and enjoy their company.

I am not close to be dad though as a result of how he managed my difficulties!

Silkierabbit · 06/03/2022 04:18

My DS was like that at nursery apart from the clinginess, he used to sing I am going to nursery happily but was silent there. He is ASD.

Rosebud1302 · 06/03/2022 07:24

@MogsBestestFurball hi! Well my son is 3.5 now and I have no concerns anymore :) he is still quieter in pre school and any social situation that isn't his home, but my word so much better. I would say he was around maybe 2.5 when he started to grow in confidence. Nursery were wonderfully supportive and no one pushed him. He just gradually started talking more and more. I had a meeting with them to discuss my concerns and they put a support plan in place. Maybe you can try this with your childcare setting? But actually very shortly after that he just started talking there on his own and now chats away. He is silent when I drop him off and when I collect him but during the day they talk about all the funny things he comes out with and the stories about what we did at the weekend etc. Good luck!

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