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At end of my tether with reflux :(

31 replies

poppetpenguin · 10/07/2020 04:39

Baby is 7 weeks and has been diagnosed with reflux and CMPA, needs to be held pretty much constantly and still vomits everywhere. Gaining weight OK and during the day when being held or in sling is quite settled and ok... but at night!
We have her sleeping on an incline to try and help, but she cannot be put down without crying within 5 minutes. I am obviously posting this at 4am after a night of repeatedly trying to put her down (it's a next to me so I can put my arm/head in to comfort her but this doesn't help much)
I've been breaking my heart listening to the gulp,gulp sound of it coming up in her throat and her groaning and starting to cry and thrash again. Then she will turn her head and vomit, even two and a half hours after a feed and on an incline.

She is ff and on a milk free formula, had gaviscon but the constipation caused even more upset.

Should I be pushing the GP for something else or is this just life now? I'm absolutely beyond exhausted and feel so sorry for her having to be so uncomfortable.
Any advice would be really welcome as I'm just crying and exhausted all night!

OP posts:
Are your children’s vaccines up to date?
Literallynoidea · 10/07/2020 14:34

I had this years ago with my first DC. It was one of the worst times of my life and I was fobbed off everywhere til eventually I paid £100, saw a private gastroenterologist, and given the right meds.

You need omeprazole. Push for your doctor to give them to you or go privately if you can.

They are a wonder drug - they changed my life.

Good luck OP - I have been there and know how truly fucking shit it is til you get the right meds.

Curioushorse · 10/07/2020 14:35

Hullo! Just sending you sympathy, OP. You will get through this. My 7-year-old had it as a baby and it was brutal. I don’t remember much of her first year because I was so tired. But everything is fine now!

I breastfeed her, and the paediatrician recommended me cutting out dairy from my diet. I think it’s that which worked, rather than the gaviscon (I was also so tired that I thought they said wheat too, which apparently they didn’t. But I was desperate so I cut that out too. It’s the thinnest I’ve ever been. I looked super hot because I could only eat healthy things).

Sandsnake · 10/07/2020 14:38

Sorry - not much time for a longer rely. Fight for Omeprazole. It works and is safe for newborns. Your GP can prescribe it but they may try and pass you on to a paediatrician. Dosage may be slightly tricky due to your baby’s age but it can be done. You and your baby don’t have to suffer. PM me if you want any advice! Good luck.

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toughsituation · 10/07/2020 14:51

All three of our children has silent reflux and my goodness feeding and settling them was very challenging. We needed Omeprazole and Neocate Milk. It was a huge battle with our first child and we had to experiment with Gaviscon and Ranitidine first. Our second and third babies (twins) did not suffer as much as we knew what was happening and what they needed. Ours also slept in an Amby nest at night and this made a huge difference.

poppetpenguin · 11/07/2020 03:35

We are on puramino for the last week after similac was still causing reactions and having a better night tonight for the first time in ages but there seems to be no rhyme or reason to it! Still having issues but she did settle and sleep with the snuzpod at an incline for a little while so I got a nap. DH took her earlier so I could sleep a few hours.
Always seems to be more reflux in the early hours when I'm most knackered compared to pre-midnight!
Called up and got a GP booked for next week, thank you again for all the advice and also for all of you who have been through the same thing thanks for the support, it feels like a lot of my friends with babies have no idea!

OP posts:
calmbeforethestormm · 11/07/2020 04:29

My twins were the same and I can imagine your concern. Give it few more weeks it'll get better meanwhile try and catch up with some sleep during day time (get someone else to lookafter the baby)
Trust me it does get better when they're abit older my boys are 3 months old. It's not that bad anymore

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