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Parenting

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Original poster

Any parents with epilepsy?

57 replies

newy · 12/08/2007 14:26

Any other parents with epilepsy out there? Mine was well controlled but became less so when meds changed so I could get pregnant. Post birth I had a tonic clonic and had to go back into hospital. Have had a few myoclonic since but getting better. DS 4 months old.

OP posts:

Iwasafairybutlostmywings · 05/01/2013 20:49

it's frustrating isn't scissy I used to wake up confused phone people they'd send me to doc which was useless people only found out when we were at a conference and it happened there. thankfully right at back so didn't cause any scenes!!

scissy · 06/01/2013 16:12

Mine was a bit more drastic than that - when I was having absence seizures every 10-15 mins and couldn't hold coherent conversation any more, it was only then that my parents thought "maybe we should take her to the doctor"??! Needless to say, I get annoyed now when ppl talk about kids who 'daydream' a lot - yes most of them are just daydreamers, but one of them may have epilepsy!

Highlander · 16/05/2013 22:43

If you're diagnosed epileptic, what 'rights' do you have at work?

Collegue has lots of sick leave, which only the HR dept has a problem with. He's been threatened with the sack. We definitely don't want to lose him, he's a really valuable member of the team.

Can you be registered disabled with epilepsy? If you're registered, do you then have protection at work?

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Highlander · 16/05/2013 22:43

Sorry to gatecrash, but really want to help this guy.

PolterGoose · 17/05/2013 18:25

This reply has been deleted

Message withdrawn at poster's request.

scissy · 27/05/2013 21:01

As previous posters said, epilepsy used to be covered under the DDA, which became the equality act. I haven't had to use it thankfully but my employer does allow me to attend epilepsy medical appointments without having to take leave as epilepsy is a qualifying disability.

Shannaratiger · 25/09/2013 21:20

Have just re-found this thread! In June 2009 found out me and dd have dyspraxia which contributes to tiredness, forgetfulness (very bad). My last tonic clonic fit I think was easter 2010 the first and only one dd has seen. It is definately stress that triggers mine off. Every holiday the change in routine makes my stress levels rocket (dyspraxia is on the autism spectrum so change / lack of routine really bad) i think I still have 'absences' but not sure.
Does anyone else though suffer with the tiredness forgetfulness and frequent feelings of depression?

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