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Parenting

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Disabled Father, disabled son, I need someone to talk to.

29 replies

OMGhelp · 11/10/2007 22:58

Hi, this is my first post and its really a call for help and support. My husband suffers from Rhumatoid arthritis to such an extent that he now uses a wheelchair when outside and can't hold a pen well enough to write his signature. My son who is 10 years old has learning difficulties and get 1 to 1 support for 15 hours a week paid for by the council, although the school gives him nearly permenant 1 to 1 support. He is a delightful child, very loving, but he takes everything literaly, lots of other problems, but no major physical ones. We get Full DLA Mobility/care for my husband, but we have been knocked down from full DLA care & mobility for my son to only low rate mobility because his old school said that he didn't need any extra care (they also were providing him with 30 hours a week of 1 to 1 ). I believe we have all the financial help we can get, but I am the one who needs caring for now. Does anybody know of clubs etc. that can help me cope. ( I am also on mild anti-depressants to keep me on an even keel).

OP posts:
OMGhelp · 13/10/2007 18:33

I'm goin on holiday, Im going on holiday, .
Lovely hubby saw me writing on this post and sneaked a look when I was having a shower, we don't normally hide anything from each other, so he was panicky why I was keeping something hidden and broke his own privacy rule and checked up on me. He then booked a last minute holiday with the car repair money, and we are going to Benidorm on Tuesday. As he said that if the car breaks down we can always fix it, but if I breakdown, the family falls apart. Right now I am trying to find shorts etc. and the suitcases etc. and we are off to the shops tomorrow to get the shampoo etc.
They can be lovely, can't they, hubby's.

OP posts:
1dilemma · 13/10/2007 21:23

Enjoy

marie1979 · 13/01/2009 19:58

does anyone claim DLA for their child who has ezcema?? my child has it for most of his life, i have to bath him put cream on him 3-4 times a day change his bandages, sleep with him to stop him scratching as he scratches consently through the night and i have woken up to screams and blood pouring down his arms and legs he looked like something out of a horror movie my poor baby i feel helpless, he has all he medicinces and apply creams all the time but still scratches. it is worse than it sounds i have to other children and they dont have it i also watch what he eats and drinks and use non bio and he has tried endless amounts of creams and medicines and also am careful about what he wears.

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marie1979 · 13/01/2009 20:02

omg im sorry im new think ive posted on someones thread!

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